posted
I went to my holistic doc last night and I am Lyme free. i still have to finish cleaning out the liver anddo heavy metals and then I am finished .Yah Posts: 72 | From Southeastern PA | Registered: Aug 2008
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Dawnee
Unregistered
posted
WOW!!! What was your treatment and for how long? How long had you had LD???
richedie
Frequent Contributor (1K+ posts)
Member # 14689
posted
Can you give us some details on how long, when, treatment? What kind of doc? I have been looking for a 'good' holistic doc near Philly but have had trouble.
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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I know we are all different but maybe it could help some of us
Thanks, and have a healthy happy day!!!
-------------------- "You'll be surprised to know how far you can go from the point you thought it was the end" Posts: 946 | From Massachusetts | Registered: Apr 2008
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SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
I guess the question is by what means did the doctor decide you were Lyme free? Does that also mean co-infection free? In my experience, people that have had Lyme for over a month or so generally go into more of a maintenance mode and though they may no longer be sick, the bugs are not entirely gone.
I would also be interested in hearing more about the treatment and the way the conclusion was drawn.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
candlequeen,
Yes, I would also be interested in hearing about your treatment.
Were you diagnosed early on and then treated right away?
Were co-infections present?
Beyond the normal support supplements, what methods were used to address the spirochete - in the various forms. i.e. - what particularly was used for the cyst form?
Was you total treatment for the lyme itself several months?
I am curious, too, how any doctor can say there is no lyme. There are no lab tests to determine that, so I assume you have been feeling good for a couple of months now, and that is part of the equation.
Be cautious, though, and pace yourself, as these are still uncharted waters and your body may have a while to go until full strength.
Very exciting to hear of your progress. It would be great to share with us how you got there. We are all hungry for knowledge.
posted
Yes, please share every detail about everything!
We need some encouragement.
I just dropped my Lyme doctor. Running out of money, patience, and sick and tired of living in so much pain.
What were your symptoms? How long in treatment? What was your treatment? How long did you have Lyme? Any co-infections? You know the drill.
Congrats! I get so happy to hear that people make it out of this hell hole of a disease.
-------------------- ~*~Lyme POW~*~
I will escape. Posts: 100 | From n/a | Registered: Oct 2008
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lou4656
Frequent Contributor (1K+ posts)
Member # 10300
posted
Yes, it is possible to get out of the hell hole. I have crawled out.
Bullseye rash 2000. Diagnosed six years later on 12/2006. No co-infections. My primary antibiotic was minocycline, taken for one year. It worked well for me.
My only lingering symptom seems to be that my energy level is not as good as it was prior to getting sick. And the reason that my energy may not be coming back to the level that it once did is that I am back to working two jobs. So . . . no complaining here.
I was cut loose by my LLMD last December, and so far so good. So, it does happen. People get well and get on with their lives.
I also used meditation and meditative healing techniques as part of my treatment. It was more beneficial than the antibiotics, in my opinion.
Hang in there. Believe you will get well.
-------------------- LouLou Posts: 1276 | From maryland | Registered: Oct 2006
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posted
She does address all the symptoms of Lyme coinfections etc. She uses herbs and makes them out of whta is wrong like getting vaacinated.She addressed the meningitis, Lyme in 4 levels, coinfections syphil, mycoplasma etc, yeast, fungus,parasites, Liver and heavy metals. I still have to finish liver and heavy metals, manesium for the cyts, something for Lyme DNA and probably others i am forgetting. I don't know how long i had it at least 2 years. I never had a bull's eye and had been misdiagnosed by other doctors. She uses a vega machine for diagnoses.
Posts: 72 | From Southeastern PA | Registered: Aug 2008
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posted
There are several things used in each bottle it would take forever to list plus I don't have all the bottles anymore only what I am currenly using.
Posts: 72 | From Southeastern PA | Registered: Aug 2008
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posted
A vaccine given to children is whta you are trying to keep from getting. Chicken pox is in the chicken pox vaccine etc. I don't know how else to explain, but your body fights it and builds up an immunity.
Posts: 72 | From Southeastern PA | Registered: Aug 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
I'm not clear on what the vaccine avoidance has to do with your treatment.
Did you get vaccines and then have bad reactions that your holistic doctor had to correct? Sounds like that is the case - as you are working on heavy metals.
===========
From the time you began treatment to now, about how long would that be. Is that the 2 years you mentioned?
Or were you ill for 2 years before finding treatment?
Did you have specific stuff for the cyst form?
What other modalities might you have also used - such as infrared sauna, massage, rife ??
