Topic: Last words on LightWorks for those interested...
bejoy
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Member # 11129
posted
Sota is just putting out an extra lightworks paddle that has different colors. I don't think it's available yet.
They have a yahoogroups that you can join, where Sota will answer questions about the lightworks, and where people share their experiences. I read up, but don't feel like rehunting the link. They keep it separate from their website for liability reasons.
Speaking of Sota, I love their silver pulser and their mag pulser. Did me a world of good. Sota machine junkie, I am.
Start a new machine-specific thread, please do, if you are getting results from any of these others. There was some minor interest about a year ago, but only a couple of us were playing at the time.
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
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sparkle7
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Wow. Great news, Bejoy! That will be interesting to experiment with. I'd like to compile a list of the colors of LEDs & their potential properties.
It's kind of hard to find. There's alot of info on psychological effects of color but not direct scientific studies with LEDs on the body.
I think blue can be very useful in laser form for blood irridiation. I'm not sure how deep it penetrates from an LED, though.
I've seen yellow arrays for use for the skin - it's supposed to get rid of wrinkles by plumping up the collagen (if I recall correctly).
No sure about orange, violet, or green. I'll have to look into it.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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posted
Does anyone have experience with the BioMats (Amethyst, Jade) or know how they compare?
Posts: 925 | From California | Registered: Sep 2004
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sixgoofykids
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quote:Parkinson's disease is a common progressive neurodegenerative disorder characterized by the degeneration of dopaminergic neurons in the substantia nigra pars compacta.
Mitochondrial dysfunction has been strongly implicated in the pathogenesis of Parkinson's disease. Thus, therapeutic approaches that improve mitochondrial function may prove to be beneficial.
Previously, we have documented that near-infrared light via light-emitting diode (LED) treatment was therapeutic to neurons functionally inactivated by tetrodotoxin, potassium cyanide (KCN), or methanol intoxication, and LED pretreatment rescued neurons from KCN-induced apoptotic cell death.
The current study tested our hypothesis that LED treatment can protect neurons from both rotenone- and MPP(+)-induced neurotoxicity. Primary cultures of postnatal rat striatal and cortical neurons served as models, and the optimal frequency of LED treatment per day was also determined.
Results indicated that LED treatments twice a day significantly increased cellular adenosine triphosphate content, decreased the number of neurons undergoing cell death, and significantly reduced the expressions of reactive oxygen species and reactive nitrogen species in rotenone- or MPP(+)-exposed neurons as compared with untreated ones.
These results strongly suggest that LED treatment may be therapeutic to neurons damaged by neurotoxins linked to Parkinson's disease by energizing the cells and increasing their viability.
The study mentions Parkinson's specifically .... but in the context of neurotoxins. Since Lyme has neurotoxin involvement, I thought it was relevant.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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sixgoofykids
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quote:Fatigue is the most common symptom of all those diseases because the pathogenic intracellular bacteria attack the mitochondria or battery of the cell.
Lipids are the insulation for these mitochondria, and when the lipid membranes are stripped off, this depletes the energy and this is why fatigue is the most common complaint.
One of the keys to improvement then would be to somehow restore the mitochondria of the cell in order to restore energy.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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Keebler
Honored Contributor (25K+ posts)
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posted
-
To learn more, there's a lot about mitochondria at this site: www.vrp.com - Vitamin Research Products.
- upper right hand corner, pull down the search menu from "products" to "articles"
Although they sell products at this site,they have excellent research articles, consistently backed with numerous top-notch citations.
sparkle7
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posted
I used the LightWorks last night for 1/2 an hour (I was using it every day for about an hour, prior to the big reaction about a week or so ago). Much less herxing today! I even figured I could take the Cowden herbs again. I'm going to try the herbs & I'll see if it's a good idea to continue this way.
I skipped a day in between since I was in pretty bad shape.
I'm not sure if I should use it everyday for less time or every other day. I think the Bionic 880 protocol in Germany was 2 times a week. I also think that the Bionic 880 has a stronger or brighter light (more LEDs & stronger/brighter light).
If anyone has any thoughts - please post them.
I don't know anything about the mats with LEDs or the other products. If anyone does use them - please post your results so we can all learn.
The Lumen 90 seems good but it's in the $900 range. It's actually brighter than the Bionic 880... if you look at the specifications.
