posted
I think im developing some obsessive compulsive behavior. Well... this one is kinda scary for me, im finding myself double and tripling things i do. The only way im NOT doing this is if im active, whether thats with friends, mingling, going out, etc... I have been VERY the last (3 weeks working out, going out, having fun, laughing, to keep it simple trying to be as normal as possible. Surrounding myself with positive people. Im keeping things in balance or atleast trying to if yall know what i mean. im eating right, doing things better, then ever actually, but NEURO symptoms have seemed to have came on stronger... Lights are getting to me worse, everything is intensified in the NEURO Department... I dunno really where to go from here, but i do know i will be telling someone (my dr) the honest truth about this. Any info/comments/ideas whatever comes to your mind would be appreciated!!! Thanks, Brian
Posts: 217 | From Everywhere | Registered: Nov 2006
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posted
Dear notkrazybrian, I have OCD behavior as well. Some of the most absurd things bother me. I have no idea why! Cognitive Behavior Therapy is recommended for this. It does help, but so many things set it off.
Germs are one of the items I fear the most. The other is gluten, because I get violently ill from a microscopic amount. Those things would not be worrisome if my health was better. However, other things have no explanation. When putting groceries away, I cannot stand to leave a can upside-down on the shelf. I will constantly think about it until I flip it right-side up.
An article I recently read stated that OCD tendencies typically are a coping mechanism developed to handle anxiety. You worry something bad will happen if you do not check the doorknobs three times in a row, for instance. Exercise probably calms those impulses for you because it relieves anxiety. Once you realize the world has not fallen apart when you do not do these tasks again and again, the need to participate in the behavior lessens. Eventually, you will break away from it. Although you may never completely get rid of the impulses, you will learn to control them so they do not dominate your life.
Sincerely, Jin
P.S. Celebrities are not immune to OCD. Many have suffered with it for years. Some are very well-known. They include: Rose McGowan, Mark Summers, and Howie Mandel. After seeking treatment, they are better. However, certain impulses do still exist but are controlled.
posted
Yes, me too. Was worse earlier in treatment. Has eased off now, but not gone entirely.
Posts: 8430 | From Not available | Registered: Oct 2000
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LisaS
Frequent Contributor (1K+ posts)
Member # 10581
posted
I was born with OCD. I do things in numbers. Like I have to touch things four times. (Always in four) Or count to four before answering a question, things like that.
Before lyme it was bad, in my head, but if I was in public or with people I could ignore my impulses until I was alone.
But now after 18 years of lyme it has gotten so out of control. The other day I bent down in my yard to smell a rose on my rose bush. And all of a sudden I felt like I had to smell every flower in my yard. To make things even. It was horrible.
And when I go in and out of doorways I have to stand there until things feel "right". My neighbors gotta think I'm nuts. (So do I)
None of the drugs have helped me and only give me side effects, but I hope that you are on treatment and that will put an end to your OCD. If you dind't have it efore lyme I would think that it is just a symptom that will go away for you...
posted
ill get back to this more later, but i will respond to the last part of lisa's response i had signs of OCD my whole life, but at minimal levels nothing ever to stop me from doing anything... more like obesssions, now im starting to have the compulsive behavior, brian
Posts: 217 | From Everywhere | Registered: Nov 2006
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
That was an early symptoms of my daughter. Sometimes she gets facial tics, sometimes she counts syllables before she speaks.
She had both medication and cognitive therapy for this. Helped, but not cured. Depends on circumstances and herxing.
Right now a night class in geology is making her a wreck. She has had to take a valium at night so she doesn't spin out of control.
Posts: 2903 | From AZ | Registered: Feb 2006
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posted
Hey Marcie, Its cleared out now!
Posts: 217 | From Everywhere | Registered: Nov 2006
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tickbattler
Unregistered
posted
My 5 year old son has OCD now. He has been in Lyme treatment for a year and many of his physical symptoms are gone, but he still has behavior problems. He was on bactrim, omnicef, Mepron and artemisinin for about 8 months. The OCD started at that point.
A couple of months later we switched to rifampin from bactrim. His psych issues and ocd seemed to get worse for two months (herx?) until we swithced to biaxin from omnicef. In only 2 weeks, he seemed to have a very small improvement from that switch. So he's now on rifampin, biaxin, mepron and artemisinin. We are hoping this will do the trick.