I know you say you don't have the ingredients lists any longer, but if you might ask what, specifically, was used as anti-spirochetal, that would be very helpful for many here.
thanks.
=============
Some links for those who may be interested in this area:
A synergistic formula of 6 rainforest botanicals which are traditionally used in South America for syphilis (a type of spirochete bacteria) and other bacterial conditions.* This product was featured in an article by the Health Sciences Institute (see page 4).
Third-Party Published Research* - links to research articles
===========
Spiro Kete from Kroeger herbs is also very good. Sorry, no I don't have the link. I have used this before. Very strong, for sure.
I spoke with a LL ND in Missouri who had several patients who did very well with this as well as with a special kind of lithium (orotate?).
===========
And a search here can be done for discussion threads for "Bionic 880" - the infrared photon treatment that some find helpful - being done in Germany.
posted
I was trying to use the vaccine senero to explain but i guess it didn't work. I don't know how else to explain it. Yes i had co infections. I said i had syphil and mycoplasma. They are both co infections.
Posts: 72 | From Southeastern PA | Registered: Aug 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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Are you saying that your treatment was homeopathy ?
You did say your doctor used herbs and that is different from homeopathy but then the virus explanation has me wondering if you had doses of homeopathic remedies in anticipation of a certain response from your immune system.
djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
no one is ever cured, they go into remission.
can you PM the info of the person you saw for your treatment or post it here? i am interested in looking into this practicioner
i am glad you are symptom free, but if a dr declares you are cured it may speak to their own lack of education regarding these illnesses.
you were sick for 2 yrs? disabled 2 yrs or just sick?
for those who are not severely symptomatic, homeopothy may work, which it seems it did in your case, but i too am curious as to what exactly was used to get you well.
it would be helpful to know what was in those "herbs" etc
derek
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
posted
She uses herbs she makes up and somesuppleents or whatever term you want to use. I don't know how else to explain all I know is what she does works. No I am not in remission I am Lyme free.
Posts: 72 | From Southeastern PA | Registered: Aug 2008
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posted
If you don't believe me call her yourself. She is not a quack. She is extremely educated on Lyme. If you actually sat down and spoke with her you would know that. You shouldn't judge people unless you know them.
Posts: 72 | From Southeastern PA | Registered: Aug 2008
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-------------------- Please consult your LLMD before making any changes to your treatment regimen. Posts: 641 | From NJ, USA | Registered: Oct 2001
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-------------------- Please consult your LLMD before making any changes to your treatment regimen. Posts: 641 | From NJ, USA | Registered: Oct 2001
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bettyg
Unregistered
posted
candle,
congrats to you! we do love success stories, and we are all interested in read how you were helped by the questions above.
yes, we all want to go into remission; we are jealous of you, but wish you the best life has to offer you!
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
Candle, that is wonderful.
**************
[QUOTE]no one is ever cured, they go into remission. [QUOTE]
In my opinion, that is an incorrect assumption. I am cured and lymefree - no lyme bugs anywhere - eradicated - gone. So is my husband.
Yes, absolutely, it can be done. It can, however, never be done if you don't believe in this ever happening. Maybe we should all rethink this attitude and belief. It is one of the worst habits on Lymenet and people seem to live their life around that belief. So wrong.
Reinfections, yes, they happen very quickly, especially if a person is still and again vulnerable because of lifestyle and exposure.
Our body follows our brain - is what my doctor used to say. If you think it long enough, it will come to pass. The good or the bad. Just my philosophy, but it seems to be true.
Take care.
Posts: 9834 | From Washington State | Registered: Oct 2000
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Some of us were born with this having gone 4 decades before getting diagnosed, or got it in childhood waiting 3 decades for proper diagnosis.
Some of us had it a decade before being diagnosed.
Some of us a few years...and etc.
I think all of this makes a difference in process and prognosis.
Each of us have certain genetic predispositions like potential neurodegenerative, etc. DNA
That meets with the How many potential strains of spirochette and co-infection?
We all respond to antibiotics depending on sensitivity and allergy tolerance.
There are millions of factors.
With regard to the herbal remedies, if they are Chinese herbs being used, this is a highly individual thing. I am currently using accupuncture and Chinese herbs (after two years of antibiotics) and wouldn't be able to share my formulas because they are unique to me.
Homeopathy may be a little more generalized.
The main and most important thing to remember, in my opinion, is that it is/can be dangerous to share a remedy as THE REMEDY for all without knowing a person's individual make up, history, current circumstances. It would be much more responsible to share how it works for "you".
