posted
Oh well I'll have to log on later and see if it's posted.
Posts: 743 | From New York | Registered: Apr 2009
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Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
Something is screwy...last post (comment) says June 10th at 5 something pm.
That is impossible.
I live on the east coast. It is Wed., June 10th and it is only 2:43pm right now.
Posts: 9481 | From Sunshine State | Registered: Mar 2001
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bettyg
Unregistered
posted
twister, thank you so much for deleting that. i feel so much better about that... giving him the privacy he deserves.
glad keebler spoke to you on a journalist' viewpoint too so everything was correct.
i'm looking forward to hearing this as well. thanks for taking the initiative and trying and your efforts/work on this as well.
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Wow, I can't wait to hear this either. Very gutsy Lymetwister - I'm impressed.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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Ocean
Frequent Contributor (1K+ posts)
Member # 3496
posted
Uh oh...where did LT go?? Hopefully the government hasn't gone to her (I'm thinking it's a girl, if not, I am sorry!) house and taken her computer!
seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I seriously wouldn't either - I'm not kidding one bit.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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bettyg
Unregistered
posted
she just is taking time off the board; doesn't live on it like some of us lol kidding
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
Lymetwister is a guy.
-
Marnie,
about the time of a post, some computer programs are set to record entries on GMT, Greenwich Mean Time (sort of an international measure).
Just as LN shows posts only in ET regardless of the time zone of the poster, that other site may have theirs set in a different time zone.
lymetwister
Frequent Contributor (1K+ posts)
Member # 19590
posted
Ok, I called him back as Keebler suggested, just to make sure he understands what I'm doing with the audio file.
His wife answered, who speaks clear english, no accent. she also sounded younger, so I told her what I was about to do and asked her if she could make sure he understands. Dr. Burgdorfer is sharp as a wit, but his accent is so strong, so I wanted to make sure he understood everything.
He came on the phone next and I explained exactly what was going to transpire with the file. He has no idea what an MP3 file is, but he knows a little about the web. He again told me that he had no problem with me posting this information, but this time, he asked me if I had a transcript to review.
I explained to him that this was a 50 min. phone call and that I had no transcript, but would create one for him if he so wished for a final approval. I told him, I could also make a copy of the audio on a disc, but he then told me he had no way to play it. So, a transcript it is.
So now, I'm stuck typing a 50 min. conversation, and have to send it to him by mail. I will wait for his approval and then I guess he will give me the ok to upload the audio file. If not, I will have to upload the transcript somewhere, as I'm only going to type it once, and then I will give you guys the link to it.
The bottom line is that there is NO Conspiracy going on that he is aware of. His statement that "He didn't tell them everything" only meant that there was so much more to discuss, but nothing to hide.
The article played with that little line there at the end to make us feel like there was more going on than what we already knew. But there isn't.
Dr. Burgdofer is a great guy, and the reason the conversation was 50 min. was because he was saying alot, some of which was repetative, or I had to ask him to restate many things due to his accent.
He basically told me that the answer is simple re: the Lyme spirochete. And that is: Once science understands the physiology of the organism, then they will understand how to treat it. He says, it's a simple thing, but at the same time, very complex.
He says Serology is the same thing, and it's up in the air.
I asked him if anyone had picked up on his work after he retired and he told me, not directly. Apparently, there are some researchers in other countries that are studying the Lyme bacteria, but he is not aware of their progress.
He had no secrets to offer, nor anything that will get any of us better sooner. He is aware of the big debate and knows about ILADS. He feels bad for all of us who have to suffer and can't get Dr.s to listen to us.
He has never heard of Salt/C or Rife.
He was even so kind to take my personal address and offered to send me the names of some doctors that would. I don't know who these Dr.'s are or where they are.
Regarding antibiotics, Dr. Burgdorfer doesn't know what works best or if any of them even work at all. He states he was not an MD, but a research scientist. He worked with ticks and infected mice, rabbits, etc. to see how the spirochete would change once infected.
Although he is known for identifying the organism, his career did not provide him enough time to study the Spirochete as he had wished.
That was the gist of the conversation. I will have to type it all out and send it to him as I said above.
I'm glad I made that second call, even though he really didn't seem to have any concern about me posting the conversation. I think he was just being professional with the second call asking for a transcript.
It does appear that I made a new friend, as he offered me to call him anytime for anything. His heart goes out to us all.
