lymeHerx001
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posted
^
Posts: 2905 | From New England | Registered: Sep 2004
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Pinelady
Frequent Contributor (5K+ posts)
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posted
LymeHerx my knees did not hurt till I started treatment. Now they feel like they will explode under me. Sound familiar?
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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lymeHerx001
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posted
yes it does.
that duck I went to thinks I have aids or hep c because of that.
now does that make sense?
3 days of biaxin and I felt like someone broke my knee caps!
Posts: 2905 | From New England | Registered: Sep 2004
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posted
When I first became ill I was checked out for everything,Hep C, HIV and ton's of other things. I am glad as it ruled out a lot.Many of these illnesses have the same symptoms. Try and find a doc you are comfy with that is conscious,caring and kind and knows about lyme,co-infections Pyroluria etc,etc etc.Someone not in their Ego.Someone who works with you not at you.
Posts: 905 | From Santa Cruz,Calif | Registered: Aug 2005
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lymeHerx001
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posted
thank-you for that kind response.
I looked through my blood tests and couldnt find if I had a HEP C test. I wonder If I have had HEP C this whole time.
Then again I did and do herx from abx and test + for mycoplasma, thats incontrovertable.
Posts: 2905 | From New England | Registered: Sep 2004
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lymeHerx001
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posted
Is it true that I can have HEP and no symptoms?
Posts: 2905 | From New England | Registered: Sep 2004
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
Yep. I would not worry over this, though. It's just a routine thing to rule out and you certainly have not been in the high risk group (although even a bad manicure can pose a risk).
Hep C is not the only kind of hepatitis, though, so we have to be aware and be very kind to our livers. Drugs and other infections can also cause hepatitis of other kinds.
You can help your liver stay stronger with good liver support, avoiding things that harm your liver and eating a diet rich in nutrients and fiber.
lymeHerx001
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posted
I just talked to the phenologysts (sp?) the guy who draws the blood.
I told him that the docotr didnt believe that testing 8 times positive was indicative of an active infection even though some doctors do believe that.
He told me that this was very unlikelly, that 8 times is more then enough to prove something.
I also asked him about the HIV test. He said that if it were affirmative then even so one would have to go to 2-3 different doctors and its under an INTERPRETATION.
We think we are dealing with science here people, well we are not. Nothing is exact. There is still an interpretation and this is where the DUCKS pevert the evidence like this lady.
Posts: 2905 | From New England | Registered: Sep 2004
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posted
i was also tested for aids early on, not that my doc thought i was a tramp by any means. but just to rule out everything.
and also lymeherx, if you have had any surgeries they will test you for aids before they even touch you!!
At least in Texas they do. so i have had probably 3 or so aids tests.even tho i know that was almost an impossibility, it was still scary.
I'd take the tests just to shut her up & prove a point. Just my Opinion
Posts: 57 | From Texas | Registered: Apr 2009
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lymeHerx001
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well Im not going back to her. I know allready that she wont change her mind.
She doesnt believe in long term abx nor does she believe that an 8 times postive mycoplasma pnemoniae test means that I could possibly be infected with a stealth pathogen that causing all my problems.
The burning in my feet are another issue too!
I cheated twice this week with my diet and also took too much levaquin. My feet are KILLING me today.
Right now they feel like someone is pulling the skin off from the bottom of my soles.... AHHH im in very bad pain today.
Its not good. My legs feel like someone is twisting each muscle fiber with a WRENCH!
Posts: 2905 | From New England | Registered: Sep 2004
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lymeHerx001
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HIV tests Normal: No HIV antibodies are found. Normal results are called negative.
If an antibody test is done during the seroconversion period and is negative, repeat testing is needed. Most people have antibodies to HIV within 6 months after becoming infected. If a repeat test at 6 months is negative, there is no infection.
Another test to look for genetic material can be used to find infection in people who still have a negative ELISA but who may have a chance of being infected.
Uncertain: Test results do not clearly show whether a person has an HIV infection. This is usually called an indeterminate result. It may occur before HIV antibodies develop or when some other type of antibody is interfering with the results. If this occurs, a PCR test, which detects HIV RNA, may be done to see if the virus is present.
A person who still has indeterminate results for 6 months or longer is called "stable indeterminate" and is not considered to be infected with HIV.
Abnormal: HIV antibodies are found. These results are called positive.