Candle, congrats on your healing! I hope we all get there.
djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
sorry folks, gigi included, i stand by my statement that no one is ever 100% cured.
the proof is in the pudding. you might be 100% A-sympomatic in which case it wouldnt really matter but if someone were to biopsy your brain and other tissues once deceased i can pretty much guarantee you what they would find. little buggers!
again, if one is 100% symptom free, that is awesome and yes, IMO, is very attainable. i am on this road as we speak. but as far as not having the infections any longer and if you become symptomatic again you were "reinfected" i just dont buy it. the evidence for these statments are not currently available.
there is however, data that suggests that Bb as well as numerous other Cos that these infection/s are next to impossible to eradicate (ie cure) but CAN be put into remission.
again, how did your dr/s measure that you are lyme "free" or cured and there are NO bugs in your body now? (gigi, candle?)
it may be that you both feel so good that you cannot imagine that any active infection still resides in your bodies, but, again, the evidence points otherwise and i would suggest that stating that one is cured is more of the incorrect assumption than saying that lyme cannot be cured.
i guess ill have to wait until i get my photon treatment for dr w to tell me i am lyme free as well, whether or not that will prove to be true remains to be seen.
i can tell myself i am lyme free until the cows come home but i do not believe that will make it so. positive thinking and a good state of mind are one thing, thinking away disease process is another.
again, dont take this the wrong way gigi, candle, and others who say they are "cured". i simply am looking from a researcher's point of view and dont see the information readily availble to support these claims.
also, candle, now that you are sufficiently aggitated with me and everyone else, can you please share your dr's info?
we ARE happy you are well, but like others have stated, we want to know:
How long you had it before treatment? What were your symptoms? how long were you treated? What you were treated with?
if you could share this info with us it would greatly aid us all. please please PM the drs info as well, i would love to speak to this dr to compare his/her methods to what i am already doing.
perhaps this dr really is onto something since homeopothy is really not used so much with lyme and TBDs and could prove to help others on theirt road/s to recovery.
thanks again, and thanks for being understanding both gigi and candle of my rants
cheers
derek
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
posted
Derek why should i send you info on her you won't believe what she has to say anyway. You have already made your mind up that noone is cured so why should you waste her time calling her. She is ther to help people and if you don't believe she can then don't even waste her time. I have PM others with her info that are truly interested. I will not post her info in this format only PM.
Posts: 72 | From Southeastern PA | Registered: Aug 2008
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
When moving into the alternative arena, Homeopathy is used in Lyme and for everything that comes with Lyme. It certainly plays the major role in the Bionic880 treatments. It now plays a role in the treatment after Lyme is gone from my husband, but other irritants/intruders still need attention. I didn't realize how powerful homeopathics are until I learned the Biotensor testing.
But first you have got to believe that physics plays a role and often works better than biochemistry. Sadly, it is not respected much in this country. Big Pharma is extremely powerful. Homeopathy is also being attacked in Europe now. But it has survived over a hundred years and it will survive all the naysayers, I am certain.
Take care.
Posts: 9834 | From Washington State | Registered: Oct 2000
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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candlequeen,
Yes, most of us are interested in how you arrived at your success.
We are hungry for details so that we may see if they can apply to us, as B and M stated so well.
Around the corner, I think it's also important to realize that some want to be sure you are covering all the bases and that you had a good treatment.
There are some people out there making false promises . . . and others who are working very hard to find success for their patients such as yourself.
So, sometimes, posters may be more protective than doubting. However, I do think it's reasonable to question and to caution all treatments and all methods so that success has the best chance possible. It's hard to get the whole picture in a few posts and, for further posters who may not have a good protocol - or a complete one. So, dialogue around both the science and the energetic aspects is important.
Again, great to hear that you are doing so very well.
=====
Oh, homeopathy can be administered in tiny, white pellets - usually 2-3 under the tongue to melt - or as drops in saline solution or alcohol.
Homeopathy can go along with herbal capsules (usually separated by a couple of hours).
It sounds like your treatment was individualized (as it best), however if there were specific formulas of herbs or "remedies (as they are called) of homeopathics that are specific to any function of any tick-borne infection, that is what we are hungry to know.
Knowing how long before you got treatment, too, can be helpful. People are looking for hope.
For instance, bidens is an herb that has an anti-malarial property. Many here who have trouble tolerating the babesia treatments (which often mirror malaria tx). So, just as an example, if you had a formula with bidens in it and you did well, that would be very valuable to know.
Other specifics, too, including follow-up care, etc.
It's really asking a lot to know your entire protocol. As you can see, while many here have done the best they can with what they have and also thought good, healing, happy thoughts, sometimes that is not enough. Whatever else you have done to see success does spark our interest.
