posted
I unknowingly had lyme when I was pregnant and had my son, 3 years ago. He's been pretty healthy, other than little stuff here and there.
Last week he was put on amoxicillin for a sinus infection. Three days after starting it he came down with a fever of 102 F, and no other symptoms. The fever lasted 2 1/2 days and now he has a rash all over his chest and back. He's mopey, but otherwise not complaining of anything else.
Is this my worst fear coming true? What to do now? I have a LL doctor that is likely willing to treat him. My husband and I are terrified of putting him on long-term antibiotics. Especially since he has no obvious symptoms.
Posts: 12 | From West Coast, USA | Registered: Jul 2009
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posted
Wisconsin Lyme - I don't have an answer for you. As a matter of fact, I have the same question. So I will be all ears.
Posts: 822 | From midwest | Registered: Apr 2009
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bettyg
Unregistered
posted
welcome wisc. lyme
so sorry to read about your son; NO kids experience here, but am offering this info for you ....
print off my DOSAGES/MEDS FOR KIDS/ADULTS in below link; that may answer ... i do NOT know!!
Welcome; I'm so glad you found us!! You've come to the right place for education and support!
Betty's suggested POSTING GUIDELINES . many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``TWICE`` after each paragraph; we need that space for comprehension.
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. ------------------------------------------------------
People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.
The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately. *******************************************
This explains the medical politics around lyme WHY you need an ILADS-educated or ILADS-member LLMD (and there are also some ILADS-member LL NDs (naturopathic doctors):
You should also be evaluated for coinfections. Not all tests are great in that regard, either, but a good LLMD can evaluate you and then guide you in testing. One of the top labs is:
"With most infections, your immune system first forms IgM antibodies, then in about 2 to 4 weeks, you see IgG antibodies. In some infections, IgG antibodies may be detectable for years.
Because Borrelia burgdorferi is a chronic persistent infection that may last for decades, you would think patients with chronic symptoms would have positive IgG Western blots.
But actually, more IgM blots are positive in chronic borreliosis than IgG. Every time Borrelia burgdorferi reproduces itself, it may stimulate the immune system to form new IgM antibodies.
Some patients have both IgG and IgM blots positive. But if either the IgG or IgM blot is positive, overall it is a positive result.
Response to antibiotics is the same if either is positive, or both. Some antibodies against the borrelia are given more significance if they are IgG versus IgM, or vice versa.
Since this is a chronic persistent infection, this does not make a lot of sense to me. A newly formed Borrelia burgdorferi should have the same antigen parts as the previous bacteria that produced it.
But anyway, from my clinical experience, these borrelia associated bands usually predict a clinical change in symptoms with antibiotics, regardless of whether they are IgG or IgM." ===========
ILADS The International Lyme and Associated Diseases Society (ILADS) provides a forum for health science professionals to share their wealth of knowledge regarding the management of Lyme and associated diseases.
UNDER OUR SKIN dvd LYME DISEASE documentary, www.lymediseasefilm.com go to this site to view trailer of UNDER OUR SKIN -5 min. Clip! Premiering 2008!! on big screen 09 in 10 LARGE CITIES ONLY!
please get a western blot igm and igg blood test drawn LOCALLY on a mon. or tues. and sent to the below ok! all details are there.
IGENEX , CALIF. BLOOD TESTINGS ...check current $$!
* Please note: What you are about to read below is NOT meant to scare any of you from any lyme testings done; it's meant to be informed PRIOR to going into having various tests done and then be told what the costs will be! * Mine was sticker $$ shock on various testings done by my 2nd LLMD/new to me in 4=06. Those tests/results are found elsewhere in my links/advise.
* Igenex's charges for these below things cost $905, which I figured up the last 2 days for 2 other folks includes
* The below tests were done for ME; you MAY NOT NEED them all ok! :
* western blot IGM & IGG, this is MANDATORY for you which costs $200 total for 2 tests done; 6.09 same prices still. * * ******************************************************* * OPTIONAL ONES ARE:
* co-infection panel for YOUR AREA OF COUNTRY; * PCR WHOLE BLOOD...this is what my LLMD ordered!
It's PREPAY! unless you are on medicare; IGX will file the paperwork & it's FREE to you.
go to www.igenex.com and read over their info. Prices go up twice a year: MAY and NOVEMBER!!
