posted
No One ever mentions IVIG treatments. I have had severe nerve pain in arms, legs, feet and was diagnosed with small fiber and large fiber neuropathy which they think is caused by the Lyme. Dr.Y in New York thinks IVIg will help and I am starting them next week. My LLMD feels that the nerve pain will not go away without the IVIG treatments. I am still on oral zithro and recently mino. I have only been treated for 3 1/2 months although it feels like a lifetime!!!! Any feedback on the IVIG treatments?????
Posts: 256 | From long island, new york | Registered: Feb 2008
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savebabe
Frequent Contributor (1K+ posts)
Member # 9847
posted
Have you ever tried levaquin for bart?
Hitting bart really helped reduce my nerve pain.
Posts: 1603 | From ny | Registered: Aug 2006
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posted
I also had small and large fiber neuropathy as shown with a tissue biopsy.
I had undergone 2 years of IV abx treatment for lyme and coinfections and continued to have neurological degeneration. I also developed muscle paralysis in my extremities, GI tract and in muscles of respiration.
For me, IVIG has been life saving. I have had considerable nerve regeneration, and I am becoming more mobile every day.
If IVIG is indicated, it can be very helpful, and is often combined with Lyme and coinfection treatment.
Posts: 663 | From NH USA | Registered: Sep 2004
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posted
Posters- when replying to the IVIG question, you are referring to Introvenous Immuno Globulen....correct?
IVIG treatments are when you revieve serum antibodies from hundreds to thousands of other people. The theory is that someone may have been exposed to what you have and thier antibodies could help your body fight it off.
This is totally different than standard Lyme IV treatments.
I had been given this treatment for months before diagnosis and they eventually made my symtoms worse, after the last treatment I was bedridden for quite some time and there was no progress in my condition....just my experience.
BJK
-------------------- BJK
Nothing I write here is medical advice...I'm just another lymie sharing how this disease has affected me personally Posts: 175 | From Central Maine | Registered: Sep 2007
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