A positive ELISA is repeated using the same blood sample. If two or more ELISA results are positive, they must be confirmed by a Western blot or IFA test. The ELISA test can cause false-positive results. No one is considered HIV-positive until he or she has a positive Western blot, IFA, or PCR test.
What Affects the Test Factors that can interfere with your test or the accuracy of the results include:
The use of corticosteroids. Antibody testing during the seroconversion period. Having an autoimmune disease, leukemia, or syphilis. Drinking too much alcohol.
^^^^^^^^^^ *********************
so it seems this test ising reliable either.
What Affects the Test Factors that can interfere with your test or the accuracy of the results include:
The use of corticosteroids. Antibody testing during the seroconversion period. Having an autoimmune disease, leukemia, or syphilis. Drinking too much alcohol.
Posts: 2905 | From New England | Registered: Sep 2004
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lymeHerx001
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they no nothing Posts: 2905 | From New England | Registered: Sep 2004
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lymeHerx001
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it says that if you have syphilis it might effect the results.
Sphilis is a spyrochete, also is Lyme. So does that mean that the test will be inaccurate?
Posts: 2905 | From New England | Registered: Sep 2004
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lymeHerx001
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Posts: 2905 | From New England | Registered: Sep 2004
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Are you still looking for an answer about whether lyme (as a spirochete) will afect the HIV test? The answer is an emphatic no. HIV testing (unlike lyme) is highly accurate, but the process is very similar. First it must have a positive elisa, then a positive WB. If both those hold (at this point the liklihood of being infected is well over 99% given the high specificity) they then procede to a PCR to determine viral load (where they look directly for the virus, not the antibody response).
So, no...the testing series is very accurate (high sensitivity and high specificity) and you are extremely unlikely to have a false positive (or negative) with lyme disease.
Posts: 99 | From Bucks County, PA | Registered: Aug 2008
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lymeHerx001
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So your saying the HIV test like the Lyme test is accurate.
I have been hearing all along on this board that the Lyme testing is inaccurate, thats why we go to labs like iginex.
Also then the fact that I tested 8 times + for mycoplasma means something is going on. This doc thought nothing of it!
Posts: 2905 | From New England | Registered: Sep 2004
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lymeHerx001
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I went back to the doctor (duck) today and it turns out she is a very nice lady.
Last time I saw her I had taken Lyrica the night before and I was in a pessimistic COMA!
I explained to her everything again. I was right about the HIV, because I omitted the consent form they did not give me results. So I dont have to worry about that. I dont want any false positives.
Everthing else was normal. Normal sugar, normal SED rate. HEP was negative. Quest Lyme was negative.
Mycoplasma IGG was positive but the IGM was below range and now considered negative.
I then told her "well Im taking levaquin and that could have hit it" she told me that I never told her that before and she doesn't believe in taking long term antibiotics for this kind of infection.
She basically doesnt believe in mycoplasma as a causative agent in fibromyalgia. But I did get her to admit that she believes in fibromyalgia and also told me that my symptoms were not psycogenic.
I then asked about MS. She said they look for plaques in the brain (My MRI was neg) and then she recommended 2 neurologists.
I told her that the ones I went to at Yale were terrible and she agreed that they see to many people for it to matter in my case.
She also referred me to an allergist.
So there...
It wasnt a complete loss.
But I still dont have a real diagnoses. Only a diagnoses from a LLMD and MYSELF!
Posts: 2905 | From New England | Registered: Sep 2004
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seekhelp
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posted
Welcome to the club LymeHerx. Your story told by the ID doc is exactly what they are trained to say. I got the same word for word before.
Idea 1: Dismiss Lyme/possible infection treatable with long-term Abx.
Idea 2: Push patient to 10 more specialists to get them out of their office on another sidetrack.
Idea 3: COme back - repeat direction.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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lymeHerx001
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-------------------------------------------------------------------------------- well she didnt even notice that she didnt have the HIV test!
So I was making a big deal out of nothing!!!
Posts: 2905 | From New England | Registered: Sep 2004
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posted
Everytime you go see a duck you're casting your vote and giving them business when they shouldn't even have a license.
Posts: 499 | From Indiana | Registered: Oct 2007
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lymeHerx001
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well she believes in fibromyalgia, but not a chronic infection. Ohh Great/
Posts: 2905 | From New England | Registered: Sep 2004
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