LymeNet Flash: Byron's 2nd Update

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Byron's 2nd Update

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Author

Topic: Byron's 2nd Update

ByronSBell 2007
Unregistered

posted

It has been 28 days now on IV vancomycin 1,000mg twice a day and high dose bicillin shots at the clinic.

My liver enzymes have risen a little but my LLMD's supplements have knocked them back down without having to back off the IV's.

Herxing is not as severe but still pretty rough.
No real improvements yet.

I will be on Vanco for another 56 days, then retest myself to look for improvements.

A different antibiotic will be used later, most likely Primaxin or Flagyl.

IP: Logged |

Clarissa
Frequent Contributor (1K+ posts)
Member # 4715

posted

Thanks for the update, Byron!

Keep pecking away...you're a fighter.

Healing thoughts your way,

--------------------
Clarissa

Because I knew you:
I have been changed for good.

Posts: 1625 | From Florida | Registered: Oct 2003 | IP: Logged |

peter j
LymeNet Contributor
Member # 11825

posted

I might also start a Primaxin cure soon. Hopefully in mid-July. I will combine it with ciprofloxacin. Keep us posted on how you progress

Do you know what dose will you be taking of Primaxin?

Posts: 275 | From Home | Registered: May 2007 | IP: Logged |

Boomerang
Frequent Contributor (1K+ posts)
Member # 7979

posted

Thanks for the report, Byron.

Hang in there!! Keep fighting those buggers!

Posts: 1366 | From Southeast | Registered: Sep 2005 | IP: Logged |

catalysT
LymeNet Contributor
Member # 10786

posted

Thanks for the update Byron. I have been interested in seeing how your current therapy goes.

--------------------
"You know, the worst, meanest, nastiest, ticks in the world are politicks," - Steve Nostrum

Posts: 242 | From South NJ | Registered: Dec 2006 | IP: Logged |

feelfit
Frequent Contributor (1K+ posts)
Member # 12770

posted

Byron,

Hope that things take a turn for the better real soon. Hang in there kiddo, thinking of you and sending good thoughts your way.

Feelfit

Posts: 3975 | From usa | Registered: Aug 2007 | IP: Logged |

Boomerang
Frequent Contributor (1K+ posts)
Member # 7979

posted

Byron, I keep wondering how you are doing. Hope you are feeling better!

Please let us know when you get a chance.

Posts: 1366 | From Southeast | Registered: Sep 2005 | IP: Logged |

Tincup
Honored Contributor (10K+ posts)
Member # 5829

posted

Hopefully the worst is behind you now. Thanks for the update.

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004 | IP: Logged |

Boomerang
Frequent Contributor (1K+ posts)
Member # 7979

posted

bumping for Byron.

Posts: 1366 | From Southeast | Registered: Sep 2005 | IP: Logged |

Tincup
Honored Contributor (10K+ posts)
Member # 5829

posted

Boomerang is bumping for Byron. Boomerang is bumping for Byron.

That just sounds cute.

Almost like a dance tune!

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004 | IP: Logged |

BorreliaBrain
LymeNet Contributor
Member # 7603

posted

Too funny. I am also interested in hearing how vancomycin works as a Lyme cure... my LLMD mentioned trying it next - he told me there was an LLMD in Florida that put his patients on long term vanco IV and says it cures most of them! So let's hope that's what happens here.

But the vanco's on hold because he wants to try one other of the newer abx's first.

So I'll be watching for your updates (and hopefully we can trade success stories)

BB

Posts: 194 | Registered: Jul 2005 | IP: Logged |

MommaK
LymeNet Contributor
Member # 10376

posted

Hi Byron!

Sounds like you're hanging in there! So glad the herxes are being helped.

What do you do to keep occupied at the clinic everyday?

Thanks for keeping up posted!

Take Care, MommaK

Posts: 242 | From Mississippi | Registered: Oct 2006 | IP: Logged |

just don
Frequent Contributor (1K+ posts)
Member # 1129

posted

Go gettem tiger!!

PM sent!!

We are all rooting for you,,,in our best manners!!

--------------------
just don

Posts: 4548 | From Middle of midwest | Registered: May 2001 | IP: Logged |

doc
Member
Member # 14471

posted

Hi byron , Im kinda quiet here but read most posts, Im very intrested in your program & progress . Please post a update when u can & good luck with your TX , DOC

Posts: 95 | From nys | Registered: Jan 2008 | IP: Logged |

Rianna
Frequent Contributor (1K+ posts)
Member # 11038

posted

The best of luck Byron, we are all rooting for you
[group hug]

Rianna

Posts: 1172 | From UK | Registered: Jan 2007 | IP: Logged |

ByronSBell 2007
Unregistered

posted

I have just crossed the 2 month mark of treatment. I had to be put on IV doxy temporarly because of such severe herxing from the IV vancomycin. I will go back on it soon and do 2 more months of it. I am continuing the IM Bicillin weekly as well.

My circulation has improved, I have more color, some days I have more energy, and everynow and then I will feel "decent" not great but decent... Still such a long ways to go

Insurance ended up paying for my first month of treatment, so that was good.

I am still in the herx storm that continues to go on and on but it is not quite as bad. I need atleast 3 more months of treatment, so I am looking at 5-6 months total for treatment.

IP: Logged |

Boomerang
Frequent Contributor (1K+ posts)
Member # 7979

posted

Byron, hang in there. Hope your herxes begin to lessen a bit.

Posts: 1366 | From Southeast | Registered: Sep 2005 | IP: Logged |

feelfit
Frequent Contributor (1K+ posts)
Member # 12770

posted

Byron,

Have your headaches and stomach aches let up? I think you are a very brave and strong young man...not to mention you have an excellent attitude.

Best,
Feelfit [spinning smile]

Posts: 3975 | From usa | Registered: Aug 2007 | IP: Logged |

Amanda
Frequent Contributor (1K+ posts)
Member # 14107

posted

Hi Byron,

you are a dogged fighter with lots of heart, hang in there.

You know, I've never met you..., but you seem kinda sexy! Are you single? [Smile]

Manda

--------------------
"few things are harder to put up with than the annoyance of a good example" - Mark Twain

Posts: 1008 | From US | Registered: Dec 2007 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

Onward, forward!!! [Cool]

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001 | IP: Logged |

CherylSue
Frequent Contributor (1K+ posts)
Member # 13077

posted

Way to go, Byron. I'm following your progress. Best of luck.

CherylSue

Posts: 1954 | From Illinois | Registered: Aug 2007 | IP: Logged |

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