I am so sorry to everyone. I'm sure everyone would be just be happy to hear his voice. I felt like I was talking to the U.S. president myself.
I promise I will follow up on this. I don't do much during the day, so to take time and type a 50 min transcript shouldn't be so bad.
Please don't kick, scream, and holler at me. My intentions were good. Now, I just created work for myself, but it's good work, so I don't mind.
LT
Posts: 1227 | From District of Columbia | Registered: Mar 2009
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Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
Sorry, this is in response to Keebler's comments above. I'm a tad slow at typing.
When you go to 'your profile' and then to 'edit your profile'... you can change the time zone shown on LN. Mine is set to Pacific. I had to do a +3 hour thingy to get it to work.
Now I am not half as confused as I use to be. Posts: 7052 | From Colorado | Registered: Mar 2003
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
Melanie,
Oh. Thanks. I thought I tried that but it still shows that I post on ET. I, too, am Pacific time and it is 1:06 here but this will post as being 4:06.
----------
LT,
Fabulous. You write very well and I really appreciate the extra effort you have taken here. Thanks.
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
sorry to take this space for a test but it's the only way to see. I made that adjustment, this should post at 1:09, which is what it is here on the west coast.
-
edit - well, now I'm really confused. the time did switch but it switched for everyone, too. I have to go lie down. this is far too complex. LOL.
posted
Thank you, LT.
Posts: 175 | From SW PA | Registered: Mar 2008
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Bugg
Frequent Contributor (1K+ posts)
Member # 8095
posted
Lymetwister--thanks so much for your efforts...
It's sad that we're not closer to a cure...I'm sure Dr. Burgdofer would be thrilled to witness that during his lifetime...
Is anyone aware of a researcher who is solely focused on a cure for chronic lyme?
(I know Dr. Fallon's team at Columbia is studying the disease but I'm not sure what aspects they are focusing on)...
Posts: 1155 | From Southeast | Registered: Oct 2005
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Gary, Thanks for all this. I was going to ask you if there was any way to get a transcript, some of us like me can comprehend the written word much better than the spoken.
I'm relieved you posted that there was "no great conspiracy" etc.....you gave us the bottom line answer that we were looking for, so it puts a lot of anxiety (which I know you are an expert at!) to rest.
Could you drop me an email when you have a minute; I just need to ask you a quick question. I have my pm 's turned off here because I get overwhelmed by having too many places to check for messages.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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bettyg
Unregistered
posted
gary, thanks for calling willy back & a brief update what your conversation was actually about ....
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Thanks Twister and All.
Sometimes ya just gotta go for it. And everything
worked out great. But it looks like dinners off.
Darn it.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
It's a noble effort, but IF there is a conspiracy or more to it not to be disclosed to the public, there is no way in #### he'll disclose it to a random caller.
My best friend for 20 years was in the Air Force 10 years ago. He was in Colorado Springs. To this day, he can't tell me what he worked on due to signing a govt' confidentiality agreement. Nothing would make him budge. Obviously, they put your feet to the fire.
I'm sure whatever he worked on was nothing relative to possible bio-warfare organisms so you can imagine how that is protected.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Kinda reminds me of the whole Roswell thing....UFO cover up.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
TW,
I'd second that option to have a transcript. Sometimes, when listening to a recording if there is even the slightest click I can be clobbered with a seizure. So a transcript would be safer for me. Although, I'd like to try to listen, so if you notice any beeps or clicks, it'd be nice to know in advance.
Thanks, again.
BTW, I spoke with Dr. B many years ago and we had a wonderful conversation. He is a generous and concerned man.
glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Why he doesn't mention the fact that he found Adult Filarial Worms in the ticks as well as the spirochetes is beyond me.
I saw the documentation of this a few months ago from 1984 posted on MD Junction. Can't find it now.
The Filarial Worms can be as bad as the spirochetes because they inflitrate the lymph system. Maybe there isn't a Nobel Prize for worms really good effort tho twister, thanks,
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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bettyg
Unregistered
posted
this has been a most informative post to read; thanks gary for posting it.
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Thanks lymetwister....what an honor it must have been to talk to Mr Burgdorfer!
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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posted
This is almost unbelievable. Thank you thank you LT.
Posts: 847 | From upstateNY | Registered: Dec 2007
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Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
Why did it take TWO YEARS for this interview to be brought to our attention?
Is this interview legit?
Was it posted to get our names and e-mail addresses? If so, why?
My comment was NOT posted.