I don't know if this is an issue, though. I'm not sure how much light the cells can absorb at one time. If something is brighter - it just may mean that you use it for less time.
It's hard to say, though. I don't know if there are any studies about this that are for the public to read.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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sixgoofykids
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posted
Sparkle, my thought is, listen to your body. If you are reacting still from the day before, don't use it.
I am also using Transfer Factor, which is throwing me for a loop. I don't know if my body can handle my immune system waking up! I am still on meds, but I am feeling more from the TF and Lightworks than I have from any med lately (except Zith).
I have been thinking back on my own reaction a couple days ago .... it was a HUGE babesia herx. I hyperventilated, but stopped it by breathing into my hands and slowing down my breathing (no paper bag close). That was the first time I've hyperventilated in a couple years from the babs.
I also was having two or three sweats per night for a couple days.
I'm doing lots of rest and detox between treatments. Also getting some sun and some exercise.
Anyway, got on a tangent .... I think you should listen to your body. When you can handle more, do more, when you handle less, do less. I'm thinking about using it twice per week for now.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
Sparkle. Pleased to here your update, and you seem to have got rid of your toxic overload.
When I get mine, the major pill pushing I will do, is vitamin's, protein's, and acidophilus.
Because, IF it is the Immune System that's in OVERDRIVE, then it will want feeding.
It's a sad and disappointing time for us all, that we have to resort to take what measures we can, for this disease. While the Establishment seem to have abandoned us. Sorry to end in this note, but this is how I feel.
sparkle7
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posted
I don't think I have any of the co-infections. Everything seems much more complicated if you have them along with the Lyme.
I seem to be kind of sick to my stomach. I've been taking clay, bowel detoxification mixture & psylium. I don't want to take too much of the bowel cleansers. I think it can deplete your body of other nutrients.
It seems when I take the herb tinctures from Cowden - it's too much. I couldn't even imagine using abx with this infrared light treatment... but I don't believe I have the co-infections, either.
I had a hard time with abx in any case. Some of you say you feel better from taking abx. I never felt any better the whole 8 months I tried various combinations of them. They just made me feel more ill on top of the Lyme & it didn't seem to help at all.
I think using the infrared light is an ongoing process. It may actually be cumulative...
We just have to keep testing it to see what happens. Ultimately, it's something big in regards to the spirochetes. I don't think we would be having this reaction if it wasn't killing them off.
I had a much bigger herx than when I was taking abx. We just have to do it gradually over time.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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posted
Sparkle. Very rarely do I see a glimpse of those feeling a bit better times, as some of them speak of. I always seem bogged down with toxins.
So, I'm not expecting to feel anything but toxic and pain with the LTworks, I have no illusions about that. Killing, leads to the same thing, Toxins, how ever you do it, at least for me anyway.
But there may be added advantages with the LTworks, reduction of inflammation, less or no ABX, ( less Toxins ) maybe less muscle pain eventually.
So all in all, its worth a try. How this will work out with ABX, thats another thing I will have to wait and see. As Goofy says, we will have to listen to our body's.
Posts: 153 | From England | Registered: Jun 2008
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bejoy
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Member # 11129
posted
Here's the link for the lightworks discussion board for those interested:
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
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sparkle7
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posted
Thanks. I joined it...
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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sparkle7
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posted
Here's a tip I got from the folks at SOTA_LightWorks group on Yahoo:
"You might want to include the spine clear up at brainstem, and down spine do tail bone...... so you can include the Cerebral Spinal Fluid, which should catch a lot of the critters....."
I tried it & I felt alot better! I just let the LightWorks run through all of the frequencies, 2 times - at the top of my spine & at the tailbone.
I was really in alot of pain today & it did help.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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posted
Sparkle, have you looked into the Amethyst Biomat by Richway? You treat your whole body (spine and all) while lying on it. I have no financial ties.
Posts: 925 | From California | Registered: Sep 2004
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posted
Couldn't wait to tell everybody, tonight ( sunday ) my LTwrk's are now ordered. My daughter comes about once a week, and teaches me a bit at a time how to us the computer. I couldn't order it myself as I have a lot to learn yet. She ordered it from E BAY UK, supposed to be fast delivery.
