posted
My poor husband had to take out a loan against his 401k to pay for Dr. C in Tampa for my LLMD treatment.
I got the papers signed off today from my primary care doctor who was very sympathetic. Wow, how refreshing that was.
It will take me a month and a half, maybe more, to get into his office, but it's a step. I'm in so much pain, I can not even begin to describe it.
It's amazing how long it takes to get started in this.
She gave me some more Klonopin to help with my neuro symtoms and it helps me greatly. Unfortunately, I've built such a tolerance her, 1mg 2x a day doesn't cut it...not at all.
But for now, I'm enjoying relief and maybe I will be able have a little more fight in me, insurance company fights, etc.
Hey I actually am making dinner tonight. What a concept.
-------------------- "~*~My smile hides my bite~*~." Posts: 506 | From N/A | Registered: Jun 2008
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
Glad you found a llmd
Sorry hubby has to borrow against his 401k for treatment
First steps are important...cant climb the stairs without stepping onto the first step first... at least not when you you have lyme that messes with cordination and balance
posted
We had to borrow against my husbands 401K a couple years ago at one point too,unfortunately that was what we had to do...
We are actually just about done repaying in a couple months!
Glad you are feeling better
-------------------- "We must be willing to get rid of the life we've planned, so as to have the life that is waiting for us" - e.m. forster Posts: 921 | From PA | Registered: Jan 2004
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Unfortunately that is standard in Lyme treatment.
We have cashed in two 401ks, no money to even think of paying them back. We have sold everything we can, spent all of our children's college savings....well it goes on and on. We will probably end up having to file bankruptcy too.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi 1815-
It took me a year and two weeks for my first LLMD visit --
After visit things started happening quickly-
Hang in there - Things will get better -Jay -
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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posted
Thanks. I've been sitting here just completely lost. Even an upper middle class family can't afford the road we have to go down to get treated.
Relationships strained, financial hardships, mind blowing pain. It's such an injustice.
There will be a day of reckoning.
It is sad that it will come to late for most of us but for the people in the future, my 2 year old when he's older, his children, his grandkids. Something will happen. Something has to change.
At least now I feel like I have some kind of strategy to get fixed...even though it's going to take a while. :|
-------------------- "~*~My smile hides my bite~*~." Posts: 506 | From N/A | Registered: Jun 2008
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1Bitten2XShy
Unregistered
posted
IMO, Dr. C is totally worth it.
I have been seeing him since 3/07, and have improved greatly. In fact, was at an appt. with him yesterday.
Have faith that you will be in "good hands".!
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posted
He is very nice. On a personal level, I really like him.
He's also quite experienced.
His staff on the other hand, well, some of them are nice, some not so nice. Don't take it personal.
It is too bad that he doesn't take your insurance. Perhaps if you talk to the right person, you could negotiate some of the expense. It's so unfair.
Good luck--you are making a step forward.
As for sticking it to all those idiot doctors, that is wasted energy. Most of them are a far distance from being willing to change.
Posts: 353 | From Florida boonies | Registered: Nov 2005
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