However, as mindset and what we expose ourselves to is so important, I can see how you might just want to walk away from this - even away from your computer and live your healthy life.
Autumn, too, would be such a wonderful time to be feeling good. If you have it in you to share details, great. If not, do enjoy the colors of life.
posted
I have already given some info. I had lyme around 2 yrs give or take I had no bull's eye. I had also in this thread mentioned some of the coinfections etc. You will have to look back and yes her treatment is specific to what you need. Everyone is a little different. I started treatment with her in July this year. As far as the herbs. I used liquids in bottles for somethings, pellets for others and some supplements for others. This is all the info I can give you. I can't tell you what is in the herbals. if you are truly interested you need to talk to her about it.
Posts: 72 | From Southeastern PA | Registered: Aug 2008
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djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
i would like to talk to her about what she uses, thats all.
its not that i personally think one cannot be cured, its literature, proven documentation.
your lack of knowledge of the illness and what is used to treat it speaks volumes about how sick you are/were as well as how far you have gone to get well.
if you wish to hide this info from me or others, that is your perogative...
sadly this is seen all too much when it comes to lyme.
we are here to share info and learn from one another.
derek
ps- the "liquids" are tinctures with remedies most likely and your "pellets" are homeopathic remedies as well...
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
posted
No Derek I just can't tolerate your know it all attitude as i am sure i am not the only one.
Posts: 72 | From Southeastern PA | Registered: Aug 2008
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posted
Did you ever list your symptoms? I think we wanted to know because some of us are neurological (like me), while others might be arthritic.
Some of us want to pin point the people with the same or similar symptoms if they've had success - in hopes (and it gives us hope, too!) that we too might someday get better.
Would you mind posting your symptoms? If you did and I missed it, I'm sorry. I believe that you are healed and I am SO HAPPY for you and thank you so much for sharing your story.
-------------------- ~*~Lyme POW~*~
I will escape. Posts: 100 | From n/a | Registered: Oct 2008
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djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
so it seems your real motive/s have been exposed and your real reason/s for concealing this dr's info is that you feel like my statements are "know it all"?
seriously, are we in high school? we come here to gather and share information about an illness that plaques us.
i have been here for years, you on the other hand have not. i do not appreciate being insulted and would ask you to remove your condescending remark/s or i will be forced to contact the board admin.
im sorry if you feel as if i am coming off as a know it all but sadly what i have to say is the truth. i come here every day to help people. do you? i spent countless hours posting info that other people can use as a resource as well as take much from other's postings. do you? youve posted a whopping 68 times, have been here for 2 or 3 months, and are cured! please. waste your time and drop your insults elsewhere.
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
posted
Please lets not have another "insulting one another" message thread.
quote:Derek said: also, candle, now that you are sufficiently aggitated with me and everyone else, can you please share your dr's info?
Derek, perhaps you don't realize that when you say something like you did above, that it is a very inflammatory statement which will put people on the defensive and they will not want to divulge anything to you.
Surely, this is not what you were meaning to do???
Candle: Just wanted to add that I'm so happy you are feeling well and thank you for having the courage and the generosity to share your experience. Please know that many here appreciate this.
Take care,
Looking
Posts: 590 | From Canada | Registered: Oct 2007
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djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
my intent was and is not to annoy people. i am trying to learn from this person's experience and clarify any mis information.
at this point i think its a moot issue and better left alone.
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
posted
As a side note, I understand that the Lyme antibodies can persist for years despite no active symptoms. So how can one be reasonably certain that they are not infected still?
My doc was saying that he doesn't know how to prove one being Lyme-free after treatment because of the persistence of antibodies. It seems that we can run various tests for other diseases and be pretty sure that one is cured or not, but not so with Lymes. Sad state of affairs.
If anyone knows how one would prove being cured, I'd surely love to hear about it. My doc "thinks" I'm cured, but we can't prove it.
Posts: 131 | From PA | Registered: Aug 2007
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djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
exactly. you cant. its scientifically impossible.
if a dr is telling you youre cured and lyme free i would be concerned about the legitimacy of their knowledge of the illness.
