Topic: My first bionic 880 treatment ...my second, my third now
sixgoofykids
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I felt a lot better by treatment 5, but ... BUT I was not completely well. The borrelia may or not be gone ... there will still be parasites, coinfections, toxicity, mineral imbalances, etc., etc. to deal with. Getting the borrelia out of the way is a HUGE step though.
Mine was not gone at 5 treatments.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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From my understanding the C-reactive protein is a specific heart marker for inflamation. The ESR is a sed rate of general inflamation marker.
I am not sure if you are allowed any vitamins/supplements while there but it may be worth mentioning the results to Dr W. while in tx. He may be able to treat with some natural supplements while you are there. I am sure you know there are many herbs one can take for inflamation. The biggest one that comes to mind is Fish Oil in large quantity.
Hope the herxing lets up soon. Glad to see the last treatment did not leave you feeling so much pain as the one prior to that.
Stacy
Posts: 476 | From Columbus, Ohio | Registered: Aug 2007
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sixgoofykids
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Turmeric is good for inflammation, too ... but I'd talk to Dr. W .... he has some amazing remedies available.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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Brussels
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Mary, I disappeared for a while, sorry. I sent you a PM when you started posting this thread, you answered me then, so you did read it!
Glad to know you feel some big change going on. Your treatment doesn't look much placebo by your descriptions! I hope you reached the bottomline and won't get back there. It looks to me you have LOADS of toxins circulating still though...
As for your question about borrelia coming back, I guess it will come back for many people if they don't treat parasites and heavy metals.
I didn't use the Bionic, but used the PE1, it took me time to get rid of borrelia, and so did my daughter. About 5 monhts or so? If I would do it again, i would do like dr. W., about a fixed protocol (about 1x every week or 1x every 2 weeks).
I waited until my borrelia to test active again to do the next treatment. If I had to do it again, I wouldn't wait for borrelia to gain terrain and start testing positive to flash infrared on it...
Both me and my daughter are not treating borrelia for about 2-3 months. And of course, we are symptomless.
It does worth to treat it EVEN if you still get a positive borrelia after, in my opinion, because the load of infection becomes really REDUCED. I have a clear impression that the infrared treated our infection in a way that EVEN when borrelia showed positive again, we didn't feel DOOMED like before. This makes a BIG difference.
I just stopped my car in the region of Alsace this afternoon returning from Belgium to Switzerland, it's a beautiful area, amazing!!
Gosh, it WAS a hot day.
I hope tomorrow won't be that hot for you to drive to Pforzheim!
Posts: 6200 | From Brussels | Registered: Oct 2007
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lymewreck36
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Hi Brussels:
My husband is now pushing for us to buy a machine instead of me continuing treatments in Germany. Expensive and time consuming for me to drive there twice a week.
But I'm not convinced yet I need to fork out that cash, or continuing to drive, or maybe I should......Maybe I should drop the entire experiment.
Did any of you feel this confusion after treatment 5?
I'm very confused at this point.
When the swelling came back into my legs I felt some hope drop, but then again,....the bionic stirred the pot so much....I know something is happening....
Yes Brussels, it was very hot. Yesterday I couldn't leave the path of my floor fan without over heating. Very miserable for a girl used to the air conditioning of Alabama.
Mary
Posts: 1034 | From North Carolina | Registered: Aug 2003
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posted
Mary two hours is nothing try paying to fly 11 hours from the USA and a train ride on top of that. One day when staying in Dobel I just missed the bus and it took me over 2 hours to get to the doctor's office by bus and train and I was still glad to get the opportunity to treat that day even with the long trip and to get there.
You are very fortunate you live only two hours away from the doctor. If it was me I would keep making the trek to his office and I would be very happy to be close enough by to be able to do so.
You might have a return of the swelling in your legs from the Bicarbonite of Soda in your IVs. It seemed to make my left lower leg swell a bit because it irritated my left kidney but the swelling did improve in the long run.
Posts: 42 | From the woods | Registered: Jul 2009
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ukcarry
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Given the high price of the machine, I would say that it makes sense to continue going to the doctor if you can until you feel more confident about the efficacy of the whole treatment.
