Sure...I, and so many others, have gone/go through the fears of other dreaded diseases. My crazy-twitching muscles just freaked me out with the whole ALS thing. 3 years later, her I am. I do have intermittent weakness, but it improves/worsens, waxes and wanes, along with so many other symptoms.
A + WB for me along with +'s for EVERY tick-borne infection possible...sort of put my mind to rest (sort of...who wants this?). I finally felt like I knew what I was dealing with, LD and company.
Your WB is VERY clear...Lyme...how did you test for co-infetions? It's one crazy disease with the laundry-list of symptoms we can have. Keep us posted. TS
Posts: 566 | From West Coast | Registered: May 2008
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The rest of them come and go (although less often, less severity as when it all started).
If can get end those two remaining things... Id consider myself cured (or at least in remission).
Of course, the interesting question might be...what were your first symptoms, and are your first ones the last ones to be cured?
It is for me.
It started with a headache and bizarre anxiety...and now those are my last ones to fix.
As Ive always told people... I think lyme is like the "tunnel of horror" and you have to exit the same way you came in. The longer it takes to turn around in the tunnel, the longer the horror continues till you get back out...and you always go back through the same horrors as when you started.
Posts: 514 | From . | Registered: Apr 2008
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posted
Chronic Fatigue and-Constant muscle twitching,pain,shock sensations of my left calf. My two worse symptoms still after 4 long years.
Posts: 343 | From North Carolina | Registered: Oct 2008
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Red hot pokers stabbing my wrists, ankles, neck, and fatigue. This is after 3 years of treatment with great improvement. Have faith everyone who is just starting treatment. Slow and steady is winning the race for me! Cindy
-------------------- Cindy Posts: 227 | From VA | Registered: Sep 2005
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Overwhelming fatigue, followed by: Tremors Headaches Impairment of fine motor skills/coordination Joint/neurological pain
While the last 4 are always there, I swear they flip a coin or play rock-paper-scissors to see which one is going to be amplified each day. They take turns. Isn't it nice when your symptoms get along so well?
-------------------- If you don't know where you are going, any road will take you there. - Lewis Carroll Posts: 356 | From Body-PA, Mind-elsewhere | Registered: Dec 2007
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Dawnee
Unregistered
posted
Worst for me is my hearing blinking off and on, off and on when I am laying down.
Tachycardia was the worst symptom but treatment has greatly diminished that.
And body wide muscle twitches... constant.
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Alv
Unregistered
posted
Neck , jaw , hedaches , anxiety and fatigue.ALL at the same time.
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Hi Shelly - you need to be treating the Lyme (and any co's if you have them). You could start a separate post for your own symptom/treatment questions, if you want.
My strongest symptom right now: multiple chemical sensitivity - reacting to most chemicals, fabrics.
Posts: 13171 | From San Francisco | Registered: May 2006
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besides the fatigue, DISTORTED VISION- as though i can see the air and have to strain to see past it.
Posts: 5 | From Princeton, NJ | Registered: May 2008
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Well it's hard to narrow it down to just one. But I guess if I had to pick one it would be the really severe head pressure.
-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
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I already had a learning disability, now it's even more intense.
They are all my number one.
Posts: 258 | From San Diego, CA USA | Registered: Sep 2002
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Amanda
Frequent Contributor (1K+ posts)
Member # 14107
posted
Neck pain that keeps me from sitting for more than 10 minutes, or standing for more than 30 min.
gum and jaw pain can occasionally drive me bonkers
nerve pain along right rib cage
hearing issues
insomnia (but Lyrica has really helped that)
-------------------- "few things are harder to put up with than the annoyance of a good example" - Mark Twain Posts: 1008 | From US | Registered: Dec 2007
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* Weakness, shakiness, dizziness (all come together)....and that 'unreal' feeling. I hate it.
* heart palps
* burning pain in thighs
those are the most common. I have other symptoms on a merry-go-round week to week, or day to day.
Posts: 322 | From Venice, CA | Registered: Sep 2008
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DebAz
Unregistered
posted
Fatigue and Pain Severe and Severe all over and constant. Worse with Herx and they go together for me..
Sometimes I say I would be so happy without pain and sometimes I say i would be so happy without fatigue.
Its a tie for me.. Both the worst...
Lost of others but they all come second third fouth and so on..
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Sweating like a pig! Totally heat intolerant.
Jan
-------------------- 3 Strains Mycoplasma and Chlymedia 2001. After treatment fine for all 2004. Major symptoms since 2005. Diag Aug 2008 Lyme. 400 mg/d doxy 500 2/d Ceftin Posts: 164 | From Texas | Registered: Jun 2008
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posted
By far the most painful is when I get that painful twisting sensation in my sternum area and the pain penatratest to my back. Brings me to tears.
Day to day lately has been the numbness/tired feeling I have been feeling in my arms/hands, and legs.
Posts: 60 | From WI | Registered: Nov 2008
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poor concentration no stamina anymore shortness of breath memory loss tingling feet and fingers blurry vision sore elbows and worst of all......anxiety
Posts: 208 | From Hudson Valley, New York | Registered: Mar 2008
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ajisuun
Unregistered
posted
Fatigue, fatigue, fatigue. That road kill that's still breathing kind of feeling.
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#1 most frequent since the tick bite- Fatigue, horrible, nightmarish fatigue.
#1 most painful- drilling, searing, shooting nerve pains.
#1 most frustrating- visual snow-it's like watching a TV screen without cable. It clouds everything I see. That is an all-day-everyday (as long as my eyes are open) symptom.
#1 most maddening/turn me into a crazywoman symptom- restless leg. I can't live with that one.
#1 most irritating symptom for today (and the last 3 weeks)- this horrible burning, shocky, stinging pain between my shoulder blades.
-------------------- Mountaingirl
"What lies behind us and what lies before us are tiny matters compared to what lies within us." ~ Ralph Waldo Emerson Posts: 138 | From West Virginia | Registered: Sep 2007
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posted
Its really hard to say which is the worst since quite a few are terrible but the most debilitating is the constant nerve pain sensations varying from shooting, stabbing, deep aching, and/or burning. I can't function AT ALL without my pain medication.
posted
Like alot of others (and I didn't read all the posts) I can't choose just one.
I think the best you'll be able to do is narrow it down to a top three or five , maybe.
My "#1" symptom is joint/muscle/bone pain. Very close 2nd and 3rd: headaches/head pressure and fatigue like I took a sleeping pill.
Posts: 797 | From New York | Registered: Feb 2008
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