She was very impressed by what she read. She want's to try it, ( no idea why ) as she hasn't got Lyme. I think I will be a bit nervous of it at first though.
Sparkle, hope you find something out about the Euro user's.
Posts: 153 | From England | Registered: Jun 2008
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posted
Sparkle, sorry I missed your earlier post about the biomat/other light devices.
I will keep all posted on my experience with the mat if I get one.
Thanks for leading us in this wonderful discussion!
Posts: 925 | From California | Registered: Sep 2004
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sparkle7
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posted
Everybody... keep us posted about good or bad results or anything related. If you use homeopathy or abx or other supplements - let everyone know how it's working.
This way we all can learn from each other!
Good to hear, herxuk. My boyfriend uses it & he loves it. He doesn't have Lyme. It's good for alot of things! Aches & pains, accupuncture meridians, wounds, growing hair???
SOTA is coming out with different color paddles soon, too (see below)!
The colours we have chosen are: Blue, Green, Amber and Yellow.
We have also re-designed the RED side to now have a mixture in a random pattern of:
1) 20 x Red @ 660nm 2) 20 x Red @ 635nm 3) 20 IR @ 880nm
The otherside of the paddle will have: 1) 55 IR @ 880nm 2) 5 x Red at 635nm
-----
I'll post more info about the colors & what they are supposed to treat, tomorrow. I have a Word document file I have to copy it from.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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Lauralyme
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posted
Is it safe to use the lightworks while on high doses of ABX?
-------------------- Fall down seven times, get up eight ~Japanese proverb Posts: 1146 | From west coast | Registered: Mar 2008
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lymie_in_md
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posted
First of laser safety, cold laser or LED produce very little directed heat and therefor cannot do tissue damage. So yes they are regarded as being safe. Heat Lasers or focused lasers can do tissue damage just like in star wars. The tissue can be melted or burned.
The lightworks LED is a cold laser and is therefor save at least according to the FDA. Maybe a better testimonial then the FDA is science is regarding it as safe. If you feel concerned about it, ask your doctor. And if you ask your doctor, please post his/her response.
-------------------- Bob Posts: 2150 | From Maryland | Registered: Dec 2007
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sparkle7
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posted
I don't think it's considered a cold laser since it's an LED wand.
There have been alot of studies that suggest that LEDs are very safe. I think the main thing is that the infrared light may cause an intense herx. You just have to proceed with caution in that respect.
I had a very intense herx & I'm still going through it. It's been about 2 weeks. It's funny becuse the infrared light caused the herx but it also can detoxify the neurotoxins.
None of us knows for sure how it effects the spirochetes & we are willing to experiment. Just be a bit cautious of that.
I'm not sure how it will interact with abx. I'm not taking them. Maybe some people will post their experiences so we can see what the effects are.
Some abx cause people to be photosensitive. Using an infrared light or LEDs may cause issues due to that.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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sparkle7
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posted
Just to let people know... I am not going to remove this thread. Some people have asked me about this in PMs.
I am doing very well with the LightWorks. I went through a pretty bad herx for about 2 weeks. I was sort of afraid to use the LightWorks during that time. I used it a little bit.
After reading the articles that were posted about Parkinsons & neurotoxins, I reconsidered.
I tried using it as suggested to me by someone on another message board. I used it on my spine near where my head joins the neck & the tailbone. It really helped. I just let it run through all of the frequencies.
So, it seems to me that it can make you herx pretty intensely but, then, it can also counteract the toxins.
I think infrared light is really an amazing tool. We have to keep in mind that it can make you worse for a bit if you have Lyme.
I don't know if everyone will be effected by it in the same way. We just have to experiment.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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posted
I'm excitedly awaiting the arrival of my Lightworks...maybe tomorrow.
doing magnetic pulsing 2x a day and that helps joint pain but careful not to do too much to throw into herx. Understand LW can target lymph nodes and that would help alot.
Oh, yeah, just keep posting the great info and ignore the flak. Always look forward to your posts.
Posts: 78 | From SW | Registered: Jul 2008
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posted
My LT wrks will arrive this week LoneDove, perhaps you will explain magnetic Pulsing some time in thread. I have no idea what your talking about.!!! Completely in the dark about that. Thanks for update Sparkle.
