posted
The feeling of bloating, abdominal pain, fullness and gas after eating (and weight loss) may be due to problems with sluggish stomach or intestinal movements. This can be due to Lyme neuropathy. The best tests for this would be either a helical CT scan with IV contrast, or a nuclear medicine study to test for "gastric emptying". You could also have bacterial overgrowth in the intestine from sluggish intestinal movements. If that is the case, than a short course of antibiotics like cipro, falgyl or doxycycline may help. Reglan is another medicine that helps move the stomach and intestine. Pancreatic insufficiency may be another reason.
Posts: 14 | From OR | Registered: Mar 2009
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Hi cecekoo. Did you intend this to be a response to someone's post?
Just wondering.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
Are there any remedies for lyme neuropathy of the gut? That's what I have. The nerves in my digestive system have stopped working so my peristaltic action is gone and my absorption is minimal. I also have a lot of pain and bloating.
I've had a course of biaxin- 10 days. That's all I could tolerate because of how weak my body is.
I was on zelnorm as well, which I hear is like Reglan, and it didn't help.
Do you have any other suggestions?
Where do you get you information?
Thank you.
Posts: 710 | From West Coast | Registered: May 2008
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posted
Biaxin was horrible for my stomach and I only lasted a little over a week on it. I'm taking a break from antibiotics because my stomach is so bad but will most likely end up on IV Rocephin soon.
-------------------- Lisa D Posts: 103 | From MA | Registered: Jan 2009
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bettyg
Unregistered
posted
Welcome; i'm so glad you found us!! You've come to the right place for education and support!
Dr. Burrascano's most recent "Diagnostic Hints and 2008 Treatment Guidelines for Lyme and Other Tick Borne Illnesses" @
please go to my newbie links, copy the entire thing, and then print this off....FINANCIAL BURDENS compiled by melanie reber print off pages 74 - 92; outstanding info there. i believe there are a few more general comments there without links!! print that off too as it's newer info from members thru their own personal, tragic experiences.
Betty's suggested POSTING GUIDELINES . many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``TWICE`` after each paragraph; we need that space for comprehension.
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
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posted
I have gastroparesis, it is a living hell but I am about to try doperidone or something like that, Doc said it should help better than reglan, reglan is a nasty drug.
Posts: 458 | From Miss | Registered: Mar 2009
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posted
Try coffee enemas. They have helped me sooo much. They are on the Gerson Diet, which Dr. C in Missouri recommended to me.
Posts: 204 | From Wyoming | Registered: Feb 2003
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posted
What does the Gerson diet entail?
Posts: 710 | From West Coast | Registered: May 2008
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klutzo
Frequent Contributor (1K+ posts)
Member # 5701
posted
I have the pancreatic insufficiency that ceeceekoo mentions in the first post here.
I took OTC enzymes for a decade, thinking my lousy digestion was just part of Lyme and I'd have to live with it, since I had heard so many Lymies say they were told to take enzymes with meals. Then my fat digestion got so bad that OTC enzymes no longer worked.
If you have it, you will need to take prescription strength digestive enzymes with each meal or snack, eat no more than 60 grams of fat daily, and eat four small meals daily.
Without the enzymes, proper nutrition will not be absorbed, and weight and then hair will be lost, not to mention awful fatigue. My mom died of this back when they did not have enzymes, so I know what it's like w/o treatment. She went down to only 62 lbs. at 5'7" tall.
Pancreatic insufficiency is serious, cutting life span by an average of 20%, so if you have any of the symptoms mentioned in the first post in this thread and/or clear oil floating on the water in the commode and/or BM's that streak the side of the commode, go see a GI doc ASAP. By the time you show symptoms, at least 90% of your pancreas has already been destroyed.
klutzo
Posts: 1269 | From Clearwater, Florida, USA | Registered: May 2004
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
klutzo, i'm sorry for your loss.
i have bad stomach pain which comes on about 15 or so hours after eating. cannot tolerate any fat at all.
stools are mostly light tan with oily mucousy spots in the water.
i've had every tests known to man except the ercp, and my gastro still insists i have one of the worst cases of ibs he's ever seen.
i a terrified of pancreas problems and refuse, absolutely refuse, to accept ibs.
he won't give me the enzymes so i have to take OTC.
i don't know if it's lyme or not, but, yes, it's making me absolutely miserable.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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That is alarming, because I just recently tested positive for pancreatic insufficiency, and I've probably had it for at least 10 years of my life (I'm only 20).
I can only tolerate about 10-15 grams of fat a day, and NO oil. Just an ounce of avocado, then the trace amounts of fat in the massive amounts of carbs that I eat.
I'd love to hear more about your experiences with pancreatic insufficiency, and what you did. Why is it that it shortens the life span, even if you begin treating it? Is it the lack of fat? Posts: 710 | From West Coast | Registered: May 2008
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Gastrointestinal issues have been my biggest problem with Lyme Disease. As I have gone on a stricter diet and started on enzymes, I have drastically improved. I can work, go to school full time, and am continually improving.
The use of enzymes and coffee enemas have helped my gastrointestinal issues significantly. In the past year and a half, many of my worst issues have been resolved. My pain is so much better than it used to be!
Contact me, please, if you have any questions. I would love to help you in any way.
Posts: 204 | From Wyoming | Registered: Feb 2003
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
do you think if i asked my llmd to give me digestive enzymes, he would?
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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