posted
Yes, I do crave sweets. Is there a test for finding out if you have yeast overload?
I have not been tested for Co-infections yet. I had read that IGeneX was best just for the lyme test and use another lab for testing for co-infections.
I have stiff neck, fatigue, muscle pain that travels around my body, stiff swollen painful joints that seem to travel around also,
my feet hurt esp. in the morning, backache, muscle cramps, poor concentration, attention light sensitivity sometimes, dental pain
insomnia
ugggh
-------------------- IGM Result Positive CDC/NYS Result Positive
**31 kDa IND **39 kDa IND **41 kDa ++ Posts: 27 | From middle of nowhere | Registered: Aug 2008
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
You have lyme. sorry but you need to go to newbie links and get Dr Bs reconded stuff for treating Lyme how long have you felt bad? Did you see a tick? Have a Bite have a rash? How long ago etc. If your Docs not a LLMD but has access to the web he really needs too get hooked up with ILADS Which heres there link http://www.ilads.org/ They have treatment guidlines here
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
posted
I have been to the newbie site and printed out Dr. B's pages. I have also printed out Dr. C's info and read it 2 times and starting to read again, as not alot sticks in the swiss cheese brain.
Yes, i have pulled ticks off of myself, my dogs, my horses. I live in the country and spend much of my time outside in the pastures or woods.
Many of the ticks have been on the back of my neck, or on my back so I don't know there could have been a rash that I did not see.
Not sure how long about symptoms as I do alot of physical work, so often would attribute neck sore, hands swollen, joints aching to age and too much hard labor.
I know for sure I have not felt well for a while.
I am concerned about starting to take the antibiotic doxy and just increasing my symptoms when it is prescribed at such a low dose.
So I have not taken any of my Rx yet. Should I take the antibio that has been Rx'd or wait to get a better option from another Dr. or get my own to read the literature....
dazed and confused in a non lyme state Illinois
-------------------- IGM Result Positive CDC/NYS Result Positive
**31 kDa IND **39 kDa IND **41 kDa ++ Posts: 27 | From middle of nowhere | Registered: Aug 2008
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adamm
Unregistered
posted
Whoa, a CDC+!! Getting one of those early on is pretty much the Lyme equivalent of winning the lottery.
There's plenty of Lyme in IL, just no LLMD's (for the truth about the disease, check out Lymeinfo.net and lymecryme.com_) I'll send you the info of some in MN/WI
I'm assuming that this is a new infection...
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gemofnj
Frequent Contributor (1K+ posts)
Member # 15551
posted
Liz,
Good that you have actually read some of the publications given on this site. More important at least your doctor who is not an LLMD put you on doxy for a month.
However, it should be a minimum of 400 mg a day for one month, unless he said he was ramping up.
Also, do read the instructions that came with doxy. Take with FOOD, and do not take with milk products and stay out of the sun while on doxy.
DO NOT lay day within 1/2 hour of taking doxy or it can destroy your esophogus and stomach lining quickly!!
If your doctor did not recommend already, You should be also taking a high culture / high strain REFRIGERATED probiotic, 2 hours away from the abx, to put back all the good bacteria doxy WILL DESTROY. Also take it at nite before bed.
Do a search for really good ones here under probiotics. HIGH STRAIN is important. I personally use 3-4 types of refrigerated high strain probiotics during the day.
If you think you have yeast, DO search Yeast up at the top. Antifungals, preferably herbal ones, are the only thing that will KILL yeast.
Low Carb Diet, Lots of high strain probiotics, Strong Antifungals are a MUST.
There are many good brands like Fungal Defense, Oregamax, Olive Leaf Extract, Candicyn, etc.
Yeast starts on the tongue, so brush your tongue, rinse with an antiseptic mouthwash like Listerine, and finally dip your toothbrush in bleach to kill the yeast. You can reinfect yourself because it can live on your toothbrush.
Good luck in finding an LLMD. Posts: 1127 | From atlantic city, nj | Registered: May 2008
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**31 kDa IND **39 kDa IND **41 kDa ++ Posts: 27 | From middle of nowhere | Registered: Aug 2008
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gemofnj
Frequent Contributor (1K+ posts)
Member # 15551
posted
Liz,
Can you look into treating your yard? Ticks hate deet, although it is contraversial.