Posts: 153 | From England | Registered: Jun 2008
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lymie_in_md
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posted
Not sure the real difference between cold laser and LED. I've read a few places where it seemed LED is a cold laser as well.
I'm still doing well with my lightworks. It definitely helps symptoms. I don't if this is the best way to describe it, but you feel a little more balanced, like your body is processing better and in better order. Sparkle maybe you can comment on it.
I only really felt bad the first 3 days.
I keep thinking the power difference of the Lumina Marnie mentioned or the 880 both are lot more powerful. Still hard to compare devices. In time I imagine we'll have that kind of information.
Sparkle, I very much agree using the nir behind the head at the top of the spine. I would definitely apply the wand there.
-------------------- Bob Posts: 2150 | From Maryland | Registered: Dec 2007
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johnnyb
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posted
That's it... am ordering one right now... Posts: 1197 | From New Jersey | Registered: Jul 2005
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sparkle7
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posted
Today, I'm having intestinal issues... feels like toxins. My treatment seems to alternate between feeling toxic & feeling energized or less pain.
I think it's the light that's causing the toxic feeling since I'm not really using much else that would cause that sort of reaction.
I think I just have to keep continuing with it to see what the ultimate result will be. I am going to try to combine using an auto nosode when I get the time to make it... should be soon.
Bob- I think a laser is coherent light. LED is non-coherent. Maybe you need to use the light for a longer period of time. That would compensate for lack of brightness...
I'd like to spend some time researching if brighter or more powerful light is more effective. I'm having a pretty big reaction just using the LightWorks... I don't know if stronger would be better for me.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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sparkle7
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posted
Still having intestinal issues, pain in the intestines. Not to be gross but I did see another biofilm in the toilet today... It also happened a couple of weeks ago & I thought it was either the bee venom honey or I had a stomach flu.
I think it's the light. A stomach flu would be gone by now & I stopped the bee venom honey (& most everything else besides the light).
I think I'm just detoxing & getting rid of bacteria that doesn't belong in my body. It may take some time... I've been ill for over 10 years.
I just have to bite the bullet & deal with it as best as I can.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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posted
Good Question. What does it look like ?? what should we be looking for ??? Or is it too unpleasant to tell ??
Posts: 153 | From England | Registered: Jun 2008
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sparkle7
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posted
It looks kind of like a tissue floating in the water. Sort of gelatinous.
Sometimes you can see them in old apple juice. The biofilm is the slimy stuff that keeps a bunch of bacteria all together in a community.
I posted another thread about it (Lyme, Biofilm, & Alzheimers) & there's a bunch of info about it here on Lymenet if you do a search.
It's the reason why abx can't get to kill the bacteria. It can form a defensive shield for the bacteria in the colony.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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sixgoofykids
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posted
So that's what that stuff is!!! I saw a lot of that when I was getting rid of parasites. I had a lot of GI issues that cleared up with treatment.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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sparkle7
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posted
What kind of treatment were you doing, six? Also, what sort of parasites if you don't mind me asking...?
I don't think I have any intestinal parasites. I never had much of a problem with my intestines from Lyme prior to using the Lightworks... except some constipation from using Welchol while on abx about a year ago.
At first I thought it was the bee venom honey, so I stopped that. Then, I thought I had an intestinal flu. My doctor told me a while back that an intestinal flu usually goes away in a few days.
Then, I found this excellent article about how Lyme can infect the digestive system - so, I got a bit freaked out.
"Bell's Palsy of the Gut" and Other GI Manifestations of Lyme and Associated Diseases
PRACTICAL GASTROENTEROLOGY April 2006 by Virginia T. Sherr, MD
I don't think this is what's happening, though. I have to keep in mind that Dr. W & others feel we can "cure" Lyme with the help of infrared light. If I were on abx & this was happening, I'd think the abx were doing their job.
I've been dealing with alot of stress, lately... so, I have to continue to convince myself that I'm on the right path. I have no idea if this is a cure or if it's just prolonging the agony.
I've been ill for over 10 years & I've gone through all of this "getting worse before getting better" stuff on a number of occasions. I'm going to try to continue to be hopeful.
I guess it's just going to take time. I've only been doing this infrared light thing for a month. I'll keep you posted.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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posted
I do see that Sota now has the new colors for sale. You have to buy both sets of paddles for $250. I wonder what green does.