But I didn't "subscribe" in the upper right corner...necessary?
Many moons ago, I did very well in microbiology class and loved it. (My regret today is that I didn't go into that field.)
The way to destroy a gram negative pathogen is 2-fold:
1. We must destroy the cell wall or prevent it from forming in the first place.
Our own antibodies or antibiotics do the above.
2. Now, if we are "lucky" and Bb has not rebuilt "his" cell wall, to rid CWD (cell wall deficient) forms other things must then "kick in": osmotic pressure changes OR ultrasound - to "finish the job".
I suspect barometric pressure changes also impact the CWD forms...which maybe why we "ache" before storms approach.
Mother Nature may help us out...albeit to a degree.
So...even if we DO destroy Bb's cell walls...we STILL have to deal with the (now) CWD form BEFORE Bb has a chance to rebuild it.
Keep in mind...Bb has MULTIPLE cell walls which makes it MUCH harder to destroy and in "hostile" conditions, when it goes into cyst forms, it is even harder.
Compared to anthrax which has only ONE cell wall.
Many years ago, I sent (via postal mail) Dr. W.B. the Romanian abstract which indicates Mg levels MUST be restored WHILE giving abx. (Both IV doses over MANY days.)
He responded by "snail mail" and I still have it.
He was interested in my ideas about "metals" and said I would be contacted by the then head of the lab.
I never was.
Metals = minerals.
Which one, which one(s) can be used to fight Bb?
There IS more than one.
One of them inactivates/inhibits PLA2. It is lithium.
Another impacts Fe. It is gallium.
And of course, Mg...which IS needed to make our antibodies (along with Ca), IS an anti-inflammatory and anti-histamine, IS needed to make all of OUR enzymes and IS needed to inactivate HMG CoA reductase and halt the cholesterol pathway which IS one of the many pathways Bb takes.
I believe the cure is 2 (or 3) fold:
1. Get the inflammatory cytokines down...BOTH TNF alpha and (esp.!) IL 1 B
AND at the same time:
2. Hit the pathogen. There are many different ways to do this and one way maybe to simply restore the "missing"/depleted amino acids. Other ways include Rife, far infrared, HBO or IV abx. in conjunction with step #1.
3. Be prepared to deal with the "toxins" which MAYBE the dying immune cells which Bb WAS camped out in. Too many cells dying off too fast = sepsis. Our bodies can only process cellular "debris" just so fast.
Benicar works in an entirely different way, but may work.
In days of old, the "Universal Remedy" was in the Merck manual. It was eliminated because of "lack of space".
It was 3 fold:
Mg oxide, tannic acid, and finally... activated charcoal.
Think very very carefully about HOW the above would/could work.
Look very very closely at the nutrients...vitamin C + green tea extract = reducing inflammation
Alanine, lysine, proline...and HOW they work. What IF these critical amino acids were depleted by Bb?
I believe it IS possible to eliminate this infection, but it likely will take TIME and a "significant level" of treatments.
We must be careful because the body can only handle so much "die off" just so fast.
Go slow. Sepsis is deadly.
Posts: 9481 | From Sunshine State | Registered: Mar 2001
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losferwrds
Unregistered
posted
quote:Originally posted by lymetwister: I called him and he was very very nice on the phone. He answered many questions and he didn't shut down.
In fact, quite the opposite. He was full of information and invited me back to call him anytime with any more questions.
I recorded the conversation and he agreed to allow me to share it with everyone here. I'm converting it to mp3 format now and will upload it shortly as soon as I can find a free hosting site.
He answers the big question in the article presented at the beginning of this thread.
I again asked him towards the end if any more questions arose, could I call him back. He answered absolutely yes, or something to that notion.
LT
Why don't you put the recorded interview you did on youtube, make it the audio portion of one of your videos people do it to post music all the time?
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bettyg
Unregistered
posted
los... he is contemplating various things, but his primary concern now is typing up his 50 minute conversation and sending that in paper copy to willy.
Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
Is there a bottom line?
How do we destroy that pathogen?
Does he know?
A medical transcriptionist could type up their conversation really fast (they are used to doing that):
Medical transcriptionists listen to dictated recordings made by physicians and other health care professionals and transcribe them into medical reports.
Posts: 9481 | From Sunshine State | Registered: Mar 2001
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posted
I found this interesting in the link posted above:
"After all, I have a sick person here. He is trembling all over. His synovial fluid is full of spirochetes. But when it comes to blood, it's not there. "
This maybe explains, why most abx doesnt help us. They dont cross the BBB enough.
