posted
Doctor started me on Flagyl with rocephin. Am having severe stomach aches. Anybody else experience this? Thanks
Posts: 6 | From Mass & Florida | Registered: May 2009
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Taking it with food?
Posts: 3975 | From usa | Registered: Aug 2007
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posted
To Feelfit THANK-YOU, I am the new kid at the treatment, your advice sure helps
Posts: 6 | From Mass & Florida | Registered: May 2009
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
On a different subject, Have been on the treatments for about 4 weeks and have gained 20# without changing eating habits. Does everyone deal with weight issues on top of the Lyme?
Posts: 6 | From Mass & Florida | Registered: May 2009
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posted
I took 500mg three times a day (1500mg/day) for 5 months as prescribed by my LLMD.
It worked incredibly well until it messed up the nerves in my right foot and fingers. A couple more months and I swear, I'd have been symptom free. Great stuff in some ways.
Posts: 410 | From Victoria BC, Canada | Registered: Jul 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
Betty's suggested POSTING GUIDELINES . many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``TWICE`` after each paragraph; we need that space for comprehension.
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. ------------------------------------------------------
People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.
The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately. *******************************************
This explains the medical politics around lyme WHY you need an ILADS-educated or ILADS-member LLMD (and there are also some ILADS-member LL NDs (naturopathic doctors):
CONTROVERSY CONTINUES TO FUEL THE "LYME WAR" -(author's details at link)
As two medical societies battle over its diagnosis and treatment, Lyme disease remains a frequently missed illness. Here is how to spot and treat it.
Excerpts:
Meet the players
The opponents in the battle over the diagnosis and treatment of Lyme disease are the Infectious Diseases Society of America (IDSA), the largest national organization of general infectious disease specialists, (and)
and the International Lyme and Associated Diseases Society (ILADS), an organization made up of physicians from many specialties. ( www.ilads.org )
ILADS, by contrast, asserts that the illness is much more common than reported, underdiagnosed, easier to contract than previously believed, difficult to diagnose through commercial blood tests, and difficult to treat, (especially)
especially when treatment is delayed because of commonly encountered diagnostic difficulties ( http://www.ilads.org/guidelines.html - Accessed April 6, 2007). . . .
" . . .To treat Lyme disease for a comparable number of life cycles, treatment would need to last 30 weeks. . . ."
`` . . .Patients with Lyme disease almost always have negative results on standard blood screening tests and have no remarkable findings on physical exam, so they are frequently referred to mental-health professionals for evaluation.
"...If all cases were detected and treated in the early stages of Lyme disease, the debate over the diagnosis and treatment of late-stage disease would not be an issue, and devastating rheumatologic, neurologic, and cardiac complications could be avoided..."
. . . * Clinicians do not realize that the CDC has gone on record as saying the commercial Lyme tests are designed for epidemiologic rather than diagnostic purposes, and a diagnosis should be based on clinical presentation rather than serologic results.
- Full article at link above, containing MUCH more detailed information. -===
Co-infections (other tick-borne infections or TBD - tick-borne disease) are not discussed in the Savely article due to space limits. Still, any LLMD you would see would know how to assess/treat if others are present. ==========================
TESTING
You should also be evaluated for coinfections. Not all tests are great in that regard, either, but a good LLMD can evaluate you and then guide you in testing. One of the top labs is:
"With most infections, your immune system first forms IgM antibodies, then in about 2 to 4 weeks, you see IgG antibodies. In some infections, IgG antibodies may be detectable for years.
Because Borrelia burgdorferi is a chronic persistent infection that may last for decades, you would think patients with chronic symptoms would have positive IgG Western blots.
But actually, more IgM blots are positive in chronic borreliosis than IgG. Every time Borrelia burgdorferi reproduces itself, it may stimulate the immune system to form new IgM antibodies.
Some patients have both IgG and IgM blots positive. But if either the IgG or IgM blot is positive, overall it is a positive result.
Response to antibiotics is the same if either is positive, or both. Some antibodies against the borrelia are given more significance if they are IgG versus IgM, or vice versa.
Since this is a chronic persistent infection, this does not make a lot of sense to me. A newly formed Borrelia burgdorferi should have the same antigen parts as the previous bacteria that produced it.
But anyway, from my clinical experience, these borrelia associated bands usually predict a clinical change in symptoms with antibiotics, regardless of whether they are IgG or IgM." ===========
ILADS The International Lyme and Associated Diseases Society (ILADS) provides a forum for health science professionals to share their wealth of knowledge regarding the management of Lyme and associated diseases. =========== i'm going to try to post a link here with info on SUCCESSFUL LAWSUITS WON ON LYME DISEASE from www.lymenet.org site! look on LEFT side :legal resources" !! all WINNERS!
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posted
I's on Flagyl and couldn't tolerate more than 3 days at 250mg before the herx was unbearable.
Just as an experiment I tried Sam-e and it allowed me to take 250mg Flagyl per day 7 days a week. Supposedly , one of the 3 sam-e benefits is detox assistance. I was extremely surprised this worked.
Posts: 252 | From NJ USA | Registered: Mar 2004
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WildCondor
Unregistered
posted
That is a normal dose of Flagyl, just be sure to take it with food, eat a meal, then take it. The Rocephin may be bothering your gallbladder and you should be on Actigall. Ask your LLMD.
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CherylSue
Frequent Contributor (1K+ posts)
Member # 13077
posted
Dsiebenh,
How much Same-E were you taking with the Flgayl? When did you take it? With the flagyl? A few hours from the Flagyl?
I worked up to 1/4 Flagyl every other day because of the herxing.
Where do you get the Same-E?
Thanks for your input.
CherylSue
Posts: 1954 | From Illinois | Registered: Aug 2007
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posted
200mg of Sam-e 3x per day empty stomach. 250mg flagyl once per day with breakfast. I got a free sample for $5.99 shipping at www.bestsame.com. You can also buy at Walmart or Sams.
Posts: 252 | From NJ USA | Registered: Mar 2004
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otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. 
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