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lymewreck36
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Thank you bamboo and unkcarry. I appreciate all of your input as I am just a beginner. The traffic has been so bad this past week that the drive is wearing me down big time.
But I know, when I think of all of you that can't just get in the car and get to his office, that I am so fortunate. Spoiled even, compared to the rest of the suffering population.
Today was my 5th appointment. Dr. W. was in the office today. I thought he might want to have a discussion, but really, that will not happen until we test again.
That appointment to test again is Monday afternoon. He did stop by to comment on his "plan" for me that he mentioned after I emailed him about the huge pain and swelling responses I am having to each treatment.
That plan is 5 "orals" to take. I'm too tired to examine the bottles right now. I'll do that tomorrow. And he did not say what the purpose of each thing is. He told me that one of the nurses would give me the "plan," and one did give me a prescription to take to the pharmacy.
I went to the pharmacy after my appointment to get the goods.
The nurse also gave me the protocol, when to take what, for three weeks.
My guess, and I'll get more clarification when I get to have a conversation with Dr. W. on Monday, is that these five items are to help me eliminate toxins.
Don't know if any one of you guys were given a "plan" after treatment number 5.
Tonight I am exhausted, and my husband says I look pale. The 2 hour drive home has been 3-3 1/2 hours this week due to traffic. It's been tough.
I got home and the family had dinner then watched a Marlyn Monroe movie. Now I will have my green tea and get into my p.j.s.
I met a very nice Canadian woman and her daughter being treated while I was at Dr. W's office today. It's so interesting to meet these people from all over while I'm in the office.
Only unpleasant thing about today's office visit is that they couldn't find a vein.....in my hands!!!!
I can't say I've ever had a nurse find it difficult to get a vein in my hand, but after four tries, four different hand veins total from both hands....she still couldn't get it in.
Dr. W. came by and put the I.V. in. Another patient with the same vein problem was waiting for Dr. W. to find her vein long after I had my I.V. running.
That had to be frustrating, for everyone.
I'll let you know more about the "plan" tomorrow.
Tonight....severe fatigue.
Mary
Oops! forgot to say..I have just started to feel "kidney pain?"
I'm guessing that is what this is based on the location of the pain. Pretty scary.
AFter I.V. today, kidney pain again.
goodnight
Posts: 1034 | From North Carolina | Registered: Aug 2003
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Brussels
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Mary, when I was still thinking to see dr. W. I would never do the 2 hour driving like you...
I also live 2 hours away, but I WOULDN'T do that with the risk of herxing in the car...
But that was me. I would have stayed in a small hotel in between the treatments because I fear herxes.
And because I knew that when fatigue came, I got unable to drive. Quite a few times I had to stop my car to rest. Besides, I lost so much concentration that I could do an accident any time (as I did during lyme...).
As I don't think I have Bb anymore, I won't go see him anymore. Nor my daughter. Now I have a brother living in Stuttgart, so I could even stay on his place for treatment. But I really don't need it anymore.
I hope you treat it until he says 'you're free of Bb'. So that you will know if it worked. Or not.
If not, you'll never know, and the experiment will never be really done. Just my thoughts, of course...
I hope you get a good rest and let us know about your Monday appointment!
Posts: 6200 | From Brussels | Registered: Oct 2007
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posted
Please say hello to the Canadians for me.
Posts: 42 | From the woods | Registered: Jul 2009
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aklnwlf
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Thank you so very much Mary for sharing this information with the rest of us who are interested.
I've enjoyed this thread very much because of the lack of drama.
Some of the other Bionic threads were too full of bickering.
Good luck!
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6918 | From Columbus, GA | Registered: Jul 2004
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lymewreck36
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Hi Brussels. As far as driving to and from my appointments, there is less "punishment" involved in doing that than staying away from home.
The gunk I have to wade through and sort/clean up after being away is more than I can handle. Three kids...etc.
It is better for me to stay home and keep things in order.
Also, I'm so used to stuffing my pain and moving forward. It has been a lifetime of doing it. It was the only way to raise the children...keep my home running.
