posted
My legs (shins) burn. It is very annoying and uncomfortable. I also get the burning sensation on the tops of my feet. Sometimes it feels like I'm being stung or big by fire ants! what is this about???
Leelee
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posted
I have the burning sensations too, but it is limited to the soles of my feet and usually at night.
I have Bartonella. I was diagnosed clinically as well as positive on my Fry blood work.
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
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lymeHerx001
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I have been getting this for years after sugar, excercise, abx..............................
Posts: 2905 | From New England | Registered: Sep 2004
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lymeHerx001
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up..
does it change depending on what you do/take?
Posts: 2905 | From New England | Registered: Sep 2004
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lymeHerx001
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I get this al the time. Negative 6 times for bart.
Posts: 2905 | From New England | Registered: Sep 2004
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Leelee
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posted
quote:Originally posted by lymeHerx001: up..
does it change depending on what you do/take?
No, there does not seem to be any rhyme or reason to the cause of my burning soles.
I have previously had huge bruise-like marks on my right foot too. Once on the bottom and about a year later on the top. They did not hurt, really, but were disturbingly discolored.
Now that I know I have Bart, I believe it is all related.
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
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posted
The reason I finally went to the doctor was because I could not take what was going on with my legs & feet any longer. I stood it for well over a year but just could not do it anymore.
They felt like they were on fire, like I was being eaten alive by a thousand mosquitoes, they tingled, had feelings like little electric shocks, they stung, ached, when anything touched them they felt like they were being brushed with a thousand cactus needles and at times my leg felt like a cat had its claw in me and was slowly dragging its claw in a meandering path from my thigh to between my toes. I could feel the pressure of touch but not the sensation of touch.
My sleep was 2-4 hours if I was lucky.
I tested positive for LD on June 11.
If what I described is what you call BART what do i need to do to be tested? Will the same antibiotic that is treating Lymes also treat Bart at the same time?
What a mess this LD stuff is!!
Posts: 13 | From Texas | Registered: Feb 2009
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Leelee
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quote:Originally posted by Kln: If what I described is what you call BART what do i need to do to be tested? Will the same antibiotic that is treating Lymes also treat Bart at the same time?
What a mess this LD stuff is!!
You are so right. Lyme is a mess. A huge, horrible mess!
Your feet problems may be due to Bart. The testing for Bart and other co-infections is not any better than the testing for Lyme, unfortunately. It probably is best determined by a LLMD and a clinical diagnosis.
My LLMD tests for Bart with Fry Labs. I have many symptoms and my lab report from Fry indicated things in my blood that were not supposed to be there.
Recently there has been a lot of controversy with Fry Lab's reporting so I don't know if you want to test with them or not.
I was satisfied with their report, myself, but for others many questions still remain.
As for the abx needed to treat Bart, some are the same as Lyme, but generally one needs a specific combination to effectively treat it. I am on Dynacin, Zithromax now to treat both the Lyme and the Bart. In the next few weeks I will add Bactrim. That also goes after the Bart. Others have successfully used different combinations.
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
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lymeHerx001
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Kln, Im in the same boat. I would love to go back to 2000 when I didnt have this terrible burning and clawing pain.
I desribe it as someone cutting your feet up with a razor, then pouring salt into the wound and wrapping it up uncomfortablly tight!
Its severe pain! I live off advil and muscle relaxers dont really work anymore at all.
Posts: 2905 | From New England | Registered: Sep 2004
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posted
Hello, I also have this but is is in my shoulder and neck. I too thought that this was lyme and that may be it's origin but it could be Reflex Sympathetic Dystrophy. Please google it. Look under RSDSA.org or com? This is when the nerves in your body go into hyper drive. Only certain meds can take the edge off. Opiods do not help but nerve meds do. I hope you don't have this it is horrible. Lyme may be an origin but this must be treated correctly so please check this out. Only certain specialists treat this. What area are you in...I can send you a list of doctors who are aware of this disease and can diagnose it correctly.
Posts: 871 | From orange county, ca. | Registered: Jan 2006
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klutzo
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posted
I have this too, like a blow torch all over my body.
It could be polyneuropathy. Lyme is one of about half a dozen diseases that can cause polyneuropathy.
Tx is to address the cause, ie. Lyme.
klutzo
Posts: 1269 | From Clearwater, Florida, USA | Registered: May 2004
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posted
Hi, I had this symptom last summer at this time for 7 months.
It started a few days after the oval and rounded rashes. My legs from the knees down were on fire 24 hours a day.
I could not tolerate anything against my legs. It's called Paresthesia.
I went to two neurologist, one was a LLMD. I had an EMG done which was negative.
I also tested negative for Bart.
There are medications which can help such as Lyrica. I didn't take any meds so check with your doctor and see what he or she recommends.
What seemed to help me was time and cold therapy.
The Lyme bacteria releases a nerve toxin and neurological damage may take months or longer after finishing antibiotics. The nervous system regenerates only one or two milimeters each day and needs more time to heal.
My legs are better but I still have some problems with swollen ankles.
You might want to consult with a neurologist or ask your doctor which meds might help. Take care and hope you feel better.
-------------------- Sherlock Posts: 31 | From PA | Registered: Jan 2009
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groovy2
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Member # 6304
posted
Could be Shingles but most likely Bart--
Usually you have foot pain also ACHE - plus burning crawly bugs--
I think I also got Bart the second time I was infected--
I took meds right away so I perty sure I killed it - took about 2 weeks for feet to quit hurting-
Jay--
Ticks are germ factories -
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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lymeHerx001
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posted
anybody see a neurologist for this? The duck recomended 2 of them.
What could they possibly do? Drug me up more? Anyway, I just want people to care and at least try to help someone in severe pain.
Posts: 2905 | From New England | Registered: Sep 2004
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Pinelady
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Member # 18524
posted
I tried the hot as I could stand soaks with Epsom
salts. My toes would get red and burn but traveling pinches were the norm. It would relieve it so I could get good
sleep. I used to not be able to get the water hot
enough, now in treatment it is easy to get it too hot fast.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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We have no insurance. Right now all I can afford is the meds and my family doc who lowers my office visits and doesn't add any extra costs to my labs since she knows we are self pay.
Long story short...we don't qualify for medicaid or the gold card. Husband is a contract programmer and just when we think we are going to qualify a job pops up..just saved us from foreclosure so I am not complaining. Just frustrated regarding insurance.
For now I have to stick with family doc and treatment she has planned. At least till I can afford more testing or specialist.
I will talk with her my next appt and tell her what i learn here. She is understanding and actually listens with an open mind.
Posts: 13 | From Texas | Registered: Feb 2009
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