posted
Well, she passed more worm looking things today.
The Dr. is going to see her on Friday.
She thinks it is just mucus.
Posts: 94 | From Kansas City Area | Registered: Jun 2009
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glm1111
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posted
Holly,
I hope you saved them to take to the doctor. Please don't let your doctor dismiss them as mucus. What made her come to this conclusion? Did you send her a picture?
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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hshbmom
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posted
That is NOT mucus....possibly shreds of intestine, but the pediatrician will never know unless she sends a sample to pathology for examination.
But, I wouldn't stop there. I'd demand she also send a sample to a human parasitologist at a large teaching hospital or university.
The more professional opinions the better. Otherwise the pediatrician is just blowing you off. A clinician without clinical curiousity is a poor physician. Few doctors do their own labwork anymore. Perhaps an urgent care physician would have less constraints compared to a ped. in a pediatric practice.
You're the parent. You must get some answers. Don't accept some lazy pediatrician's trivialization of the problem.
Someone may advise you better than me...Great Smoky Labs or something like that may run stool tests for parasites. They may have changed their name.
In the meantime, put the worms & a good glop of the diaper contents into a ziploc bag, seal the bag, then put that bag inside another baggie. Store in the refrigerator. This is to prevent them from drying out. I see you don't go to the doctor until Friday. I hope they don't get too dried out by Friday. If you have enough worms, put a couple in a film cannister of alcohol.
It would be better to put them in some formaldehyde, which you could get from a veterinarian. If you explain what's going on to the vet's receptionist, they may give you some formaldehyde in a small medicine bottle. The vet will likely be curious as to what you've found.
Beware, don't put any worm samples in water. That will distort them and they may rupture in water.
Posts: 1672 | From AL/WV/OH | Registered: Jun 2006
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hshbmom
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You may want to look in your local library for a textbook, such as the Atlas of Human Parasitology.
If it's not in your public library, then you'll probably find a copy in your hospital's library. You're allowed to go there to find information.
I found several human parasitology sites online, but they didn't have photos of specimens that were "fresh." The photos I found weren't very helpful.
Also, you may want to work with a international board certified lactation consultant to figure out the allergy/intolerance issues.
Holly, does this worm appear to have segments? Are the worms all the same length? Or do they to appear to have broken into various length, but look the same otherwise?
In a photo it's hard to tell. A segmented worm will be a tapeworm. Your history of eating sushi is very significant. You may learn this is some sort of fish tapeworm.
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hshbmom
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CDC information about the freshwater tapeworm:
Transmission of the tapeworm would be the big question here. This is a baby who doesn't eat sushi. The cyst must be eaten to be able to pass to the intestines to develop. How could an infant could get infected with this particular tapeworm.
Posts: 1672 | From AL/WV/OH | Registered: Jun 2006
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I had the same thing and dissected a "cocoon" of them.
They don't seem to have the shape of a tapeworm. Tapeworms tend to flatten out and look like a piece of shoelace...rectangular.
Thats just from pictures i have looked at....but i'm sure there are tons of different strains and variations.
But from the worms i had...which is the same as Holly S's baby....they seem like something else.
Well i think we can all agree that they are not mucus.....and if they "are" get a good explanation of why she thinks that.
Posts: 9 | From PA USA | Registered: May 2009
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hshbmom
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posted
I agree that these don't appear flat as tapeworms tend to be. They don't appear to be round like a roundworm either. They don't appear to have a head and tail.
We need an expert opinion!
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treepatrol
Honored Contributor (10K+ posts)
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Lymephoto said its under Borrelia but its not borrelia its deffinatly something though? Hers another pic
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
I saw the new pediatrician today and can I tell you I just love her.
I took in my laptop with the pictures I posted and more pictures.
She said it is bloody mucus. She checked her rectum and saw an anal fissure and showed it to me.
She said it is usually caused by a dairy intollerance.
She put me on a very strict diet these next two weeks to see if it clears up.
I cannot eat ANYTHING with dairy including casein or whey, soy, eggs, gluten or any of the fruits that seem to cause her to break out.
She has also prescribed a cream for her fissure and told me to put her on probiotics.
She has also written me orders for blood allergy test and also checked her hemoglobin.
She does not think these pictures are parasites.
She was very thorough and answered all my questions and I am very satisfied with my appointment.
I see her back in two weeks.
Thanks for all the support!!!!!!
Holly
Posts: 94 | From Kansas City Area | Registered: Jun 2009
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glm1111
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posted
Holly,
I am glad you love your pediatrician, and I don't mean to burst your bubble, but for her to state that those parasites are bloody mucus is really scary.
They are NOT bloody mucus!. Your baby could have an anal fissure just from the parasites!
This kind of ignorance about parasitology in the medical community is a big part of the reason why we are all so sick.
Allergies are a symptom of parasites. I pray to God your baby will be okay
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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posted
We will see what happens when I cut out all those foods for the next two weeks. She is going to see her again in two weeks.
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hshbmom
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posted
Did the new doctor send a sample to pathology for analysis? ...to verify if it truly was a blood clot?
I believe she saw a fissure, but that does not answer the real question as to the composition of this object.