Our ped LLMD (Dr. J) told me that bart, lyme or mycoplasma can cause the OCD. He said it does go away with treatment. In some a few cases, he said certain psych meds are needed in addition to the abx to break the OCD cycle, but he said it will go away. I hope he is right.
My son claps or makes other movements before doing certain things. He also is very concerned about what order he does things and what he wears (and even what his twin brother wears or plays with).
would you kindly break up your long paragraph into MANY SHORT ones using my guidelines below for us neuro folks who can not read it or comprehend it at all. use my guidelines below for editing. hug thanks
Welcome; I'm so glad you found us!! You've come to the right place for education and support!
Betty's suggested POSTING GUIDELINES . many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``TWICE`` after each paragraph; we need that space for comprehension.
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. ------------------------------------------------------
People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.
The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately. *******************************************
This explains the medical politics around lyme WHY you need an ILADS-educated or ILADS-member LLMD (and there are also some ILADS-member LL NDs (naturopathic doctors):
You should also be evaluated for coinfections. Not all tests are great in that regard, either, but a good LLMD can evaluate you and then guide you in testing. One of the top labs is:
"With most infections, your immune system first forms IgM antibodies, then in about 2 to 4 weeks, you see IgG antibodies. In some infections, IgG antibodies may be detectable for years.
Because Borrelia burgdorferi is a chronic persistent infection that may last for decades, you would think patients with chronic symptoms would have positive IgG Western blots.
But actually, more IgM blots are positive in chronic borreliosis than IgG. Every time Borrelia burgdorferi reproduces itself, it may stimulate the immune system to form new IgM antibodies.
Some patients have both IgG and IgM blots positive. But if either the IgG or IgM blot is positive, overall it is a positive result.
Response to antibiotics is the same if either is positive, or both. Some antibodies against the borrelia are given more significance if they are IgG versus IgM, or vice versa.
Since this is a chronic persistent infection, this does not make a lot of sense to me. A newly formed Borrelia burgdorferi should have the same antigen parts as the previous bacteria that produced it.
But anyway, from my clinical experience, these borrelia associated bands usually predict a clinical change in symptoms with antibiotics, regardless of whether they are IgG or IgM." ===========
ILADS The International Lyme and Associated Diseases Society (ILADS) provides a forum for health science professionals to share their wealth of knowledge regarding the management of Lyme and associated diseases.
please get a western blot igm and igg blood test drawn LOCALLY on a mon. or tues. and sent to the below ok! all details are there.
IGENEX , CALIF. BLOOD TESTINGS ...check current $$!
* Please note: What you are about to read below is NOT meant to scare any of you from any lyme testings done; it's meant to be informed PRIOR to going into having various tests done and then be told what the costs will be! * Mine was sticker $$ shock on various testings done by my 2nd LLMD/new to me in 4=06. Those tests/results are found elsewhere in my links/advise.
* Igenex's charges for these below things cost $905, which I figured up the last 2 days for 2 other folks includes
* The below tests were done for ME; you MAY NOT NEED them all ok! :
* western blot IGM & IGG, this is MANDATORY for you which costs $200 total for 2 tests done; 6.09 same prices still. * * ******************************************************* * OPTIONAL ONES ARE:
* co-infection panel for YOUR AREA OF COUNTRY; * PCR WHOLE BLOOD...this is what my LLMD ordered!
It's PREPAY! unless you are on medicare; IGX will file the paperwork & it's FREE to you.
go to www.igenex.com and read over their info. Prices go up twice a year: MAY and NOVEMBER!!
* * have blood drawn MON. or TUES. only; you don't want your blood sitting in post office over the weekend; will ruin the results!
* Also, call 1-800.832.3200 for CURRENT PRICES! * They will also send you a ``test kit'' with their required form, all the test vials, & box to ship it in! OUT OF USA will take longer to receive!
* You need to DOWNLOAD IGENEX's required form.****************************************************** * * MD, DO ,ND, AC, DC are all fine** must sign, date, and show DIAGNOSIS CODE on there why he's ordering the test.
Make sure you show to FAX results and SNAIL MAIL PAPER COPY! My results were lost for 4-5 weeks! Bettyg * * When you get your results, please post them in MEDICAL; * Post ONLY the POSITIVE & IND ones .... not the negative ones!
GET COPIES OF ALL YOUR SPECIAL BLOOD TESTS: western blot igm/igg and/or co-infection tests always!!
* Also, look for post by LYMETOO/TUTU on DR. C's (Missouri) explanation of the western blot IGM & IGG numbers, below!
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otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. 
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