I guess you can have the animals tested, but they should be on flea and tick stuff, right?
Posts: 1127 | From atlantic city, nj | Registered: May 2008
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posted
Yes, the dogs are on flea/tick meds but still have ticks. Have tried Advantix, Frontline plus and Biospot.
There are not tick meds for horses, I do spray them with topicals although I still pick ticks off of all 3 of them.
I live on 75 acres of grass pastures and hay fields. Am surrounded on all sides by dense wooded areas. On 3 sides is a large river. Then the 2 ponds in front of the house.... soooo
We have raccoons, deer, opossum, turkey, fox, coyotes all passing thru on a continuous basis so spraying the yard wouldn't do much for us here.
I live in tick heaven. Thank god it is starting to get cold and hopefully soon we will have a hard freeze.
Ok, I took my first doxy 100mg with food no dairy and lots of water. I wont lay down.
I will try to get this MD to up the dose and see if he will help. If not I will contact the nearest bestest LLMD.
He is a young MD maybe he will read some of the stuff I am printing out??? But then again he is an MD
-------------------- IGM Result Positive CDC/NYS Result Positive
posted
I'm new at this....learning, as I help my "lyme" mom out thru this HELL. But I can offer this personal experience. Her FP (family practice) is VERY open to anything I have to offer regarding treatment.
He is humble and admits to not being knowledgable about Lyme and has even given me his email address for any info I may have in the interim between appts.
I AM SO GRATEFUL TO HIM, considering the posts I see about MD's typically not being cooperative. THANK GOD he IS open and willing to work with us.
My point is -- print out ANY and ALL credible info about treatment (dosage & duration, etc. as well as obscure symptoms) and take it with you and discuss it as though YOU are the one who knows what YOU need. Take charge !!!
Be prepared. Document prior symptoms, even tho you 'thought' they were due to age, over-exertion, etc.
I say this because my mom's FP has been compliant with my suggestions (by sharing medical documentation, etc.) until we can get her to an LLMD.
You, yourself, need to "connect the dots" and see if any past symptoms jive with a Lyme diagnosis. He may not know what questions to ask.
And BTW, I couldn't believe the nightmares I'd read here about regular ID (infectious disease) "specialists" -- but they are true. We just experienced one.
We were SO hopeful, but were ultimately told she DID NOT have Lyme (during the office visit, PRIOR to a Western Blot) told her to come back in a month.
Told her it was probably some other problem....arthritis, neurological, etc. and did not even prescribe any meds.
Even after a positive Western Blot (per CDC guidelines), he STILL did not feel she was positive. F--K him !!!
And get this.....HE is the professor or instructor at our major regional medical center on Infect. Disease. So he's out there teaching all the new med students NOTHING about Lyme -- except the WRONG info.
STAND FIRM, EDUCATE YOURSELF, and go in equiped with credible info that you can share and REQUEST treatment.
You are the patient (the 'customer' per say) have that right. Hopefully, with him being young, he may be open to working WITH you until you can get to an LLMD.
Only my opinion and only speaking from personal experience due to a very rare breed of a doctor. My mom is blessed to have him.
Hugs, Bonnie
PS - Ask on here for a link to Dr. B's "DIAGNOSTIC HINTS & TREATMENT GUIDELINES FOR LYME & OTHER TICK BORNE ILLNESSES" as well as to his 'symptoms' diagnostic article. I used them both to take to the doc.
Also, although it is quite in-depth, I just read tonight a post (in this section) called " Dr. C's Western Blot Explanation" which has a wealth of info about not only the test itself, but also the infection and co-infections and more.
Posts: 36 | From Buckroe Beach, VA | Registered: Aug 2008
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posted
Yep, have both of those articles printed out.
My sister who also tested + is going thru a horrible time with MD's and ID idiots giving her the run around spending tons of $$ on worthless testing trying to prove her wrong.....
It is absolutely amazing the lengths the medical establishment will go to in order to make a patient feel stupid and tell them it is all "in the patients" head....