My chiropractor who does energy testing (and I am not convinced about energy testing, yet), said that green was a good color for me and perhaps I reactly so much to the infrared was that red is my worst color. We tested colors for reducing my seizures over a year ago. Hiker53
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 10184 | From Illinois | Registered: Aug 2004
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sixgoofykids
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posted
Sparkle, I took Humaworm and Enula. I had a large tapeworm, two smaller tapeworms and about 20 roundworms. No wonder I had GI issues! LOL
The Humaworm eliminated the large tape .... the Enula combined with just getting better (making it so it was the wrong environment for worms) helped with the roundworms.
I did not know I had these until I saw them .... I was surprised and it did freak me out.
I don't eat questionable food and I'm very much the perfectionist, so it was this disease that made my immune system weak enough to allow these to take hold in my gut.
I also was treating bartonella, which is known to cause GI issues.
This was all prior to the Lightworks.
I'm still thinking the Lightworks is doing something, too. My daughter who I have always thought might have Lyme but who had heartburn as her only symptom, gets headaches every time she uses it. After several days of using it every other day, she has the worst headache she has ever had.
I think it's like Sparkle and I experienced .... it takes a few times, then a huge herx hits.
I still herx badly when I use it. My other daughter who is a confirmed Lymie and who is in remission (does not herx from meds) herxes from it as well.
Our other two family members who use it never feel bad afterward.
I know this is anecdotal and that pain afterward does not confirm healing, but after using it for a few weeks now, it seems more than coincidental.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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sparkle7
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posted
I'm starting to feel better today. For some reason intestinal pain makes me very anxious.
I took some charcoal as per another thread here & I'm feeling alot better. (4 caps, twice today so far) It seems to have helped alot. I was taking it but I don't think it was enough.
I think it's still good to use the light even though you may be herxing. I'm not sure if the red or infrared is better. The red side seems a bit more mild. You have to do it at your discretion, though. If it's really bad or if you are on abx - it may be too extreme. We all are different!
Thanks for the info, 6. I don't think I have any of those issues. I took ENULA for about 3 months so far & not a big reaction. It does make me purge a bit so I lowered the dosage.
My shoulders are a still a bit achy. I'm going to just continue with it & see what happens next. I'm curious to see if the hormonal/endocrine balancing frequencies will help when I get my period. I've been using them. I get very severe cramps.
I'm not sure about your reactions to color, hiker. I would like to get the additional color paddles when I have some extra money.
I'll post some info about different colors when I get a chance. Some people here have mocked color therapy but this is a little different... LEDs are a whole new animal.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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posted
I agree that IR light can heal. I built my own Near Infrared sauna like Dr Wilson describes in his book on sauna therapy. However; I don't belive that IR light has been proven to kill anything, it has been shown to help heal, but in superficial ways like speeding the healing of burns and helping to repair basal cell carcinomas, these sorts of things.
Why don't you guys put this thing to the test and see what is really going on with Clancy? This is the perfect opportunity to test Dr W's claim that he is free of lyme and coinfections. Get together and chip in for some legitimate tests at Igenix and Fry that will corroborate what Dr W claims.
That old saying, "If it sounds to good to be true," is usually right. People have made the same claims about Rife and ozone therapy. You may indeed get some benefit from them, but they are vary far from a cure.
The Bionic 880 probably would have some benefit for a fairly healthy non infected person, but cell regeneration would be very limited and pretty much futile IMO until the infections have been eliminated, and Infrared LED light has not been proven to do that. That's why detox is extremely important with all of these alternative therapy protocols. The infections are still there producing toxins, and so detox is crucial to maintaining health. But still, it slips away. Sometimes slowly, and sometimes very quickly regardless of continued therapy.
-------------------- You're only a failure when you stop trying. Posts: 945 | From U.S | Registered: Oct 2004
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With all due respect, this LT Works thread makes no such claims. The word "CURE " is not usually thrown around on these thread's. Neither do we make much, if any conversations about the Bionic 880.
The Bionic 880 discussions has it's own thread. I don't want to talk about it on hear, I can't speak for the others on here, but I don't want the same trouble as what that brought.
Oh, and by the way, were not expecting miracles.
