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» LymeNet Flash » Questions and Discussion » Medical Questions » to those taking vitamin d - especailly those w/low vit d (Page 2)

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Author Topic: to those taking vitamin d - especailly those w/low vit d
B R H
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Did you have both 25-D & 1,25-D tested? It would be unusual for a doctor to order only the 1,25-D test, especially if you didn't specifically request only the 1,25-D test. Doctors very rarely test 1,25-D.

I believe 45 pg/mL for 1,25-D is exactly the upper limit recommended by Merck, but it's not quite as simple as that. Your 25-D matters as does whether or not you've been supplementing with vitamin D, taking steroids, other medications, supplements, etc.

You should post your test results at the MP or curemyth1.org website. They will ask these & other questions & give you a more detailed answer.

If your 25-D is also low (say below 25 ng/mL), you should definitely take the matter seriously in my opinion.

Posts: 246 | From Grass Valley, CA | Registered: Jun 2007  |  IP: Logged | Report this post to a Moderator
pamoisondelune
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My Vit D 25 was tested 2 or 3 times in 2007; the last one was 89. I had been dosing Vit D2 at 50,000 IU's twice a week. After that reading, i cut the dose to alternating 50,000 IU's once a week/twice a week; which resulted in the Vit D 1,25 result at 45. I'll get the Vit D 25 tested soon again.
Thanks for all the information!

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tailz
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My vitamin D was low. Maybe I have mycoplasma? Vitamin D makes me deathly ill and so does calcium.

I just read somewhere that high calcium and low iron means cancer somewhere in the body.

My first guess would be liver cancer because I had a liver lesion, but that appeared late - so if it is liver cancer, it simply spread to my liver from somewhere else.

My second guess would be lung or colon cancer, but again, breathing difficulties and diarrhea were later symptoms. Plus, they x-rayed my lungs enough times and did enough colonoscopies on me.

It would be some sort of lymphoma - enlarged, painless lymph nodes in my groin. They're still there. Why didn't he listen to me when I asked him to biopsy them? It's written like a joke in my record, "Patient thinks she has cancer."

What am I supposed to do? Biopsy the darn things myself?

If I ever don't log on for a month - I want an autopsy. That's my dying wish. Sorry, got off topic hear, but I'm having nightmares over this.

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Truthfinder
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My tests:
Parathyroid hormone: 42 (range is 10-65)
Calcium: borderline - 8.7 (range is 8.6 - 10.2)
Vitamin D 1,25 - Dihydroxy: 49 (range is 15-60)
Vitamin D 25-OH, Total (see below): 16 - LOW (range is 20-100

I think the `ratio' that BRH refers to is evident in my tests - my D-1,25 level is 3 times higher than my D-25 level. (Correct me here if I'm wrong, BRH.)

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Tracy
.... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�.

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gwenb
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Truthfinder

Your Vitamin D 25-OH is, in my opinion, dangerously low. Vitamin D OH levels in that range make you more likely to succumb to a range of illnesses. Please go to Pubmed.com and review the hundreds of scientific papers on the virtues of healthy levels of Vitamin D. The Marshall Protocol is extremely controversial - so be very careful before accepting their recommendations.

Gwen

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DoctorLuddite
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I agree, 25 OH D is too low, but it is part of a delicate endocrine balance with feedback control, so you have to test supplementation carefully. First assess how much vitamin D you might be getting now by looking at all vitamins and supplements, and then how much you might be getting that is naturally occuring in foods, ie: organ meats, fish, eggs from free range chickens...there aren't many foods that have naturally occuring Vit. D...Then find a D supplement that specifically states that it is "naturally occuring from {fish or cod} liver oil, these usually come in 400 IU doses, but occasionally you will find a 1000 IU, and I have seen just one 2000 IU fish derived D product. Start low and go slow, ie: take 400IU once daily (regardless of what your background D intake is) and increase by 400 IU per day every 3 days. Stop increasing when you notice a positive effect or when you reach a dose of 2000IU/day and maintain that daily dose until you get consistent daily sun exposure at midday, if you have negative effects early on other than what you might consider to be mild herxing, stop alltogether, more eval is necessary. Remember when you are doing this that if you happen to go out at noon on a very sunny day, that you might get a D surge, but if you have gotten your body used to a dose of 2000 IU per day this might not be noticeable...

[ 01. February 2008, 04:17 PM: Message edited by: DoctorLuddite ]

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Truthfinder
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Thanks, Gwen and Doc Luddite.

I've been supplementing with Vit D3 since I had those tests done late in October. I don't think the D3 I'm taking is from fish oil - I e-mailed the company that makes it to find out and never heard from them. I'm sure it's from lanolin. Unfortunately, part of this type of D3 is in my calcium supplement, and this is one of the few calcium supplements I've ever been able to tolerate. So, I guess I'll just have to get the fish-oil type for my additional supplementation and not worry about it.

I have been ramping up VERY slowly with both the calcium and the D3. No negative symptoms, although I seem to be having some trouble with some kind of infection in my L eye, which I think got started with the first cold I had. So, I don't think it is the Vit D affecting my eye, but some kind of bug. I'm working on that....

Anyway, I plan to start adding more D3 at a little faster rate now.

Too bad my Carlson Norwegian Salmon Oil doesn't list Vit D as an ingredient. Shouldn't it be in there naturally?

One other question.... you can't absorb Vitamin D from the sun through glass, can you? (Like driving in a car or sitting in front of a window, etc.)

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Tracy
.... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�.

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DoctorLuddite
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Most glass used commercially is made by a process called "floating", that is: molten glass is poored on a pool of molten tin, it then settles evenly and the thickness will then be uniform and can be controlled precisely. The glass hardens before the tin as the two cool, so the tin can be drained and will leave the "floatglass" behind. this glass will have a molecule thick coating of tin on it which acts to filter certain rays of the sun, plus additives can be put in the glass that will add to the UV blocking, so you might not make much D from sitting in front of a sunny window. Oddly enough though, I get an almost drug like sleepiness when sitting in the sun outdoors, and sometimes the same feeling when sitting in a sunny window...shortly after spending time in a tanning booth too, for that matter. I think it is due to a sudden increase of D, who knows? Salmon oil is distilled from the body of the fish and probably has some D but not of a significant enough amount to bother mentioning it on the label. The liver of fish is where the A & D accumulate, so the concentration is worthy of putting on the label of fish liver oil.
Cod liver oil has been in use since 1824, it's experience tested.

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IMHisda
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Azure:

Hi. I had very low Vitamin D and my doc put me on Vitamin D drops ( I think they're from Biotics) and it has helped tremendously energy wise. I take it along with this stuff called Cell Food which has dissolved oxygen in it and I feel so much better the next day. Especially if I have my tsp of liquid magnesium drowned in some juice the night before. I was burned out on swallowing pills so she put me on the drops and it really tastes OK in water and really helps.

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RV

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IMHisda
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Low vit. D makes you more suceptible to more autoimmune disease (just what we need)!

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RV

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Truthfinder
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Thanks, Doc. I, too, get so sleepy from being in the sun - outdoors or in front of a window.

I think your skin still reacts to the sun, even through a slightly-tinted car window. I remember going on a trip for several days and the arm that was not next to the window was definitely lighter in color.

I used to take Cod Liver Oil, but I just could not stand to have fish burps the whole day. I don't have that with the Salmon Oil gelcaps.

Thanks for the tip on the liquid D drops, BR - didn't realize it came in liquid form. I have some Cell Food, too, but waiting to get my D supplementation where I want it before starting something new.

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Tracy
.... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�.

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