Topic: How long until your neck pain and stiffness started to get better??????
Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Hi everyone,
I am only 11 weeks into treatment.
I keep hoping for my neck pain and stiffness to improve, even a little.
For those of you with neck pain and stiffness, how long was it until your neck pain and stiffness started to improve???
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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posted
mine has improved but is flares up at times and has never cleared up after many years of treatment .... I make a point of turning & stretching my neck every day (yoga exercises) just to try to keep it somewhat felxible, and that helps. It also still creaks & crackles.
ESG
Posts: 424 | From Connecticut, USA | Registered: Nov 2003
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bettyg
Unregistered
posted
dek, mine never has gotten better; talk about a royal pain in the neck...pun intended! so painful.
i live with my frozen ice packs on my neck/lower back
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posted
I think every one here will say the same thing because I asked the same question not long ago. Their neck and back pain never improves even over years and years. It has made me sort of depressed. I've been in treatment about as long as you, a little longer and I'm about to go crazy with this neck stuff.
I was hoping some one would say, six months , eight months, etc but all I ever got back was, it never goes away. Made me start to rethink treatment and future possibilities. Not much hope from this group. Sorry.
Posts: 199 | From utah | Registered: Jan 2009
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lymetwister
Frequent Contributor (1K+ posts)
Member # 19590
posted
My neck stiffness comes and goes, so there is hope. Lately, I've had it every day, but I think it's about detoxing and I'm lagging a bit.
Time will tell, but don't discouraged. I don't believe any of this is permanent once you eradicate it from your system.
Remember, the ones that get well don't post here anymore. I always remind myself of that.
Lymetwister
Posts: 1227 | From District of Columbia | Registered: Mar 2009
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posted
Hey-- someone posted about a product from Target with camphor in it...made them feel better. Do a search for that post.
Posts: 236 | From Illinois | Registered: Feb 2009
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
What IS depressing is I never had neck stiffness and bad neck pain until I started Mino and then slowly my neck became extremely stiff and the pain got worse. I HATE Mino for THIS reason. If I had never taken Mino, maybe I'd still never have the neck issues...
The neck stiffness and pain for me does come and go, but it's usually there MORE often than not. Some days I will wake up and soon after being up, the neck stuff starts up and lasts all day (I've had to get on prescription pain meds for it, to take on an as-needed basis because I couldn't handle how bad the pain has gotten). Then some days I won't have any neck pain whatsoever and my neck will feel great. It's so odd how it just comes and goes like that.... same as every other lyme symptom.
Oh, also wanted to say that going to a chiropractor has really done no good for my neck at all. Sometimes I will notice it gives me relief for THAT day, but then usually the neck pain and stiffness is just back and bad as ever the next. I also have noticed times that I've gone to the chiro and it just made my neck worse... so it's kind of a gamble to go (at least for me), and it usually doesn't do much good anyway. I've been seeing my chiro for almost two years as well...
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Thanks ESG, bettyg, bwillis, lymetwister, hoot, disturbedme, and kellyjk4...thanks for the kind words.
I was hoping for better news than this.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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posted
I keep hearing those who got better aren't here anymore so only the treatment failures hang around. If I ever get better I'm gonna be the one who came back and said----I got better, it this and this, just so people won't leave this forum everyday so depressed!
I hope none of you are here then.
Posts: 199 | From utah | Registered: Jan 2009
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posted
Dekrator , I was wondering what exactly you are being treated for . My first llmd had me on imox 3000mg/day and then doxi 400mg/day , back and forth . I improved some but never fully , especially neck and back pain .
All pain came back after treatment stopped , he only treated me for lyme .
2nd doc treated me much more thoroughly for lyme,babs,bart and in 6months I had noticeable improvements in many symptoms including neck and back pain.I was treated 2 yrs and made a huge difference , unfortunately I've stopped treatment ,no mo $ , and I worry about the dreaded backslide.
But I did see a big improvement while being treated for coinfections , so hang in there and ask you're llmd if he is taking care of coinfections !!!
Posts: 97 | From West Chester ,Pa. | Registered: Aug 2006
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
This thread is too depressing to read...I'll stop opening it. This is a HUGE problem for me and dehabilitating for what I do for a career. To never see daylight.... Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Thanks for your replies bwillis, buckfever and seekhelp.
Right now I am taking doxy, zithromax and plaquenil.
I tested postitive for bart and lyme. My LLMD said he will consider treating me for babs in the near future if I don't have improvement.
He usually gives his patients who test neg for babs 3-6 mo to see if they improve with treatment before prescribing mepron.
I am hoping to avoid it because of the extreme cost.
I have been treating for 11 weeks.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
| IP: Logged |
posted
I had neck and back pain before I started treating for lyme and babs. That symptom disappeared after 3 months of treatment. If I stop antibiotics for any period of time, it does come back. I have been treating my lyme for about 1 1/2 yrs and my babs for 6 mos.
-------------------- Shelly Posts: 73 | From New Jersey | Registered: Apr 2009
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