LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » My babesia numbers have lowered..should I pounce on it more or let immune take over?

 - UBBFriend: Email this page to someone!    
Author Topic: My babesia numbers have lowered..should I pounce on it more or let immune take over?
Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759

Icon 1 posted      Profile for Hoosiers51     Send New Private Message       Edit/Delete Post   Reply With Quote 
So I finished my Mepron. I felt little to no benefit during or after. I felt worse on it, and feel like I'm still recovering from the physical stress of being on it.

I have been using artemisinin on and off during the Mepron course, and now afterwards. I pulse it.

One thing I have noticed is that when I restart the beginning of each pulse cycle, the herxes/night sweats are greatly diminished from what they used to be, adn I can handle a much greater dosage of artemisinin.....meaning (to me) the babesia is still there, just in a weakened form.

So I am questioning where I should go from here. Symptoms I still have are horrendous fatigue, and a "spacey" feeling.

I am now taking minocycline and rifampin, and I'm not herxing much, nor am I feeling those symptoms get better.

So.....do I pounce on babesia with something intense like quinine or primaquine, since my babesia is obviously now weakened and maybe those treatments won't be so bad if I do them now?

Or is the best thing, once babesia is weakened, to let your immune system put it into remission?

[ 11. January 2009, 01:36 AM: Message edited by: Hoosiers51 ]

Posts: 4590 | From Midwest | Registered: Jun 2008  |  IP: Logged | Report this post to a Moderator
bejoy
Frequent Contributor (1K+ posts)
Member # 11129

Icon 1 posted      Profile for bejoy     Send New Private Message       Edit/Delete Post   Reply With Quote 
My opinion, as a complementary medicine user - Help your immune system target the remainders by using a homeopathic preparation that includes Babesia treatment, such as Borrelia Series Remedy from Deseret Biologicals.

--------------------
bejoy!

"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson

Posts: 1918 | From Alive and Well! | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
shoney
LymeNet Contributor
Member # 9925

Icon 1 posted      Profile for shoney     Send New Private Message       Edit/Delete Post   Reply With Quote 
what herbs are good for babs?
Posts: 561 | From eastcoast | Registered: Aug 2006  |  IP: Logged | Report this post to a Moderator
AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804

Icon 1 posted      Profile for AZURE WISH     Send New Private Message       Edit/Delete Post   Reply With Quote 
well personally i would not listen to a test over my symptoms (or myllmd)

so what does your symptoms and your dr say...

It is a little easier for me to sort out though because i just have lyme/babs...u have bart too right? (my memory could be wrong .. it is alot [bonk] )

I herx a long time when really hitting babs (like months sometimes [Eek!] )

so do you think maybe you feel better off the mepron because the herx stopped?

- Just a thought.

How long were you on the mepron?

If i actually thought i got my babesia into a weakend state, i dont think i would want to stop treating it until it was quiet.. completely beaten down.. but that is just my opinion.

I just dont trust my immune system. Its tired. and it also has lyme to contend with... but thats just my opinion of my circumstance from my expereinces.

If you and your dr think that mepron isnt the answer what about malarone? I know it is very simular but maybe one would work better than the other? I dunno.

Some of the side effects for some of the other prescriptions like larium scare me...but that is just me...maybe at another point i would think the risk was worth it.

I hope you and your dr can come up with a plan that gets the babs completely quiet.

--------------------
multiple chemical sensitvity group:
http://www.lymefriends.com/group/multiplechemicalsensitivities

Group for artists. All media welcome:
http://www.lymefriends.com/group/creativecorner


http://groups.yahoo.com/group/Lyme_Artist

Posts: 3860 | From nj,usa | Registered: Mar 2001  |  IP: Logged | Report this post to a Moderator
Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759

Icon 1 posted      Profile for Hoosiers51     Send New Private Message       Edit/Delete Post   Reply With Quote 
5 months on the Mepron....didn't really herx, nor did I feel much better......it was more like an awkward toxic feeling....

I don't "know" the babesia levels are low because I didn't re-measure them, but I am just concluding that based on my diminished response to artemisinin, as I pulse it. It just seems like the level is getting lower.

I have been thinking about it a lot, and I'm not sure if I trust my immune system either. I do/did have bartonella hensalae, so who knows if that is still around? I'm pretty sure Lyme is still in the picture. If I didn't have Lyme, I could actually trust my body to keep the babesia down.

Hope that answered all your questions! My worst symptom right now is fatigue, so who knows what that means...........but I think I am leaning towards looking into new answers for the babesia, probably in the realm of quinine-type drugs. (eek!)

Posts: 4590 | From Midwest | Registered: Jun 2008  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.