posted
this may not sit well with you all but 56 days to cure is bs...stop trying to find an llmd on the web! no self respecting doctor peddles his wares on the internet! my llmd would never advertise on the web..there are other doctors who think that they are the authority on lyme and put out books thinking that they are now the authority...they are preying on lymies it is that simple..as far as antibioticnomore I think that you know this doctor and trying to promote him...your posts lean toward defending a doc that you dont know..wow maybe he can cure you! that is what you must be thinking? well if he really was that good he would not need to advertise! this clinic is bull in my opinion..all because this doctor mentions a cure that we all know is not going to happen in 56 days....
Posts: 593 | From long island ny | Registered: Apr 2006
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posted
who says this doctor is one of our own?????
Posts: 593 | From long island ny | Registered: Apr 2006
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
PolarBlast,
You don't know what you are talking about but insist that you do in a very bold manner.
Dr. J has a website. Is that a bad thing? He is a highly regarded LLMD.
Lou, the moderator of this site, has already posted about this doctor on this thread.
I have met Dr. L at a Lyme rally and he was there to speak out against the IDSA and to help people like us. I was never a patient of his but I do know people who were and saw what he did for them. YES, HE IS ONE OF OUR OWN.
His website needs to lose the PR marketing claims, and I admitted that, but it is clear to me that you don't know what you are talking about and you contradict yourself in your post.
He is a smart and knowledgeable LLMD. I have met him personally and know many who he has treated. DO YOU???
No I am not trying to promote him but I don't like ridiculous accusations by those who don't know what they are talking about and no LLMD, who is putting himself on the line by helping us, should be ripped apart like this.
Email him thru his website and express your dissatisfaction with his site and his claims or better yet find out why he thinks he can do what he claims to do.
Do something constructive, instead of spewing out RAGE! You certainly are a blast, a blast of hostility!
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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posted
you dont know what you are talking about..my hostility is toward you! this doctor has said he can cure lyme in 56 days..cut the crap that is not a statement that a real doctor would make..period! he may be a great doc but not when he makes very serious statements that we know are not true..
Posts: 593 | From long island ny | Registered: Apr 2006
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Bla, bla, bla. I'm not wasting any more time on you.
Good luck getting better.
Did you read Lou B's post above.
Sleep well.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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His treatment got me walking again and thinking again.
I do still have issues,and am not one of his "cures". But, I was chronic when I went to him. They do not claim to cure everyone.
I (and my family) will be forever thankful for the parts of me that his treatment restored.
-------------------- I found my original identity! It has been a bit over 12 years...can't blame me for forgetting my password, right?!!
Member red (Member # 1886) Registered: 26 November, 2001 70 posts Posts: 164 | From NJ | Registered: Jan 2009
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
This Dr. L is a LLMD.
Has been a LLMD for a LONG time and has helped many. Actually VERY many people.
The problem is the website.
The web site is NOT not accurate because it claims a cure and specifies a certain number of days to a cure... and it says a test or series of tests can show you are cured.
That is not true and to put it out there WILL upset people.
AbxNoMO.... you said .. "Also, he didn't only use rocephin."
Actually .. maybe it was before your time, but at one time he did ONLY use Rocephin and you could NOT get anything else.
Even if you were allergic to Rocephin there still was no alternate treatment offered.
It was Rocephin or nothing. I do know that to be a fact.
That does not discount his attempts to help though. It is just the way it was. People were considered to be "lucky" if they could get IV antibiotics at all back then... anywhere... and many were treated in his offices that otherwise wouldn't have been.
I sent LOTS of people there in the early days... but I knew if they couldn't get a positive PCR or couldn't use Rocephin for some reason... they were not given an alternative option.
```````````````````````````````````````````````
Polar ... you said.. "there are other doctors who think that they are the authority on lyme and put out books thinking that they are now the authority...they are preying on lymies it is that simple..."
I guess you know how ??? that statement is, don't you?
Were all of these authors who "put out books" thinking they were THE authority?
Are all these authors preying on people who buy their books?
NO. The people buy the books or read the manuals... ALL written by someone else...
So they can LEARN!!!!
See Spot run. Run Spot run. < Was this author a crook preying on little kids?
Place your right foot on the gas pedal and slowly accelerate. < Was this author teaching youths to drive ONLY because they thought they were the authority? Or to save lives maybe?
Danger! Don't put hands or feet near the turning blades. < And this author- preying on people?
Etc, etc......
Anti-freeze. Keep stored in a safe place, away from children and pets.
How To Control Plant Diseases.
Webster's Spanish Dictionary.
Field Guide to the Wildlife of Costa Rica.
Red Cross Handbook- CPR.
`````````````````````````````````````````````````` Polar said... "as far as antibioticnomore I think that you know this doctor and trying to promote him..."
I know a number of doctors and I promote them all the time.
THAT is how YOU and others get the help you need.
One time I even promoted a new mop to someone who was having a hard time using the older kinds.
They actually said "thank you".
My point... maybe re-think your post and come back with a reasonable one?
Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359
posted
I'd be inclined to think that tax evaders have a little more than a fair share of self-interest, and I'm not so sure this goes away after a first offense. That coupled with the advertising amounts to a very big red flag.
