posted
I am on Low dose naltraxone up to 2.0 ml in a liquid. It is the ONLY thing that has taken 60-70-% of my body burning pain away. You cannot be on opiods with it. Google Lowdosenaltrexone.org and learn about this amazing old drug and it is curing chron's, MS and other autoimmune diseases. It also helps with inflammation. It needs to be compounded by one of the pharmacies on the sight. No where else. I hope this helps.
Posts: 871 | From orange county, ca. | Registered: Jan 2006
| IP: Logged |
posted
I couldn't take lyrica, it caused a weird stutter that made me unable to talk and it gave me this euphoria followed by sudden depression.
I was also constantly dizzy.
I have neuropathy in my hands and feet.
I find that it flares in heat or when I have a fever (which is a lot).
Now mostly I am numb where I used to have pain.
Maybe a nice bath--nothing hot!
I didn't notice much that helped my pain, but I hope something helps you!
I am sorry to hear you have it over such a large area.
-------------------- IGENEX DX Day Dec 2, 2009 IgM western blot: POSITIVE 18: + **31: ++ **34: ++ **41: IND 58: + **83-93: +
IgG western blot: Negative **31: IND **34: IND **41: +
Antibody Titer B Burgdorferi G/M/A: Indeterminate 1:40 Titer Posts: 20 | From Vermont | Registered: May 2009
| IP: Logged |
dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
try baclofen it is a nervous system muscle relaxer. Used alot in those w/MS for spascity.
Neurotin - generic Gabapectin is used for neurophy.
I went to the founder of the LDN, Dr. Bahari in NYC, for two years prior to finding out Lyme was the cause of my MS.
It did not stop progression (more brain lesions)and more pain. Dr. Bahari remarked "something else going on" and was thrilled when I found a llmd & lyme.
I cannot take LDN while on abxs, feel like I'm gonna die 1 hr after...dizzy, hard to breath, gonna pass out.
Never happened for two years prior to abxs.
LDN is great but not the miracle for everyone. Give it a try, it is inexpensive.
Posts: 2675 | From ct, usa | Registered: Jan 2004
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/