* * have blood drawn MON. or TUES. only; you don't want your blood sitting in post office over the weekend; will ruin the results!
* Also, call 1-800.832.3200 for CURRENT PRICES! * They will also send you a ``test kit'' with their required form, all the test vials, & box to ship it in! OUT OF USA will take longer to receive!
* You need to DOWNLOAD IGENEX's required form.****************************************************** * * MD, DO ,ND, AC, DC are all fine** must sign, date, and show DIAGNOSIS CODE on there why he's ordering the test.
Make sure you show to FAX results and SNAIL MAIL PAPER COPY! My results were lost for 4-5 weeks! Bettyg * * When you get your results, please post them in MEDICAL; * Post ONLY the POSITIVE & IND ones .... not the negative ones!
GET COPIES OF ALL YOUR SPECIAL BLOOD TESTS: western blot igm/igg and/or co-infection tests always!!
* Also, look for post by LYMETOO/TUTU on DR. C's (Missouri) explanation of the western blot IGM & IGG numbers, below!
posted
My son Finn was on Amox for strep and that started our foray into abx. We had intended to treat his congenital lyme, bart and suspected babs with alternatives for awhile to bump up his system.
But here we are on abx. All I can really speak to long term is that kids are so much more resilient that we old folks. My son who is almost 13 is doing great on abx. We soak in epsom salts, do saunas, and feed him probiotics and kombucha.
We noticed emotional herxing with our 4 year old right away on the amox. Not sure what to say about that fever. We went off for a couple weeks because he had trouble with the crap in the liquid zith (I would HIGHLY recommend crushing tablets instead of liquids, too much crap in them), and now he has a bullseye. After we have Electro dermal screening he will be back on the zith.
Some LLMDs think Amox isn't enough if there is congenital bart. Zith is better. I don't know what to think.
My thought are with you though. Lonely journey. Hopefully not so lonely if we all keep connecting.
Posts: 564 | From Tick Hell | Registered: Oct 2008
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What is Kombucha? All three of my sons have tested pos. and will be on abx in time. I'm looking for food and comfort ideas.
Wisconsin Lyme, I believe my 12 yr. old contracted bB from my breast milk @ 7 mo. At first he had an ear infection that wouldn't resolve w/ antibiotics. Then, he was a wobbly walker, then at 3 he had joint pain. By 6 yrs. he developed tremors of his hands. Then he was found to be dyslexic. Now at 12 he has upper body tremors as well. All the while he was ill often, somewhat irritable and moody. I would have preferred he be on antibiotics than go through what he has endured. I'm grateful we finally have a diagnosis, a clue and a llmd. My point is the symptoms may be mild at early infection, but if it's bB, it WILL get worse if untreated.
There is a v. good pediatric llmd in Central Wisconsin. I wouldn't take chances. Lyme can seriously disable your child. Be brave.
Linda S. - Mom of 3
-------------------- Linda Posts: 39 | From Lexington, Virginia | Registered: May 2009
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posted
Yes, it certainly is a lonely journey. And stress is bad for the immune system! This is so hard...
Lou B., I think you are right! Of course I will always have doubts, but what he is experiencing fits Roseola to a tea. And the rash is right on.
LindaS, was the knee pain at 3 quite obvious? Did he complain a lot? Unfortunately I'm not in Wisconsin anymore, but that's where I was bit.
Posts: 12 | From West Coast, USA | Registered: Jul 2009
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ping
Frequent Contributor (1K+ posts)
Member # 6974
posted
Wisconsin Lyme,
I'm just now seeing this post and posted to your other thread a minute ago.
Please get your children on antibiotic treatment for Lyme! If you have a doctor willing to treat them, then please do it!
Now that one of your children has taken abx before being tested, know that the test results might not accurately reflect the amount of infection the child originally had. (In some cases, it makes the infection more active.)
I know how hard this is because I'm a congenital Lyme sufferer who was almost 50 years old before being diagnosed and placed on abx tx. I'm now in remission after 5 years continuous tx and 2 years on and off tx. I've been off abx a year now.
The poster who said that kids bounce back much better than we old foggies is right. Please get your children treated quickly.
ping "We are more than containers for Lyme"
-------------------- ping "We are more than containers for Lyme" Posts: 1302 | From Back in TX again | Registered: Mar 2005
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otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. 
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