If I have mistaken what you mean, then i'm not afraid to apologies.
Posts: 153 | From England | Registered: Jun 2008
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sparkle7
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posted
I don't mind if you don't agree. The tests for Lyme aren't accurate so I don't think anything can be determined either way by using tests.
I'm not doing a study. If someone would like to fund a study - that would be fine with me. I don't have the money for abx, health insurance, or expensive alternative doctors.
I was ill for 10 years before I got any sort of treatment for Lyme. I've seen many doctors, specialists, etc. The abx didn't help after using them for 8 months. Not at all... no little improvement, nothing.
At this point, all the doctors advice didn't seem to do anything to help me - so, I don't feel I have anything to lose.
If anything - the only thing that has helped is the infrared light at 880 nm. It has produced a strong herx for me - more so than any abx I've taken.
I'm not angry at anyone who doesn't think this will work. It's fine with me if you disagree. The LightWorks is different than an infrared sauna. The light is brighter & more focused and there are a number of other differences.
Several people who post messages here have reported herxes from using the infrared light. None of us know what the long term outcome is from the various treatments for Lyme.
I believe that the abx may put the Lyme into remission but the bacteria may still linger in the body. It is not know how long they may linger in the body for since most of the ways to test are so inaccurate. There are also many disadvantages & side effects of using abx.
I believe that abx are great if you catch the Lyme early - but if you've had it for 10 years untreated, it's a different story.
I have not seen Dr. W nor do I have a Bionic 880. I am the guinea pig for this experiment with the LightWorks. I don't sell anything nor make a profit from this. I am just looking for an alternative way to get well.
If people gain anything from my experience - that would be great. If they think it's a joke, that's OK, too.
I've posted numerous studies about the effects of various kinds of light here. Do the research on your own & decide what you'd like to do for yourself.
I do not rule out drugs, herbs, supplements... it's just that they have been mostly ineffective for me. For some reason this infrared light seems to be doing something. Whether it's a cure... I just don't know. I am going to continue to see what will come of it.
If all of this can help others out there, then it will be worth it. It's just too soon to tell. I don't have any desire to disturb Clancy about what happened. If they wanted us to know, they would post again.
Each person is different. What may or may not work for one person doesn't really prove anything.
I wish for good luck to everyone - no matter what treatments you decide to pursue. We all have to do the research & make a decision what to do. It's an individual choice.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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sixgoofykids
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posted
From what Clancy has said, her husband has other non-Lyme problems, so I think we will know if she is kind enough to post once he gets those taken care of. I won't blame her if she doesn't come back.
That is why I am going to Germany. It's not a huge sacrifice for me and Lyme and co's are my primary problem. I've chelated metals, cleaned out parasites, etc, and the Lyme is still there.
I herx more from the infrared light than from my meds. (I pulse some meds because of the herx and feel worse on light days than on med days).
What is very interesting to me is that my daughter in remission herxes on the light. It's reaching places abx didn't.
As Sparkle said, we're experimenting with the Lightworks to see what it does, and so far we're surprised at how much it does.
I'm going to have to Google on basal cell carcinomas, I didn't know that. My husband is using it on one of his.
There is an LED and Parkinson's study Marnie, posted. I think infrared light looks very promising, beyond the detoxing of the sauna, which is still good in its own right (I use a far infrared one).
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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oxygenbabe
Frequent Contributor (1K+ posts)
Member # 5831
posted
Just a few points to keep in mind:
1) You were not seeing biofilms. You were seeing mucus. The intestinal lining can generate mucus. Maybe you were killing stuff, and the lining was producing more mucus to help you shed it. Who knows.
2) You don't know if its a herx. The light for instance could stimulate inflammatory cytokines that make you feel flu-ish. Maybe it's a herx maybe not but I think its a misused term. Sometimes people use it for abx side effects. Therefore, if people would just report their *symptoms* when they use it, it would be so helpful.
Thanks! I'm going to try mine on my knee this weekend. I injured it about 2 months ago and it doesn't seem to be recovering well.
Posts: 2276 | From united states | Registered: Jun 2004
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
Oxygenbabe, my symptoms are identical to those that the Zith causes that my LLMD determined were herxes.
I get shoulder/back/neck pain on the left side only, extreme fatigue, dizziness. The pain is very bad and requires painkillers like I do with the zith.