-------------------- "Whatever can go wrong will go wrong." Posts: 2062 | From CT | Registered: Jul 2008
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quote:Originally posted by Lymeorsomething: I'd be inclined to think that tax evaders have a little more than a fair share of self-interest, and I'm not so sure this goes away after a first offense. That coupled with the advertising amounts to a very big red flag.
I suppose we'd have to know where the lines of tax evasion are drawn. Is it a matter of too many questionable deductions over a period of time? Or is it out and out fraud? This is probably a very murky area and, like many things, somewhat dependent on the whims of the enforcement people involved. So, without the details -- details we'll never know -- this does not mean much.
What does mean a lot are the reports of people who know or have been patients of this doctor. It seems clear that he is a LLMD who is fairly well regarded, though limited in his approach, with a good understanding of this disease and the politics. Some have improved, some have not, but all paid a lot. Not too atypical.
What is not okay are the stated cure rates and times. These are beyond ridiculous, and in my mind are misleading at best -- very disingenuous -- and do not speak well of the ethics or motivations of the professionals involved.
Posts: 845 | From Eastern USA | Registered: Jul 2006
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
I agree with you totally about the website.
BUT, not about paying a lot. Everyone is confusing Dr. L. an LLMD, who is NEW to this center and did not work with the former Dr. PK.
As I understand it, when Dr. PK was there, there wasn't a LLMD on board and they were not using ABX.
It was an alternative treatment center and the cost for treatment with the phospholipid was very high and these treatment most often are not covered by insurance.
Dr. L was never a high priced LLMD and as I recall he took insurance. He did have his
limitations in terms of treatment with positive PCR's, etc. (I mentioned that I did not agree with all of his polices in my first post & I hope he has changed those policies) but he was not the doctor who ripped people off for tons of money.
Let's be fair and set the record straight.
Again, this is not the same doctor that was orginally at this center working with phospholipids. Dr. L. is a new LLMD working at this center.
If I did not know him, his website would send up lots of red flags to me and I would not even bother read it.
But given that I do, I do think there is a possibility that the combo of a LLMD and a integrative doctor could work out well especially if you are a patient who does your homework.
I've seen some of the best LLMD's but I only stuck with the ones that were willing to listen to me and work with me and those were the ones who were open to integrative techniques and thinking outside the box when it came to ABX combos and dosages.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
I balked at the "56 day cure" too, but I must say that if I were not where I am right now in treatment, I wouldn't hesitate to give Dr.L a shot (ESPECIALLY because they are accepting insurance!).
If they didn't get you all the way there, I think it sounds like you'd at least have a darned good start. (just my opinion)
I also believe that teaming up with CAM, he could be quite successful with treating. As I understood, prior to the tax incident, he was big on IV and had I been on IV sooner who knows whether I would still be treating now.
The co-infections need to be addressed and it sounds like they're doing that.
Those of you throwing stones, do you happen to know if the tax thing was deliberate or an oversight?
I don't recall ever hearing anything negative about him when he was practicing in NJ. If anyone else here had, please PM me.
Thanks. Ali
PS-If anyone does decide to go, please PM me & let me know how you're doing in 56 days.
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
AliG
I like to see posts like yours where people can be objective.
What does it matter about his tax issues. He served his time in jail and his Medical License was not taken away. He did not harm anyone medically.
If, and I know it's a big if, he could make you significantly better would you really care about his tax issues, which are behind him now?
It wouldn't bother me if he was providing patients with impressive and lasting improvements.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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posted
Broken record. Why are "we" still arguing about this??
The website claims suck. The doctor is an LLMD. That's been stated over and over and over and over.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Because people don't read the whole thread and keep mixing Dr. L. up with the original doctor P.K that was there before him and making comments that don't apply to Dr. L..
That is not fair. He never did the lipid stuff, in fact, he never did any alternative stuff, or overcharged people. In fact, he helped people even when they didn't have funds.
I agree. I wish this thread would go away or that people would read it all before making comments that don't apply to Dr. L and the new center.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359
posted
quote:Originally posted by AliG: Those of you throwing stones, do you happen to know if the tax thing was deliberate or an oversight?
C'mon, it's unlikely an oversight. With the doctor aside, the advertising targets the desperation of frustrated, sick people as a means to make money. Without a body of evidence, who would affiliate themselves with the place?
-------------------- "Whatever can go wrong will go wrong." Posts: 2062 | From CT | Registered: Jul 2008
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Let's move on to "Lyme victims helping Lyme victims" ... OK?
We've throughly discussed this Topic and there has been a lot of "speculation" with very few facts.
Hopefully we will have users who actually experienced treatment by this clinic and Dr L who will report in a new Topic in the future.
I do know this LLMD, as I said we met and talked a number of times and I really believe he's a good person, and I never heard a negative comment about him when he was treating prior to the tax issue and that is VERY unusual for any MD, especially an LLMD.
I don't like the claims on the web site but I hope those will change and the web site will be updated now that Dr L is coming on-board.
Since most of you are posting based on speculation / perseption and not fact based, I am closing this Topic.
Take care,
-------------------- Lou B Posts: 2200 | From Mount Hope, New Jersey, USA | Registered: Oct 2000
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