For example, two years ago I had a hysterectomy...and had to board the airplane to move to Switzerland 4 weeks later. I gave myself one day in bed after surgery, and then with the pain killers I was given, I began the process of sorting my home.
For the most part, I sat in one room after another while my girls paraded things in front of me and I pointed..."throw, give away, pack, stays, ..." etc. But the desire to just go to bed was tremendous.
I think generally that all of us that are mothers know exactly what I am talking about.
But it really has been a way of life, and sometimes I do feel bitter about it and it errupts in a fit of rage...then I can calm down and continue ...
I've never been able to go to bed when I needed to.
Thanks to you that are reading the thread here. And thanks to those who offer advice/support. I haven't been good about answering my private posts this last week, so I need to get to those.
Now, about the treatment.....I have an appointment today to do testing to see if I am still infected. We shall see, but my body says,..hell yes!
I promised to tell you what "orals" I obtained from the pharmacy with the script from Dr. W. last Friday....you know..the "plan" for my extreme reactions to the bionic.
I have these bottles in front of me and I wish I could tell you what they are. But typing the info on the bottle into a free translation program doesn't provide much information.
So I am bringing these five items to my appointment today to ask the doctor what they are for, and I will write what he says on the side of the bottle.
As for how I am feeling, the swelling in my legs is going down slowly again.
After last Friday's appointment, I started to feel the familiar swell of a reaction...but it didn't get far and stopped. Each appointment has yielded less of a painful reaction...which tells me that something productive is going on.
But I feel that I won't be free and clear of whatever bad things are being treated until I can have a bionic treatment and have not reaction at all.
Would you pros agree with this.
I leave for the U.S. this week, and that will be my time off until I resume treatment in August.
I will tell you what happens after today's testing and discussion.
I still feel exhausted all the time....so exhausted....I'm sleeping 7 hours (not enough) at night with the help of my sleep pills, but I was doing horribly before I started the bionic. I feel the bionic has helped me sleep better. But I have far to go to get off sleep medication.
All in all, there is no doubt that the bionic is treating something....I am surprised as I said before. WE all are hit by "light" everyday. But this light has "special powers!!!!" :-)
Mary
Posts: 1034 | From North Carolina | Registered: Aug 2003
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sixgoofykids
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Well, you might test clear of Lyme, and that's a HUGE step, but you will still have any other infections. They are easier to treat once the Lyme is out of the way.
It's taken me months of continuing treatment and treating parasites to really feel well.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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Dear Mary, I am not well enough or able to read/ post often these days. Found your thread this morning. Had to post to tell you how much I admire your bravery and how much I appreciate your efforts to share your journey/experience with us.
You will get well as you as you are so inspired to do so. Along with others, I am praying for you!
I know it must be hard to still keep posting when you feel so horrible, but your efforts and kindness in doing so are much appreciated by those of us who have waited desperately for this kind of reporting on this treatment.
Thank you for your level of detail and specificity about the exact diagnostic, treatment process, and level of interaction with the doctor/staff seems vital to contemplating this treatment. This is the exact level of detail I have been hoping someone would eventually post.
While you are not the first to go to Germany for the treatment, you are the first (that I am aware of) to give such great detailed report of the treatment process as it relates to your particular treatment program there. Thank you for the effort to do that for us.
You have explained things in such a way that makes it easy for us to understand, almost as though we are there with you....which we are in spirit and encouragement!
Mary, you have pioneered in posting your journey and sharing with us about this treatment in the most useful and forthcoming way I have read.
Thank you for lifting a lot of the veil of confusion on this process (at least for me) to help us better understand what one would experience in terms of process with this treatment.
Understandably outcomes for all will vary based on a variety of factors.
Mary, I look forward to reading posts on your thread. Please keep posting. Hang in there, you are doing great!
Posts: 495 | From SF Bay area, CA | Registered: Dec 2007
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sixgoofykids
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Jam, I posted the treatment in detail in my blog. I didn't come on Lymenet while I was in Germany as I tried to be on the computer at little as possible.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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lymewreck36
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Dear Jam...thank you for your kind words. There are other people that have posted their journies as well, but I don't know if they were on this forum. I believe several created blogs and remained faithful to them, as sixgoofy has pointed out. One of the more recent bionic posts in one of these threads lists the web addresses for several of those blogs.