Posts: 226 | From earth | Registered: Sep 2007
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sizzled
Frequent Contributor (1K+ posts)
Member # 1357
posted
Thank-you, Lymetwister.
Nice to hear words from this honest scientist!
Posts: 4258 | From over there | Registered: Jul 2001
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bettyg
Unregistered
posted
twister, did you receive a PM from me; i haven't heard back from you. thanks
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Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
Do we know what happened to the forthcoming transcript?
Posts: 7052 | From Colorado | Registered: Mar 2003
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gemofnj
Frequent Contributor (1K+ posts)
Member # 15551
posted
Someone mentioned Plumb Island in this link and I found this when I googled lyme and biochemical war fare.
Very interesting, and very scary. Written by a doctor, but not sure if it is legitimate or propaganda.
Im a little slow and have suffered from lyme but, could this actually be the reason OUR government and doctors dont want to put money into research, and they DISMISS
lyme exists because they will discover that americans brought a soviet over to this country to test out germs on us????
What the #$@!!!
and if that is the case, why dont they just do something like a 'hold harmless' agreement and move forward so that millions of people can get treatment!!
good god what is going on here???
Posts: 1127 | From atlantic city, nj | Registered: May 2008
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posted
I've been away for awhile and was wondering if there is a post with the phone interview yet. If so, would you mind giving me the link as I can't find it doing a search.
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I never read this before and it is very interesting. I live about ten miles from Hamilton MT where Willie lives. I did not realize he is still there, and still alive. He must be pretty old by now.
I would contact him if he had any information about treatment or local doctors that know something about how to treat. Sounds like he doesn't.
I have a friend whose husband works at the lab and I have told her they can talk to me if they are interested in knowing what the local ticks carry as I tested positive for three infections. No one is interrested.
She said when her family moved here people at the lab warned her husband to be very careful of the ticks as they carry some "nasty stuff". Yet no one in the community knows that there is anything to be concerned about and the doctors insist there is not lyme here.
This is all so strange to me.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Update on lymetwister,
He recently went back on the salt/c protocol and Parastroy an antiparasitic herbal. He posted some pictures of worms and parasites that were exiting from him as a result of this.
It was within the last week. Maybe he will come along and give us a further update.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
I do believe the lesions many exhibit are a direct relation.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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posted
So, what happened to the transcript? Anything? Does he need help transcribing it?
Posts: 8430 | From Not available | Registered: Oct 2000
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posted
Lymetwister has been very sick which is probably why he wasn't able to get the transcript out.
He did sum up the conversation though on page one of this thread and it doesn't sound like we missed anything life shattering.
Lymetwister basically said that Dr. Burgdofer said there is no conspiracy that he knows of and nothing to hide.
So I don't think we are missing out on any revealing secrets without Lymetwisters transcript.
BUT although that is what Dr. Burgdofer told Lymetwister I am not sure if that is the case.
I am sure that Dr. Burgdofer knows things that he can't tell us. If he knew any classified information he could never tell that without breaking the law.
The reason that I think Dr. Burgdofer knows more than what he is telling everyone is because of what was said in that original article that was posted.
Here is what was said in the article:
quote: Just as we began filming, there was a pounding on the door, and we found ourselves facing someone who turned out to be a top researcher at the nearby Rocky Mountain Laboratories, a biolevel-4 NIH research facility.
Standing on the porch, our uninvited guest said, ``I've been told that I need to supervise this interview. This comes from the highest levels. There are things that Willy can't talk about.
There is no way that people would be sent over to supervise the interview if Dr. Burgdofer didn't know some things. They even stated that there are things he can't talk about.
What those things are? Who knows!
Dr. Burgdofer says he isn't aware of any conspiracies. Maybe that is the case but he certainly knows some things that he isn't allowed to share.
-------------------- Sick since 10/2001. Tested CDC positive for Lyme 10/2008 through Quest and Igenex. Started treatment 1/2009 with LLMD. Lyme, Erichilosis, Chlamydophila Pneumoniae, Q Fever, Strep Syndrome and probably a few others I am forgetting. Posts: 451 | From Virginia | Registered: Feb 2009
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onbam
Unregistered
posted
If having an NIH heavy tail him to the interview and coerce him isn't conspiracy, I don't know what is.
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really good effort tho twister, thanks,
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