posted
Hi Everyone Well I was on News channel 8 New Haven CT tonight talking about Lyme Disease. I look half dead but I think I did a good job. I hope it helps us all. Let me know what you think.
I thought you did a great job.... you covered a lot in those few minutes...
.......and you looked great too..
thanks for posting this.. mtree
-------------------- worrying about tomorrow takes its strength away from today Posts: 970 | From Point PLeasant , NJ | Registered: Jan 2008
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Boomerang
Frequent Contributor (1K+ posts)
Member # 7979
posted
Monica, you did great!! Very impressive...and you managed to get a lot of information out!
You looked great too!
Posts: 1366 | From Southeast | Registered: Sep 2005
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posted
Thanks Everyone...no doubt Kit. I want to cement the whole property I have not given up on that SPA trip...we will go very soon! Love you Monica
Posts: 422 | From CT | Registered: Oct 2007
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
Great job, Monica!
My husband and I are starting a "pave the earth society". You may join if you like.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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-------------------- I was diagnosed with and treated for late stage Lyme in 1991 with 6 weeks of doxycycline. Initially felt better, but then developed health problems that last until today. Posts: 83 | From New Jersey | Registered: May 2008
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
GREAT job, Monica. Awareness is key and you did a great job to help educate!!!!!!!
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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mojo
Frequent Contributor (1K+ posts)
Member # 9309
posted
Well, done!
It's tough to believe that even in Connecticut they still don't "get it".
Hopefully this will raise more awareness. You were very articulate and did a super job.
Posts: 1761 | From USA | Registered: May 2006
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daise
Unregistered
posted
Hi Monica,
You were wonderful--sincere, with lots of information and you presented our predicament very well.
Lets hope lots of ill people with Lyme (but they don't know it) see it. How could anyone watch that and not be moved?
Thank you so much!
(Honestly: You looked beautiful, yet tired. A Lymie!)
posted
Wow! What a great interview. You were so natural and easy to identify with, and you got a lot of points across in a short time.
Your story is so very similar to what has happened to many of us. If every doctor could see this, maybe it would make a dent in the huge number of people being misdiagnosed over and over again.
Thanks Monica.
Ann
Posts: 287 | From Northern California, USA | Registered: Oct 2000
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posted
Thanks everyone. I was very nervous about the interview but the reporter was very nice. I know it is important to get as much publicity as we can to spark change...and provide incentive to help find a CURE. You guys always make me feel better! Thanks
Posts: 422 | From CT | Registered: Oct 2007
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~ ~ Hope is a powerful medicine. ~ ~ Posts: 2775 | From MN | Registered: Apr 2001
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shazdancer
Frequent Contributor (1K+ posts)
Member # 1436
posted
That was wonderful, Monica, just awesome! I thought three things were especially effective:
one, that you have a science background, and nobody listened to you; two, that the CDC counts 11 infected in your town, while you can count 11 on your street! and three, that you were misdiagnosed over and over in Connecticut, where doctors should know better.
It speaks to how deeply Yale's influence penetrated. But no more.
Thanks, Shaz
Posts: 1558 | From the Berkshires | Registered: Jul 2001
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
Awesome job! This is wonderful!
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
Monica-
totally impressive...
dill
Posts: 2507 | From lost in the maze | Registered: Aug 2006
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posted
Very, VERY, Well said. All we want, is help.Just Please help us. We got this "Bug-Bite", and we can-not fit in anymore. We hear about things that will work, but our Ins. keep turning us down. Evan when we get the "Real Test", and "Here's Proof", that were not looking for symonthy, were still turn'ed away. How loud do we need to scream, "HELP".................! But we look so good on the out side. "If They Only Knew".......How bad it's on the inside. Be-Ginning to think, were All in this togeather, and need to comfort each other, till it's over. It feels like, if yr a burdon, we dont have time for you. BUT, Wait, we neaver ask'ed for that "Little Bug Bite", but at that point, us Lyme-People, are put below, normal people, and have come to disposeiable flesh & blood, and no longer need'ed. If they look the other way, they dont see us................? When the CDC, Slam's the door in our face, it's over. Only hope we have, is to "scream-@-the Top of our Lung's, for a bit of compasion. IF, Only They Could Feel the Pain We Are Going Threw, On the Inside, Every Day, Something would be done Yesterday......................! Tex...................Out !