I am under the impression there was a little lull in bionic posting on this forum for awhile.... just my impression from several things.....
O.K. I had my appointment today. I got in the car after my appointment wishing my husband were with me to discuss the levels of frustration I was feeling, the depth of sadness I was feeling for another patient I met in the waiting room, and my own feelings of confusion and despair.
So this is what happened. I ran into another patient I met "through the curtain" last week who has been receiving treatment in Germany (she is American) for I think she said 9 treatments.
She was so happy last week....and then she evidentally had a "lapse." I put that word in parenthesis because we do not know why she feels less well than last week. Could be a "healing crisis" like I believe I have been feeling.
Who knows. But one thing I do know for sure....and that is the look in her eyes. That familiar look I have imagined in my own spirit after feeling so sure about something, and then being smacked with the whiff of failure.
It is that desire to believe that it will get better, that there is some little twig sticking out of the side of the precipice that will hold your body weight...and that while you cling there, the one you have been waiting for will ride up on the white horse and scoop you up to safety.
She and I held each other's gaze, and I told her it would be o.k. I told her that she needed additional detox, and that when God shuts a door, he open's a window....
WE only talked briefly....maybe 15 minutes, but I felt I knew her for a lifetime. I can't get her out of my thoughts, my worries....I wish her wellness. I won't forget holding her gaze, the question, the desire for comfort.
Then I had my appointment. The doctor came in with his usual jovial mood. We exchanged nicities and then he asked me how I was feeling.
I told him straight. I can do little activity and then I need to put myself to bed, or recline, or sit. I am not capable of much more.
And then I reviewed my treatment experience with him: I had one treatment and felt pain relief; I had a second treatment and started to feel a swelling wave of pain, which turned into the tsuanmi of sweat, trembling, rattling, bone crushing fatigue and pain that completely crippled me for two days.
By the third day after treatment number 3, I was feeling the wave retreat from shore and the clouds break, and then treatment number 4 came along. AFter treatment number 4, I had another swell of crisis, but to a lesser degree, and then the same last Friday after treatment number 5.
AFter reviewing this history, the doctor commented that because I am very overweight, my body store many toxin from many years and many illnesses. This I knew, much to my despair.
He explained that usually Americans come over to Germany and feel better with each treatment, and test negative after treatment number 5 or so. But because of my size, there were complicating issues.
So then we turned to the testing. Lots of button pushing and taking the "pointer" (excuse my lack of lingo again) and touched the sides of my fingers with it, all the while pushing more buttons....and more finger touching, and more button pushing.
Then he stopped and took a long look at the numbers that resulted from all this testing.
He was very sorry to report that most Americans, after these treatment, test between 400-1,000 on this particular scale. But I was only testing 30. I began my treatment by testing 10, and I had only moved up to 30.
His immediate conclusion was that my home must have a big problem with EM emissions. Most Americans come to his office and stay at the house in Dobel and avoid interference by EM emissions during treatment, therefore ending up with much better results.
He pointed out that he gave me a card at my first appointment, which I do vaguely remember, of a guy living near my city who will test my home for emissions.
He gave me the card again, and his advice is this. He can treat me and treat me, but if I don't have the emission problem under control, I will be spinning my wheels and spending my money at the same time.
Also, when he treats me, because of my weight, he believes I will need the I.V. afterwards because of the severe reactions I am having. I think he is suggesting that treating on my own would be really uncomfortable for me.
So, the plan we decided on was for me to get my home tested....(money again) and then return to him with those results so we can make a plan in August.
I paid my bill for the 5 treatments thus far and swallowed hard.
Tonight my head is spinning. I'm exhausted beyond belief. After dinner my youngest daughter was stricken with a high fever and had pain and I sent her to the emergency room with my oldest daughter and my husband.
They just arrived home. My mind was spinning with swine flu and everything else that could go wrong. But the emergency room said it was just a flu and sent her home.
It is late now and I need to get in my p.j.s.
