disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
It can go either way. Some people gain weight, some people lose a great deal.
When I was at my sickest, I lost weight because I had no appetite whatsoever and I was always nauseated.
Since then, I've pretty much maintained.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
I have lost weight. Went from 128 to 110. I read that Babesia causes you to loose weight.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
oh man, you had to ask this.....gained about 70 pounds and no way is it coming off.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
20% lose
80% gain
it's cuz of thyroid
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
At first I lost went from 125 to 115. I was way too thin. Then I shot up to 160 lbs. I have since lost 10 lbs but can't seem to lose anymore despite an strict diet. I'm sure it doesn't help things that I can't exercise.
Ocean
Frequent Contributor (1K+ posts)
Member # 3496
posted
I gained at first, went up to about 145, now I'm under 110 again (not sure exactly, one day 109 another day 107, not sure what I am now). I had a free T4 and TSH done and they were within normal ranges, so not sure if mine is thyroid. I don't eat a lot some days, so maybe that's it for me.
Stjohn, I think you would be dead if you only weighed 45 lbs at 5'5" My son is a little over 4 feet and he is very thin at about 50 lbs. Yikes!
when I had gained a lot of weight, people who knew me were very surprised as I'd never weighed that much, just knew I slept constantly, it was very frustrating. Now I'm always afraid that people will think I have an eating disorder if I don't constantly eat around them!
You can't win either way!
Anyhow, the weight (whether loss or gain) is not our fault. I wish I hadn't been so down on myself when I gained, no one knew I had Lyme, I was just very very sick.
posted
When I first got sick I was finishing my senior year of college. Beer, pizza and fast food were staples of my diet. I weighed about 225lbs, and am 5 11.
Since the dietary changes that I've gone through for treatment I've lost 60 pounds in the last year and a half, and am now 165. Hopefully if I can recover I will be in the best shape of my life. I just got diagnosed in late Oct. and started abx. Before that I was being treated for CFS for over a year.
Posts: 11 | From Pittsburgh, PA | Registered: Nov 2008
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posted
I have gained probably 20-30 lbs. Every time I start loosing weight by doing weight watchers and exercising I ended up relapsing. Instead of just stopping exercise I seem to also loose control of what I am eating. Posts: 60 | From WI | Registered: Nov 2008
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posted
In the beginning I lost about 20 pounds. I was so ill I didn't eat. My neighbor asked if I had a eating disorder I was so thin.
Now after 22 years I've gained weight. Thyroid issues are part of the problem, but excercise intolerance is the biggest problem.
Kathy
-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
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posted
Gained 30lbs. Eat clean and healthfully. Pretty much always have. with this: it doesn't matter what I do--if I ate nothing, it would yield insignificant change.
I don't feel like eating as it is perhaps because of the antibiotics and/or fatigue(?)
It's a mere necessity right now, not enjoyment at all.
It's thyroid. My TSH went up 2pts from pretty much 1.0 to 3.0 --still considered "within normal limits" which is a joke nowadays--just insurance standards so they don't have to pay out like everything else perhaps?
What is considered "normal" or even "perfect" is often quite the opposite:
My sister's thyroid specialist told her that thyroid disease is also a clinical diagnosis.
To not use the test as an indicator, but rather the symptoms(weight gain, edema, fatigue) which some look like or are shared with lyme. The trend is toward a TSH no higher than 1.0.
Posts: 571 | From Massachusetts | Registered: Oct 2008
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Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
Yes...hypothyroid is common.
But ***watchwhat happens when a LOT of glucose, sodium and albumin go into cells (with regards to water gain = edema)***:
You can "play" the above over and over until you understand...I did.
Basic microbiology says we have to damage the pathogen's cell wall (or prevent it from forming in the first place) and then to sorta "finish the job" (CWD), we need either osmotic pressure changes OR ultraSOUND.
432Hz?
Posts: 9424 | From Sunshine State | Registered: Mar 2001
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
My daughter was 98 lbs, then gained 90 in about four months. We couldn't keep her clothed, and there were rumors of pregnancy around school. It was sad.
She is now back down to about 109. She says she did nothing to gain it, nothing to lose it, it's all part of treating the bug.
As if this disease couldn't be any worse.
Posts: 2903 | From AZ | Registered: Feb 2006
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Cass A
Frequent Contributor (1K+ posts)
Member # 11134
posted
Gained 20, lost 10, gained 10, lost 9, etc.
Hypothyroid for sure--treated with Wilson's Thyroid Syndrome handling for two years and never could get my temperature to stabilize at 98.6.
It's been chronically 97.8 and below for years now.
Since treating Babesia, I've seen many days when it gets to 98.3, but it's still not stably above 98.
And, the weight has been coming off again....
Best,
Cass A
Posts: 1245 | From Thousand Oaks, CA | Registered: Feb 2007
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posted
got diagnosed in late august.. have lost about 15 pounds since.. lyme, babesia, and bart
Posts: 245 | From East Brunswick, NJ | Registered: Oct 2008
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posted
At first when I was getting sick, I didn't change my lifestyle, because I knew while I wasn't perfect, I wasn't getting sick from being fat.
When my illness started to advance, I was getting no where with doctors. So I decided I was going to have to take much better care of myself, since I didn't know if/when I'd get help for what was wrong with me.
I was doing really well. I quit smoking and drinking, totally overhauled my diet, and started working out. I lost over 40 lbs (that I really needed to lose).
Then this fall, arthritis and fatigue and signs of hypothyroid appeared. Thank goodness I applied myself to losing weight while I could. Now I'm really struggling to keep it off.
I hope as my treatment advances, I'll be able to resume losing weight and enjoying the benefits of my efforts....
Posts: 455 | From Was in PA, then MD, now in the Midwest | Registered: Nov 2008
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posted
lost weight but it was because I was too sick to eat, not because I was eating normally and it just came off.
Posts: 561 | From mass | Registered: Jul 2007
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posted
gained 50 pounds in 2 1/2 years. Kept thinking that is just was not possible ... but its all here and clinging to my midsection.
Posts: 234 | From BC Canada | Registered: Aug 2008
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
loose...no matter what I would eat . Personally I think it was more from the babs, but who know it could be from the lyme too.
I read an article that said it is most common ( something like 80%) with lyme patients to gain becasue lyme mess's with your adrenals.
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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JillF
Frequent Contributor (1K+ posts)
Member # 5553
posted
gained no matter what i ate, how little i ate, etc. atkins, south beach - you name i've tried it
it is so frustrating
Posts: 1485 | From USA | Registered: Apr 2004
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
Some gain. Some loose.
Regardless, it's important to eat just the right amount of healthful foods so that the body has enough fuel and nutrients to get better.
--
This book is specific to lyme and other chronic stealth infections. The author discusses the endocrine connection and effects of cortisol from the stress of this illness. The Singleton book, "The Lyme Disease Solution" also discusses the importance of the endocrine support.
You can read customer reviews and look inside the book at this link to its page at Amazon.
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My son is a little over 4 feet and he is very thin at about 50 lbs. Yikes!
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