My daughter gets headaches from it ... headaches were her primary Lyme symptom.
I also get knee pain like I do from Lyme when I use it on the back of my knee on a scar.
I pulse Zith, and I get the same symptoms from either the zith or the lighworks.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
I agree that the term "herxheimer" is kind of vague. I think it was originally used in regards to the reaction of treating syphilis.
I think they use the term "healing crisis" for other seemingly negative effects of getting rid of toxins, bacteria, yeast, etc. these days.
Initially, I felt much better from using the infrared light. This lasted about 2 weeks. Alot less pain... I was able to greatly reduce taking pain medication. Then, I got a big herx... increased pain & intestinal pain (which I never had before from Lyme).
I really thought it was from taking bee venom honey. Then, I thought I had a stomach virus. As I stopped all herbs & supplements - I discovered it was from the light.
I started taking alot of toxin absorbers like psylium seeds, clay, etc. Slime or mucus is probably what biofilms are. I don't know if the biofilm I saw in the toilet was Lyme related or something else. It wasn't something I've seen very often in the toilet... (Sorry, I don't mean to be gross but I'm just trying to explain.)
Yesterday, I took an increased amount to charcoal pills & my intestinal issues are much better today. I think the charcoal is really helpful.
I'm still pretty achy in my back & shoulders but I still have not had to use much pain meds. I think I took something over that last 2 weeks due to the herx but I've really been able to reduce the amount.
I was doing the full Cowden for about 3 months. I stopped but I would like to continue it when I'm not feeling such a strong reaction to the light. I will also continue with the bee venom honey when I can. I think it was definitely working.
I just don't feel like I need to take many supplements right now since the light has effected me so strongly. This "herx" was very much more potent than any I had while on abx.
I don't know if herxing proves anything but it seems that this is a pretty basic way for people to tell if something is going on in regards to Lyme since the tests are inadequate.
I'm continuing to use the LightWorks. I used it this morning since I was starting to feel some pre-menstrual cramps happening. After 15 minutes of use - no more cramps...
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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posted
Oxgenbabe. You said, "" The light could stimulate inflammatory cytokines that make you flu- ish, maybe a herx, maybe not. ""
When I have a flare up, ( active spiros ) herx include, flu, pain, fatigue, and much inflammation, more skin sensitivity, and feel very ill.
No activity, most of above subside, especially INFLAMMATION.
All this to me is part of, herx, killing, toxins.
If I respond to the LT works, like the above, then I will think the same as Six and Sparkle.
Others that have not got Lyme, won't get that reaction, my daughter, and spouse are going to try it , ( not got Lyme ) so should be interesting, will keep you posted, lets see what happens.
My LT wrks should be here next week.
Posts: 153 | From England | Registered: Jun 2008
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oxygenbabe
Frequent Contributor (1K+ posts)
Member # 5831
posted
Okay folks, then think of it as indulging 02 (me). Could you report all your symptoms when you use the light, whether or not you classify it as herx or not? It would help me anyway. Thanks!
Posts: 2276 | From united states | Registered: Jun 2004
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
My boyfriend uses it & does not have Lyme. He doesn't have any of the symptoms that I have gotten from using it.
I think he uses it almost every day. He hasn't had anything that I would consider a herx. He says it makes him feel better. He has other health issues but not Lyme.
From what I see - only the people with Lyme seem to be responding by having a herx or healing crisis/reaction.
You can also check on the Yahoo group for SOTA LightWorks.
PS - I also noticed that I have had increased thirst since using this device. I think 6goofy mentioned this, too.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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posted
Is this inflammatory cascade, your own body's response, going to the site ( like when you have wound , cut, injury ) to mop up infection death. Perhaps something like WBC activity. ?????
Posts: 153 | From England | Registered: Jun 2008
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posted
Sparkle. Forgot to say, about the thirst you mention.
When these flare ups happen, I am constantly thirsty, to the point of feeling constantly dehydrated all the time, drinking no matter how much, never seems to take away the thirst. Maybe part of the herx, not the LT wrks. ??
Posts: 153 | From England | Registered: Jun 2008
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
I didn't really notice it prior to using the LightWorks.
Having unquenchable thirst can be a signs of diabetes, I think... not to worry you.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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