Oh yes,,..the medicines I got from the pharmacy last time....I will tell you tomorrow.
mary
Posts: 1034 | From North Carolina | Registered: Aug 2003
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lymewreck36
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O.K. Got into the p.j.s and have a few minutes to post while the sleep meds take hold. Daughter is settled in, but still with a raging fever.
GEt this, the E.R. does not think she has swine flu becuase she has not traveled outside the country.
DO THEY KNOW IF ANYONE FROM OUTSIDE THE COUNTRY WAS IN DOWNTOWN LATELY? COULD SHE HAVE 'CAUGHT' IT FROM SOMEONE!!!
The Logic kills me. Sounds familiar to all of us though, doesn't it!!!!
We've already had 6 confirmed cases in that hospital.
O.K. The homeopathic medicine that I collected from the pharmacy last week was for the following, as described by Dr. W. today.
My husband and I have been discussing our plan of action with the bionic in between home emergencies. Not sure what to do next. WElcome to all suggestions.
Don't know if my body will tolerate drugs at this point because I haven't tried them in almost a month.
Currently taking artemisinin for babs, and have not taken anything for lyme. My husband and I tried to go out for dinner last night, our 23rd wedding anniversary, and I could barely walk.
Really going to sleep this time. Mary
Posts: 1034 | From North Carolina | Registered: Aug 2003
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sixgoofykids
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Mary, I know I was extremely sensitive to EMF's during and after the treatment. We disconnected our wireless internet and our cordless phones when I got home. It was extremely uncomfortable to use the cell phone. This is getting better.
He has had another treatment failure with someone staying in an apartment in Pforzheim. This was before I went, so I knew about it and stayed in Dobel. We greatly limited our computer use and when we did use the computer, it was not wireless. This is the main reason I blogged instead of posting on LN, that way I could say what happened but didn't have to answer questions (could get off the computer quicker).
The weight thing makes sense, too, as so many toxins are stored in fat.
I hope you continue with the treatment after fixing any EMF problems.
I hope your daughter feels better soon.
I left my husband with my six kids to go stay in Dobel for three weeks. I figured it was three weeks without me which was difficult, but in the end, they had the real me back because I came home so much more healthy. Perhaps staying in Dobel, being away from EMF's, and getting proper rest might be a consideration for you.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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If it was me I would get my home tested for EMFs and continue to treat with Dr. W.
The person you ran into in the waiting room told me many times she has a very bad strain of LD according to one East Coast famous LLMD which is a very very difficult strain to treat and they have mold issues and still reside in a moldy residence as well so I hope no one bases how this protocol works on that one patient's experience. I so wish that person good and improved health.
Also this person was very fond of talking on the phone and had a cell phone and also used the guest house owner's cordless phone for a period almost nightly while I was there after spending a lot of money on their cell calls home to the USA so you might say their EMF exposure was heavier than most people staying at the guest house in Dobel.
The less EMF exposure while treating the better and it is something to keep in mind. If you plan on going to Germany it is much better to stay off the phone as much as possible.
I know the doctor does not require people to have their amalgam fillings out before Bionic 880 treatment. I think it important and a good idea to do so and I did this before my trip after two other people who went to Germany with their amalgams still in warned me to do so after their fillings heated up and were uncomfortable. The Bionic 880 can move metals so I wanted my amalgams out before they were moved out into my system.
posted
Mary I hope your daughter does not have the Swine Flu. I think I might have it right now myself. The newspaper reported it going around my county a couple of days ago so it could easily have reached your city by now from numerous other places. I am trying to decide if I want to pay to get tested or not. It would mean I would need to be seen at a doctor's office that misdiagnosed my Lyme disease for years because I am probably too sick to drive anywhere else to get tested.
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sixgoofykids
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That is true, Bamboo. When we were there we went to an internet cafe that was hard-wired to call home. We only went either the day before treatment or the day of treatment if we had time to go prior to the appt. We were very careful to stay away from EMF's as much as possible.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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lymewreck36
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Well, I thought I was careful about EMFs.I only use my land line computer....though the kids have wireless laptops in their bedrooms.
And I refused phone calls for three weeks. Even my sister from overseas was told I could not talk to her.