Posts: 39 | From Branson Mo. | Registered: May 2007
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Monica, You were natural, beautiful and incredibly articulate. Very girl-next-door with a PhD. No way can you be 40!!!! I was thinking you barely looked 30!!!
Disturbing though that as I watched the video, ads streamed below for the Yale Medical Group, "best doctors in the world." A little irony there, methinks!
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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posted
Monica, You did an awesome job!!! I agree with Shaz....i loved when you brought up those 3 things!!!
You rock!!!!!!!!
Gail
-------------------- Strength does not come from physical capacity. It comes from an indomitable will ~ Gandhi Posts: 562 | From Wellsville, PA, USA | Registered: Jan 2004
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posted
You were great Monica - what a good job! Thanks so much for putting yourself out there.
A touch of irony
- when I just watched your video now there was an animated banner ad for Yale Medicine saying "We are Top Docs" under the video of you running throughout the whole interview
-------------------- "We must be willing to get rid of the life we've planned, so as to have the life that is waiting for us" - e.m. forster Posts: 921 | From PA | Registered: Jan 2004
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remarkable that you talked off the top of your head, and it came from your heart in many places!! great job mentioning so many things!!
write your comments on this page! i did; you can also JUDGE THEM; give us good ratings!!!
i also commented on the yale banner underneath and they were the cause of the idsa drs. making us sicker ... misdiagnosing and UNDERTREATING ANTIBIOTICS, ETC.
MONICA, please copy your link of the video and my link for comments to SUPPORT forum where i started LYME VIDEOS ONLY COLLECTION ... ADD YOURS.
please show the LENGTH OF TIME it runs too and a brief summary of it showing your name in it will help many of us remember it, and add new haven, conn!
thanks so much!! will be nice when someone adds it to YOU TUBE for views/ratings too!!
God bless you Monica for speaking out for the entire lyme community on your live interview!! WELL DONE!
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
Excellent job :-) I really liked how you pointed out the money that could be made on a good reliable blood test. Also the potential for the drug companies to make money as well.
i agree, if you can go national with this one.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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posted
Excellent, Monica - I was thinking that if someone doesn't know much about what's going on, that it's easy to follow and understand what happened to you, and your points are good ones. I agree - I'd like to see you testify nationally!
Posts: 13171 | From San Francisco | Registered: May 2006
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posted
Monica, girl you were outstanding...you realy got your point out...thanks so much..only wish you could be on national tv..then maybe it would wake up alot more DR...take care and thanks again
-------------------- madgen Posts: 342 | From newjersey | Registered: Oct 2007
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posted
Thanks Everyone. Someone asked what I sprayed the yard with. I have a company called CT Tick control come and spray the perimeter of the yard with Tempo. It is the least toxic of the list of approved pesticides. I am still not crazy about spraying anything but the risk/benefit ratio says SPRAY. The natural alternatives do not work well here. Maybe they will eventually make a really strong natural alternative that does the trick. Although I am joining Sixgoofykids with her cement the world club Love you guys Monica
Posts: 422 | From CT | Registered: Oct 2007
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Thanks for putting a voice to our collective challenge. You were very articulate. Just think...you probably saved someone's life or livelihood by doing this interview!!!! You are an angel!
-------------------- Mountaingirl
"What lies behind us and what lies before us are tiny matters compared to what lies within us." ~ Ralph Waldo Emerson Posts: 138 | From West Virginia | Registered: Sep 2007
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posted
LOVE IT!!! Especially the look on your face when she was asking if doctors are more aggressively diagnosing/treating lyme disease!! UHH... NO!!
I too found a small tick on my stomach in the shower and did not get sick right away. My first symptoms were neurological months later.
LOVED the comment about how the CDC's bogus reporting is adversely affecting us as well!! I think that is a HUGE point...along with a reliable test, maybe they could do more research into the development of new antibiotics specifically for borrelia.
Thank you for putting yourself out there. I have a feeling if we all spoke out more, it would eventually have to get better!
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mtree
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