-------------------- IGM Result Positive CDC/NYS Result Positive
**31 kDa IND **39 kDa IND **41 kDa ++ Posts: 27 | From middle of nowhere | Registered: Aug 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
(With apologies for not being concise. It's really hard for my brain to do that when I'm trying to be sure you have all options on the table.)
I'm sorry I don't have great advice for now other than to find a LLMD. You are correct in that the doxy in not enough and you've been given a short Rx. Also, Lyme treatment should ALWAYS be a combination treatment.
What I would do, though, is to start on andrographis as in the Buhner protocol. Andrographis is calming, too. It will cross the the blood brain barrier.
You might consider allicin as in the Zhang protocol. Allicin can be a bit stimulating and it also crosses the BBB.
I know some who have done exceedingly well on the Zhang protocol. I have when I could afford it. The Buhner protocol is more affordable but both are far less than most other paths.
I suggest andrographis (Buhner) as that is least expensive and has a broad range of support. Cat's claw that is to be added is very helpful for the nervous system. and the Resverastrol is also very good. You can find links to books and web sites below.
Whatever, unless you can see a LLMD right away, you can get a month's supply of either while you decide which way to go. Many LLMDs incorporate either/both parts of Buhner or Zhang so any products you purchase will not go to waste if you team with a LLMD right away.
I know it's a very tough place to be but I hope you find what you need. I see that you live in Central Illinois. I'm not sure where the closet LLMD to you is, but I think in Missouri (Dr. C). You might be able to call and ask advice for this interim stretch, too.
I'm sure your self-care methods are good but, just to be sure: Alcohol must be totally avoided whatever path you take. Smoking, of course, will also compromise treatment. It's best to avoid simple sugars. Enjoy foods that are not processed - veggies, dark berries, get enough protein and avoid fried foods.
Avoid aspartame/Nutrasweet/Equal - even a trace in a breath mint can cause neurological symptoms. MSG, too, in all forms. You can search google for the various names of MSG.
Canned tuna, too, should be avoided due to high mercury. You can google for safe fish. Salmon and sardines are good and will really help your brain.
If you can get massage, that might really help your liver to get the toxins out. Lots of water is good, too. Gentle walking or stretching is good, too.
I hope you will feel better soon and feel good about whatever path is to be chosen.
CONTROVERSY CONTINUES TO FUEL THE "LYME WAR" By Virginia Savely, RN, FNP-C
*****
As two medical societies battle over its diagnosis and treatment, Lyme disease remains a frequently missed illness. Here is how to spot and treat it.
Excerpts:
" . . .To treat Lyme disease for a comparable number of life cycles, treatment would need to last 30 weeks. . . ."
`` . . .Patients with Lyme disease almost always have negative results on standard blood screening tests and have no remarkable findings on physical exam, so they are frequently referred to mental-health professionals for evaluation.
"...If all cases were detected and treated in the early stages of Lyme disease, the debate over the diagnosis and treatment of late-stage disease would not be an issue, and devastating rheumatologic, neurologic, and cardiac complications could be avoided..."
. . . * Clinicians do not realize that the CDC has gone on record as saying the commercial Lyme tests are designed for epidemiologic rather than diagnostic purposes, and a diagnosis should be based on clinical presentation rather than serologic results.
- FULL ARTICLE AT LINK ABOVE.
Co-infections (other tick-borne infections or TBD - tick-borne disease) are not discussed in the Savely article due to space limits. Still, any LLMD you would see would know how to assess/treat if others are present.
=====================
Sadly, this shows the state of treatment with IDSA doctors:
Attorney General Richard Blumenthal today announced that his antitrust investigation has uncovered serious flaws in the Infectious Diseases Society of America's (IDSA) process for writing its 2006 Lyme disease guidelines and the IDSA has agreed to reassess them with the assistance of an outside arbiter.
Antimicrobial activity of Andrographis paniculata. - Singha PK, Roy S, Dey S.
Plant Biotechnology Laboratory, Biotechnology Department, Indian Institute of Technology, Kharagpur 721 302, West Bengal, India.
The antimicrobial activity of aqueous extract, andrographolides and arabinogalactan proteins from Andrographis paniculata were evaluated.
The aqueous extract showed significant antimicrobial activity, which may be due to the combined effect of the isolated arabinogalactan proteins and andrographolides.
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