lymebytes
Frequent Contributor (1K+ posts)
Member # 11830
posted
My LLMD says you are never 'cured' and will not even use that word.
There is no test to prove LD has been eradicated. It could be, but they don't know. A negative test doesn't mean much, people with active LD can test negative.
What means more according the experts is when the CD57 is around 200 & you are symptom free for 4 months, you will likely have won the battle.
But since they believe Bb lives on to some degree the war may not be won, relapse can occur, but relapse is unlikely according to Burrascano if the CD57 is 200.
posted
I understand when you are feeling better symptom wise that is what matters.
But there are some people saying their blood test shows negative, lyme free, they are not talking about the cd57 test, I dont remember who I talk to about it to ask them.
Do they mean the lyme bands turn from positive to negative?
I dont understand.
Posts: 187 | From FL | Registered: Nov 2007
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
quote:Originally posted by laceyj:
But there are some people saying their blood test shows negative, lyme free, they are not talking about the cd57 test, I dont remember who I talk to about it to ask them.
If they tested negative either the Bb was not found in their blood or the test was inaccurate. If they had truly eliminated the Bb in their blood, it still would not mean that it hasn't sequestered in their tissues. It can still come back out at a later time.
Those people may be asymptomatic and believe that they have been "cured". The only way to really know if it has been eradicated is by coroner's examination.
Bb has been found in brains & biopsied tissues, post mortem, in people who had been "cured".
I'm sorry to have had to say that. I depresses me to know that it may be a life-long battle.
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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adamm
Unregistered
posted
Are there ANY cases on record in which Bb wasn't
found in post-mortem examination of the body an apparently
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