What if my home tests to be an EMF nightmare. So what are they going to do about it? I will have to stay in Dobel if I do this again.
I think we have decided for me to hit the dieting full force. I already talked about it with my new doctor in town here, and she wants to work with me on it.
What's a girl to do.....
Nevertheless, no matter what has happened with the lyme disease up to this point, I am a believer in this bionic thing because of the reactions I was having to it.
It is powerful, and does incredible things to our bodies. I feel like I must own one at some point.....
My daughter is still spiking a fever this morning. It really scared me last night because she was holding her head and saying it hurt so bad, she was shivering hard, and it came on so fast. Scared the heck out of me.
Thanks guys, Mary
Posts: 1034 | From North Carolina | Registered: Aug 2003
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lymewreck36
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I forgot, my daughter wonders about this wireless thing being a problem for our home because she has a hard time getting a wireless connection in the house, and our cell phones have a difficult time with connections as well. Most people in our apartment complex you will see on the patio when they are on the cell because they can't get a good connection inside.
Bamboo, I hope you don't have swine flu. Rest well.
Posts: 1034 | From North Carolina | Registered: Aug 2003
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Thanks. I hope your daughter's fever goes away and she starts to feel better.
The wireless computers in your home could be a major EMF problem and even your neighbors wireless computers in your apartment building might be affecting your health. The fact that you have a hard time getting a wireless connection might not be a good thing at all when it comes to EMFs. It might mean more EMFs rather than less.
In the USA the power companies will come to your home and measure the EMF's for you for free of all your appliances.
Posts: 42 | From the woods | Registered: Jul 2009
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If the signal strength is weak, cell phones will upregulate their output in response to that....I am EMF sensitive and notice. The worst is inside cars. My sister does not have any concept of time, nor my hubby, when on the phone and I have to endlessly say yes to the same thing when he phones....
There is EMF fabric, it can be ordered online, both in Europe and the U.S. People drape it around their bed, or wear a smaller pieces as a scarf covering the head, or use it on the head while on a phone. EMF sensitive people use it if they must. Avoidance is best. I got a "switch", a small box to hard-wire the computers and laptops, it works fine. Someone put up www.bionic880.com I guess to have a backup of some postings and it explains avoidance of EMF's is important, and out of the 100 people getting in the test for the bionic the one who took antibiotics failed treatment. So they had some sort of clinical trial. I wonder why noone updated that site, one could take away personal information and store information about this treatment there. Like importance of avoiding EMF's. I think there might be a lot of EMF's from your neightbours too. Is anyone living above you? From reading german websites about the two grids naturally occurring on the earth and the faults and so, if the people living above you happen to have cork or glass foam in their floor, all the rays from teh earth reflect unto everyone living below them, like you. You might live at a crossing where energies are bad. The person Dr. W recommended to you knows all about that.
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sixgoofykids
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I would have it checked out. We have no wireless in our house, but we get weak signals from the neighbors. I have one of those "tents" around my bed. I can't be near a computer picking up a neighbor's signal .... though that's getting better.
It sounds like you tried ... but who was to know you were exposed to it anyway? I'd have it checked out to be sure.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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I think some things everyone must pay some consideration to before starting treatment in Germany to make the treatment more successful is exposure to EMF's during their stay (staying off the phone and staying away from wireless anything in their living arrangement) getting the EMF's levels checked out before treatment and dealing with their mercury and metal dentistry before starting the protocol. Gold and other metals are not okay either in my opinion and will improve your health in general if you have them removed by a good biological dentist. When Dr. W. checked my mercury level on my last office visit it was low.
Planning at least 3 weeks during treatment to rest and relax and to not have to deal with the hustle and bustle of the normal daily grind helps as well. If you are staying in Germany and are from say the USA or Canada try and leave the stressful parts of your life behind in your country of origin while you are in Germany.
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Brussels
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I am with Bamboo forest for the isolation during treatment too... But I know what Mary says about children too as I'm a mother too. It's a difficult decision.
But if I invested my time and money in a treatment, I would try to take the best of it, so sacrificing other things. Specially if the treatment was so short (two weeks).
