LymeNet Flash: worsening of symptoms with any sort of supplement

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»	LymeNet Flash » Questions and Discussion » Medical Questions » worsening of symptoms with any sort of supplement - advice plz!!!

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Topic: worsening of symptoms with any sort of supplement - advice plz!!!

sans0002
Member
Member # 16409

posted

hey everyone

it's two weeks till my first LLMD appointment so as of right now i'm just trying to find things to do in the mean time and to get all my questions sorted out beforehand so i know what to ask him when i see him

but im having this problems with supplements that ive had for the past couple years and its getting really annoying

any supplement i seem to take whether it be vitamin D, biotin, olive leaf extract etc... anything ... seems to within a few hours seems to exacerbate my symptoms completely

like i'll immediately feel all my skin, eyes, mucous membranes dry up even more, get more fatigued and depressed, and my GERD gets worse etc...

anyone else like this or was like this at any point and just had to wait to start proper treatment and then fight through the bad point to get it to slowly get better??

thanks everyone

--------------------
Age: 22 - Symptomatic Since age 19

Igenex IgM Positive: 18 +, 31 +++, 39 IND, 41 +, 45 +, 58 +, 66 +, 83-93 ++
Igenex IgG Positive: 31 +, 41 +

First LLMD appt Oct 3rd to start treatment!
Currently on 500mg Cefuroxime twice a day

Posts: 52 | From Windsor, ON | Registered: Jul 2008 | IP: Logged |

TerryK
Frequent Contributor (5K+ posts)
Member # 8552

posted

Have you tried cutting your doses down? I found that for a time I was hypersensitive to supplements and meds in general and required much less than normal to get results.

Hope you feel better soon.

Terry

Posts: 6286 | From Oregon | Registered: Jan 2006 | IP: Logged |

BJK
LymeNet Contributor
Member # 13251

posted

Hi

I was just reading your post and looking at the length of time you've been ill.

Im not a doctor...so this is just a thought.

often when people start treatment they experience whats known as a herx reaction (bacteria dying off release neuro toxins)and feel more sick at first and some times in cycles like clockwork every few weeks.

I know you havent had treatment yet, but I suppose if your giving something to you body that boosts your immune system at all, it could be bacteria die off.

Anyone else have thoughts on this?

IF...big if, it were me I'd wait out the 2 weeks and get your LLMD's treatment started and thier advice on supplements

Lyme being immuno-supressive can cause all sorts of issues, and in the nervous system the possible reactions/symptoms are nearly endless, as it affects us all differently.

Glad your getting into treatment...all the best

BJK

--------------------
BJK

Nothing I write here is medical advice...I'm just another lymie sharing how this disease has affected me personally

Posts: 175 | From Central Maine | Registered: Sep 2007 | IP: Logged |

Al
LymeNet Contributor
Member # 9420

posted

I have the same problem;
vitamins , medications, minerals, etc.
within a few hours.

successful treatment should resolve this.

TerryK has the right idea , (Starting very low doses)

Posts: 789 | From CT, | Registered: Jun 2006 | IP: Logged |

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