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
posted
i'm lyme free. co-infections too, it certainly can happen. never doubt it.
i was with at least borellia, neuroligically impacted severely, had pcr positive lyme, m.fermentans, bartonella and babesia, plus four strains of systemic candida. i was disabled for 2 years. i got well. first year and a half, loads of iv and oral abx's, following years intensive detox, extreme alternative remedies, immune system work, followed by by classic homeopathy. i have no time to write it all out.. but all symptoms are gone, and even my immune complexes and igm immunoglobulins, which were chronically sub-normal (similar to aides patients) - are fine again. this is something my traditional LLMD has never seen happen (to his knowledge).
since my son is so ill, i am very, very, very run-down, so prone to relapse if re-infected.. and just plain run over. i have to be careful, but cannot. here's hoping i don't get bit or run down my body with poor nutrition and lack of general health maintainance. it is what it is.
i cannot sit and write out all that i did specifically, because my son is very UN-well, as bad as it gets, neuro-infectious teen.
he was quite well for sometime doing what i did... then got re-infected, allot of toxins, ect, ect...
and now he is quite compromised again.
i just wanted to chime in here and underscore that one can absolutely become lyme free. don't ever, ever, ever believe otherwise. it takes a hell of allot of work if you are very ill, tho. no doubt.
mo
Posts: 8337 | From the other shore | Registered: Jul 2002
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djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
no, you are A symptomatic which means you still have the bugs on you they are just not active right now. there is a difference. not that it matters but i just dont get why this is so hard for everyone to grasp.
hense relapsing= people who got the bug into remission ("cured" ) and then it becomes active again.
no one can completely remove all bugs from their bodies with the therapies currenty available.
they certainly can become Asymptomatic as you did and that is just as well IMO
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
posted
I have been treated by 2 LLMDs in my short Lyme time because I was very scared and needed many opinions.
LLMD #1 said that it is curable and he has CURED many people but not others. Said that some people respond better to some antibiotics than others and you must be prepared to try many high doses of antibiotics for years, if you want to truly be free of Lyme disease. He also said that the cyst form must be killed.
LLMD #2 told me that if you leave it untreated for over a month, it is usually too late to kick it out altogether and you just treat to be symptom free for periods of time. He told me that I personally was in the grey area but would likely be cured completely and able to get run down and never have it resurface....so long as I treated thoroughly.
Posts: 410 | From Victoria BC, Canada | Registered: Jul 2008
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posted
i hear what you are saying, derek, and i can only speak for me.. and i am always aware and a bit in fear of whether what you say is true.
however, i am as certain as can be that if i had lyme in my system, a-symptomatic, with the stress and horrible strain my body has been under this past year, i would have to assume that bb would be ravaging me again now if it were there in hiding, in any form.
i don't feel any tbd symptoms. i am, however, up ****'s creek should a fall female deer tick find me now.... a distinct possibility where i live.
but alas, because of my son's situation i can't even get a good shower, much less good nutrition and all it takes to keep up defenses.
here's hoping no infection comes crawling my way this month....
best, m
-------------------- life shrinks and expands in proportion to one's courage -- anais nin Posts: 8337 | From the other shore | Registered: Jul 2002
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adamm
Unregistered
posted
Clarification:
Obviously, it's not been proven Lyme can't be cured, but it simply
hasn't been demonstrated scientifically that it can be. Given the state
of testing and the know ability of Lyme to recrudesce after even
decades of latency, a doctor simply cannot safely pronounce a
djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
mo the abscence of proof in this case is proof.
i am glad your stress did not cause you a flare, you are in remission. remission can be attained and lived with for the rest of your life.
if you are following some healthy guidelines which i am sure you are after what youve been through than it is not suprising lyme isnt back.
there is no evidence available to suggest that Bb can be eradicated. there are many clinical stuides which include drowning Bb in rocephin, other abx, and other therapies such as rife, hbot, etc etc where the bugs still remain even after.
since there is no cure, there can IMO be no complete removal of them.
think of it like this...
you were fine before you became sick. now i know this sounds dumb but Bb and CO were in your body most likely for some time BEFORE you became symptomatic which suggest it was dormant then, became active, you treated and beat it back into dormancy, and now its remission.
those buggers are still in there, i guarantee it.
you feel no symptoms hence you assume a cure.
i hope for your sake you are right, but if i were you id settle for Asymptomatic status for the rest of your life.
i will try to dig up some studies done on Bb such as the ceftriaxone one but again, they are not utterly conclusive.
when i am dead and gone, i seriously am going to volunteer my cadaver to be dissected for the sole purpose of lyme research and spesifically to identify whether live spirochetes and other infections can be identified in my body.
since i am now at 50-60% functionality, it is safe to say the buggers are still active.
once i acheive remission which i will, and then live the rest of my life, it will be interesting to see if they can find the buggers anywhere in my body. they like the noggin more than anything so im guessing theyd be there.
not trying to argue w you either, just my opnion.
youll be hard pressed to find many on LN and many veterans that would go with the notion that lyme is curable. remission "able" yes, curable, no.
enjoy the asymptomatic status, its the best weve got
cheers and further healing to you derek
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
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