Or, long term, it could be a total loss of time (like the treatment not working)...
If you have portable and wireless Lan around, you are being bombarded with EMRs.
If you use transformers (to change voltage from the US appliances to the Swiss voltage), you are getting EMRs.
If you use ANY wireless phones at home, you are BOMBARDED with EMRs in the whole house (and bombarding your neighbors and people in your garden) 100% of the time, stronger than if you are ONLY using mobile phones.
If you use the Swiss plugs (only two 'exits'), it is also not good as if you plug it at the bad direction, you'll get a lot of EMRs.
If you have ONLY the 3 point plugs then you're safe though. I have LOADS of 2 point plugs in many of the appliances I use, so I need to test each of the plugs everytime I connect them.
My bedroom has loads of INTERNAL EMRs coming from the walls (thin walls of wood). If I don't cut the circuit breaker, I can's sleep well. It has been like that for YEARS. The electrical circuit inside the walls create EMRs and will only get canceled when I cut the bedroom circuit breaker.
If you use a metal bed, or anything metalic around your bed, or any appliances that are on, you can get EMRs the whole night. First symptom is a bad quality of sleep.
There are solutions, Mary. They are not 'easy', but there are solutions for each of the problems.
Now that I solved most of the problems here at home, I'll be moving and have to start again.
Posts: 6200 | From Brussels | Registered: Oct 2007
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lymewreck36
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Oh my Gosh Brussels! Your post reminds me of how toxic our lives are, and with my weight, I know now more than ever, I am a toxic cess pool. Seeing me is like visiting Chernobyl.
My treatment experience with Dr.W. taught me this, and also taught me how powerful bionic 880 is. I am still so surprised. It's just incredible.
I told my husband that at some point, I want to buy the bionic 880 machine.
I am in between that rock and hard place again in my treatment.
We have decided for me to give yet another try at wacking off the weight. I have done pretty well so far this week.
In theory, this is the plan. I loose xxx pounds, then I go to Dr. W. again and stay in Dobel at the house.
That is the plan. If all the "premises" as to why bionic did not work for me are correct, then giving bionic another try right now would be futile. At least, those are my feelings this morning while I sip my coffee by the computer.
That could change.
IN the meantime. I started biaxin again. Already my body is saying this is going to be a long and rough journey with drugs. Not sure how to proceed, but I travel to the U.S. early tomorrow morning to go over all of this with my llmd.
Wondering what low dose naltrexone will do to enable me to take the antibiotics without the reaction.
I will get my lupus panels run again in the U.S. since I have resumed antibiotics.
I know that just reading that I resumed antibiotics will make some of you cringe, but desperate people do desperate things???
I cringed at the first pill as well. I'm still cringing.
Please say a prayer for me, and thank you to all of you that have taken this journey with me. I need to get to my private messages that have backed up without me responding to each individual one, so those of you who sent me one, please forgive my tardiness.
Today I must pack my home for 3 weeks in the U.S. I have spent the last week going over closets and drawers with my oldest who is moving out for college. Lots of tears for me.
God bless all of you, Mary
Posts: 1034 | From North Carolina | Registered: Aug 2003
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posted
Have a good trip to the USA and I think your plan to stay in Dobel next time is a very good one. When you are there you can detox in the wonderful mineral pools close by in Bad Wildbad. Check out both spas they are both beyond lovely and I highly recommend them as part of getting better.
I think one reason I did so well while treating in Germany was I had not been on any antibiotics or Western medicine for well over a year which I think Dr. W. says helps with treatment. I can understand you needing to take abx now but do try to get off of them before you start the Bionic treatment again.
Posts: 42 | From the woods | Registered: Jul 2009
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lymewreck36
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Thank you bamboo. Having familiar pain that I have associated with adverse reactions to antibiotics tonight. Trouble keeping my spirits up.
It's 11:00 p.m. and the family is packed. Just waiting a few minutes before sleep meds take hold.
I have quite a story to tell the llmd this visit. I also have the bionic 880 brochures from Dr. W's office to give the llmd.
I'm such a mess. Sometimes I wonder how long a death can drag out....decades? I hate this disease.