Blood would not look striped or segmented. Neither clots nor mucus would look like uniform strings. Clots would look clumped.
I agree with Gael, this is NOT bloody mucus.
Posts: 1672 | From AL/WV/OH | Registered: Jun 2006
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Ocean
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posted
Holly,
I'm sorry, but I will have to agree with the others. The photos do not appear to be 'mucus'. Mucus often appears to be transparent especially at the sides without a basic shape. The figures in the photos have a definitive shape, and a bloody mucus wouldn't normal be stained completely like the figures if it was due to a fissure in the anus, as the mucus would quickly pass through.
I worked in a level 3 Neonatal Intensive Care Unit from 2005-2006 (then I got pregnant and relapsed with what I now know is Lyme).
We had many babies with anal fissures as they were very ill neonates. I remember clearly as we had to put ointment on it.
None of the babies had thing appear in their stool like what you pictured. None.
Also, what about the fact that this 'mucus' has suddenly stopped appearing? If it truly was caused by an anal fissure, your infant would continue to secrete this bloody 'mucus'.
If your child was eating, I would suspect something in the diet, but with breastmilk, it seems impossible.
Sorry to be a downer, but I know from experience that most doctors tend to under-react (unless they are in an intensive care until, in which case they over-react!).
Most MD's don't realize that parasites are a problem in the 'super clean good ole US of A. I think there are a lot of sick people walking around who could be helped with a parasite cleanse.
Anyhow, if your baby has stopped passing them, perhaps something killed whatever was passed in the stool and it is gone. I really don't know.
I'm sure this has been extremely stressful for you, you are a good mama by trying to locate a physician who will help your little one.
Good luck!
Ocean
ps...I'm not a doctor and cannot offer medical advice, the aforementioned is my opinion only and should be perceived only as a personal opinion.
She wants me to adhere to the very strict diet to see if it clears up before we proceed.
She has 5 children of her own and has had parasite issues with them before.
She even told me how she had poop in her freezer on several occasions from her kids.
I really don't feel like she was just trying to blow me off.
She is sending me to our Children's Hospital for some blood work and if I see any blood in her stool she is sending me to a specialist at the Children's Hospital.
They are going to monitor her diet (what I am eating), her stools, weight, behavior and symptoms.
She didn't just say "this is just bloody mucus so just don't eat these things that could cause it".
She is doing what most doctors do and starting with the obvious causes.
If I don't feel like she is taking this as seriously as I am then I will continue on to the next doctor.
If I see anything like this again I will bag up the diaper and head straight to the office with it and show it to them.
Posts: 94 | From Kansas City Area | Registered: Jun 2009
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posted
Also, my mom has a very nice microscope so I will be picking that up from her.
Next time I see anything like this I will get a closer look at it. I can't tell on these pictures if it has segments or not.
Posts: 94 | From Kansas City Area | Registered: Jun 2009
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Ocean
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posted
Holly,
The poop in the freezer is too funny! Good for her for being so open! That's great that she is on board with parasites, I didn't realize that.
Hopefully you will find some answers. I know how awful it is as a mom to worry about your child, esp when they are so young.
Sounds like your baby is going to be in good care.
That's great =)
Let us know if it clears up and stays away, hopefully it will and you can just worry about yourself getting better.
posted
Yes, she is also open to the TBIs. I told her I was recently diagnosed with Rocky Mountain Spotted Fever.
I told her I was surprised I wasn't in the hospital or dead for as long as I may have had it.
She said a lot of people have these diseases and don't know it.
She said the real problem is the "healthy" people walking around with it get bit my mosquitoes and then the mosquitoes pass it on to the next person when it bites them.
WOW!!! I was very surprised by her saying that. Most other doctors I have dealt with just roll their eyes at me when I mention any TBI.
I do feel like my baby girl is in good hands and I am on top of everything.
I can become very neurotic about my kids's health when needed.
I had to demand a referal to an ENT for my oldest daughter when she was 3.
Her tonsills were so big they completely cut off her airway at night when she slept on her back.
I had to sleep with her and keep her on her side.
Her ped at the time told me not to worry about it and ENTs don't remove tonsills anymore anyway.
I demanded the referal and the ENT. He took one look at them and told me it was urgent we have them removed.
They were removed the following week.
I have always been a huge advocate for my children. My husband thinks I am too over the top but I don't think so. :-)
Thanks again for all your concern and support. I'll keep everyone updated.
Now back to getting myself better.
Posts: 94 | From Kansas City Area | Registered: Jun 2009
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hshbmom
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My kids saw the photos of the diaper contents and thought it was bacon & eggs.
EEEEEEEEEEWWWWWWWWWWWWWW!!!!!!!
Posts: 1672 | From AL/WV/OH | Registered: Jun 2006
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posted
hshbmom, that is HYSTERICAL!!!! That gave my hubby and I a great laugh. Thanks!! :-)
Posts: 94 | From Kansas City Area | Registered: Jun 2009
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that reminded me of a game we played with our girls one night.
We blindfolded them and brought things close to them to smell and they had to guess what it was.
I actually got a dirty diaper and had them smell it. My oldest guessed it was french toast.
Either the baby's poop smells really good or my cooking smells really bad!!! :-) Too funny.
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