posted
I had this very severly for years! Was couch ridden, as I called it. Lost my real estate license during this time.
I have been treating for about 8 months. This is the one symptom that has improved. I can't complain about that! Though now that I can do more things the arthritis pain is coming out.
I do take several supplements, vitamins, and detox. That might help you also.
Make sure you are tested for viruses too. EBV (the one that causes mono) can come out while your immune system is down. This will make you tired all the time. That is what I think my problem was. Olive Leaf Extract is good for that.
Best of luck! Amy
-------------------- My lyme disease blog: http://lymetimes3.blogspot.com/ One BIG Lyme family! I tested CDC + 10/08 My mom Igenex + 11/08 & My brother Igenex + 4/09, My 2 boys some + & IND bands, clinical diagnosis 3/09 (youngest has Aspergers too) Posts: 470 | From Painesville, Ohio | Registered: Mar 2009
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Fatigue plays a big role in this illness. Until you see your LLMD and really know what you are dealing with, including co infections, viruses such as epstein barr, cytomegalo, mycoplasma, different types of herpes infections, etc.
it will be hard to really give advice. With treatment many people see an improvement with fatigue.
Proper diet is important and that is something you can start now. No junk food. A a low carb high protein diet works best for most, especially if you will be on ABX it's critical in order to avoid systemic candida, which you may already have, no processed foods, juice, excessive coffee, sugar (that means cake, ice cream, etc.) starchy foods basically an adkins type diet.
You will actually feel more energy eating that way. Organic is best if you can swing it or make the best choices where you can.
Also vitamin supplementation will help. Magnesium is very important, B complex and sublingual B12 will help with fatigue (IM shots work best) a good quality multi and so many more lyme specific nutrients that are too numerous and overwhelming to mention now.
When you see your LLMD and start treatment you will learn lots more about the supplements that will help you but for now you might want to take a good B complex and subligual B12 and magnesium.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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posted
Thanks for replies..yes I did start taking some
vitamins..that was recommended to me, the B
Complex and magnesium, I threw in Fish oil too,
since it seems to be healthy too. I do struggle
with my diet, seems that I crave the sugar, and
also love my coffee, but the most I may have is
about 2 cups in morning..junk food is going to
be very hard for me to stop..its the only thing
I have left to enjoy! I will keep this in mind
though, and try and cut back. I am just dragging
myself through the day right now. I am about
ready to colapse right now, so I will have to
log off. I am sick of this crap already! Hoping
the vitamins will kick in too...feeling
frustrated! Thanks again, Fran
[ 06-09-2009, 02:01 PM: Message edited by: Fran_40 ]
Posts: 72 | From South Jersey | Registered: May 2009
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Fran it will get better. The B12 injections really
help me for the symptoms. I hate meds. I hate
shots. But the results are the pie.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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posted
Hi Pinelady. Where can I get B12 injections?
Does my Dr. have to prescribe that? I will do
anything to get my energy back again. Nothing
is getting done around my house, like I want to.
I was usually very good at keeping up, but it has
become such a chore for me! Among just enjoying
life period! Thanks for the info everyone!
Posts: 72 | From South Jersey | Registered: May 2009
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
My LLMD prescribed it. It is wonderful help. And really inexpensive for as much as they help. Cyanocobalam 1000mcg. 1 ml. IM. You can use the insuling syg. but has to be longer needle for IM sadly.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
IM magnesium shots really help, too. They really help relax your muscles so you don't feel so tired, plus we need magnesium so desperately.
I take B complex, B12 and Mag sulfate in one shot in addition to my oral B and magnesium pills.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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posted
I have been on treatment for 4 1/2 years and am still exhausted!!! I was recently diagnosed with EBV which is probably part of my problem. I also think low Vit D, low Vit B, low thyroid, and low cortisol play a role. I feel like I'm crawling through life.
Posts: 8 | From NC | Registered: May 2009
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posted
Well, let's see. I pray and then kick my carcass out of bed and slog through the day. It's like walking around with a sixty pound pack on... OK, maybe a 50 pound pack. Don't have much of a choice so I just make it happen. I figure it's making me stronger. Did I mention the prayer? Posts: 386 | From Southeastern PA | Registered: Oct 2007
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WildCondor
Unregistered
posted
Best for fatigue, Methyl B12 shots, get a Rx from your doctor, they are awesome for energy and stamina.
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