LymeNet Flash: First day of IV Rocephin

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»	LymeNet Flash » Questions and Discussion » Medical Questions » First day of IV Rocephin

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Author

Topic: First day of IV Rocephin

mazou
LymeNet Contributor
Member # 15319

posted

Am I in for a rough ride?

I am treating for neuro-cognitive symptoms, and would love to know others' experiences with this drug for neuro symptoms.

Thanks! mazou

Posts: 636 | From Saratoga County, NY | Registered: Apr 2008 | IP: Logged |

seekhelp
Frequent Contributor (5K+ posts)
Member # 15067

posted

I too anxiously am waiting to hear others' replies!

Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008 | IP: Logged |

barbarame
LymeNet Contributor
Member # 16423

posted

Some people start to improve.

I did not.. the worse till it better applies too me. I am on it 2 months.

barb

Posts: 167 | From USA | Registered: Jul 2008 | IP: Logged |

mazou
LymeNet Contributor
Member # 15319

posted

I'm usually one of those "worse before it gets better people" too.

Posts: 636 | From Saratoga County, NY | Registered: Apr 2008 | IP: Logged |

tonyg
Member
Member # 16223

posted

You will feel up and down and may have new symptoms.

I was on it for 2 weeks, and I wish I was back on

it.

Posts: 60 | From germany | Registered: Jul 2008 | IP: Logged |

mazou
LymeNet Contributor
Member # 15319

posted

You wish you were back on? How come?

Posts: 636 | From Saratoga County, NY | Registered: Apr 2008 | IP: Logged |

tonyg
Member
Member # 16223

posted

because i feel like i was improving.. even after herx,

how long are you on treatment

Posts: 60 | From germany | Registered: Jul 2008 | IP: Logged |

mazou
LymeNet Contributor
Member # 15319

posted

I believe it is for three months.

Posts: 636 | From Saratoga County, NY | Registered: Apr 2008 | IP: Logged |

wantabe
LymeNet Contributor
Member # 14703

posted

1st week on it right now- Started Wednesday...

-Sour stomach, not settled
-just not with it feeling
-tired and a bit down

-It is also my 4 week herx pattern on iv doxy and my hormones.

Are you taking any other antibiotics?

My rash (see earlier post) has not been linked to the medication and seems to be getting better. I missed 1 day of treatment because of it.

Have not discussed time line w/meds- I see my LLMD every 2 weeks for status check up

so far...so good Hope yours goes well too
[Big Grin]

--------------------
Lyme+ dx Dec.07
Currently: Levaquin,Cefdinir,Plaquinil,Fluconazole
Nystatin,B12 meth, nortriptyline
Ambien,Clonazepam,many supplements
Dairy, sugar, gluten free diet
infrared sauna and exercise

Posts: 235 | From Iowa | Registered: Feb 2008 | IP: Logged |

catskillmamala
LymeNet Contributor
Member # 12536

posted

I am in my 7th week of IV and planning to go 8-9 weeks. The first 4 weeks were really hard. I herxed very hard and really could only go from bed to couch.

I could feel the picc line for the first few days and that was annoying. Then I had a major skin infection/allergic reaction to the picc covering.

That being said, over the last 2 weeks I have started to resolve. This includes being able to drive for the first time in months, work a little.

I've added oral zithro and that kicked it up a notch. Now I feel like I am starting to resolve. I've also added major detox supplements, acupunture and rife every 4 or 5 days.

I think the herx was bad but it definately got to stuff that orals just didn't hit. My main complaints are fatigue, eye problems, sound light and skin sensitivity.

Best of luck and hang in there.

Posts: 524 | From Hudson Valley, NY | Registered: Jul 2007 | IP: Logged |

tonyg
Member
Member # 16223

posted

Not everybody has the same reaction to rocephin.

One severe side effect can be diaherra, but I did not

have that problem. Good luck on it, and let me know

how you feel. I will get back on abx soon...

Posts: 60 | From germany | Registered: Jul 2008 | IP: Logged |

mazou
LymeNet Contributor
Member # 15319

posted

Wantabe, my symptoms are sounding a bit like yours now. I am on Cipro as well, so it's packing a one-two punch.

Catskillmama, I am so happy to hear of your progress! I have faith that the IVs will get to some of that stuff that the orals don't reach. Otherwise, why do it, right?

Posts: 636 | From Saratoga County, NY | Registered: Apr 2008 | IP: Logged |

tdtid
Frequent Contributor (1K+ posts)
Member # 10276

posted

Definitely a topic I'm extremely interested in, since I go in for my port on Friday and will have the visiting nurse over later in the day to give me my first dose.

I think the unknown is always the scariest part. We never know how we will react and EVERY single person will react differently. But knowing what to expect...in worse case scenarios...for whatever reason, helps me expect the worst but then can feel I got off easier than that.

Do let us know how you do and anyone else with guidance or what to expect....we'd love to hear from you.

Cathy

--------------------
"To Dream The Impossible Dream" Man of La Mancha

Posts: 2638 | From New Hampshire | Registered: Oct 2006 | IP: Logged |

Rianna
Frequent Contributor (1K+ posts)
Member # 11038

posted

It's my miracle drug

Rianna

Posts: 1172 | From UK | Registered: Jan 2007 | IP: Logged |

tdtid
Frequent Contributor (1K+ posts)
Member # 10276

posted

I'm going to bring this up to a the top since someone just barely put out a new topic asking this same type of question. Hopefully they will see it this way.

Cathy

--------------------
"To Dream The Impossible Dream" Man of La Mancha

Posts: 2638 | From New Hampshire | Registered: Oct 2006 | IP: Logged |

WIGGY
LymeNet Contributor
Member # 15377

posted

Thanks Cathy

Posts: 128 | From MICHIGAN | Registered: May 2008 | IP: Logged |

mazou
LymeNet Contributor
Member # 15319

posted

It's true, everyone will react differently. That is so frustrating!

Rianna, what happened to make this your "miracle drug"?

Posts: 636 | From Saratoga County, NY | Registered: Apr 2008 | IP: Logged |

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