Mary
Posts: 1034 | From North Carolina | Registered: Aug 2003
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Hoosiers51
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I have been sort of reading this thread from afar.
Mary, can you just go on an antibiotic that your body doesn't react poorly to?
That might be a better solution. Maybe something like Amoxicillin (IMO, it is easier on the body). Then combine it with a natural antibiotic or natural cyst buster, or some kind of enzyme like Wobenzym. Or green tea, I dunno.
I find it hard to believe all antibiotics are the same degree of "terrible"...like when I get muscle testing done, some test well and some not. Maybe some are "cringe-worthy" and some aren't....for your body.
Posts: 4590 | From Midwest | Registered: Jun 2008
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Brussels
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Hey Mary, sorry for the daughter moving out. It must be difficult on top of this disease.
But great to know that your general impression is that the protocol can do something and that you would give it a try again!
for me, before I used photons, what worked better for Bb (I'm saying Bb, not other coinfections) were Buhners' herbs in combination.
Andrographis + cats claw + stephania tetandra + Japanese knotweed sometimes + sarsaparilla sometimes + astragalus sometimes. They don't kill the intestinal flora and are systemic, cross the BB barrier.
I hope your trip to the US goes on well!
Posts: 6200 | From Brussels | Registered: Oct 2007
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Truthfinder
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posted
Mary, I know you will be in the U.S. for 3 weeks so don't know if you will see this or respond to it for awhile. In any case, I hope you have a great trip.
Mary, you created a wonderful running account of your experiences with the Bionic + nosodes here at LymeNet, which has been very helpful to so many here.
However, I'm feeling more than a little remorse about that if, in fact, your efforts to bring us a real-time report ended up creating a barrier to your potential progress due to EMFs from using your computer. Ugh. Not a happy thought on this end.
While I'm aware that EMFs/ EMRs definitely contribute to borrelia problems - this is even noted by our famous Dr. B. - I have to wonder if this is the main culprit as to what went wrong in your case.
As to the overweight issue, this is the first I've heard about this kind of thing being a problem. While I understand the extra toxin burden on the body - which could make you feel worse if you can't get the debris and toxins eliminated - I guess I don't quite understand why it might be a problem with reducing the borrelia load in the body.
One thing that might be important here is the PLAQUENIL issue. Though not all agree on this, it does appear that Plaquenil alters the way the immune system operates. I'm not sure it is actually immunosuppressive per se, but it does alter the immune response.
You were on Plaquenil for 7 years and stopped taking it only a little while before you had your first Bionic treatment. Then out of desperation, you took Plaq during the course of treatment.
Know this, Mary: Speaking purely from a homeopathic standpoint, drugs like steroids and antibiotics - anything that messes with the immune system - can be practitioner's worst nightmare when it comes to patient response to remedies. In fact, there are some homeopaths who no longer accept patients who are on any type of immune-altering medication. That's how potentially-important the Plaquenil issue could be for you, personally.
I don't know if you discussed your Plaq usage with Dr. W - either before you started or during treatment - or if he would even know what it is. (Maybe it isn't a drug used much in Europe.)
So, while you are considering some weight loss and checking out your EM exposure at your home, please consider ways to find out how much of a role the Plaq may be causing in your case. This may mean some `energetic testing' is in order - perhaps ART or electronic testing similar to what Dr. W. uses. I know it may seem pretty woo woo and maybe you aren't comfortable doing any of that. But if you are going to invest more time and $$$ into this treatment, it seems prudent to get as much information as you can.
All the best!
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
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sixgoofykids
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Tracy, you make good points. Those of us who were in Germany while I was there did post on the computer but weren't being exposed to wireless. That may be the difference as far as EMF exposure.
In the testing of the Bionic 880, the only treatment failures were the ones who were taking abx on the sly ... so that could be a part of it, too.
I don't know that it's any one thing, but just all the things in combination.
Brussels, I, too, really like the Buhner herbs for borrelia.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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lymewreck36
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posted
Hello folks. This is my first full day in the U.S. It is like putting on an old glove, a perfect fit...so comfortable....my own skin. So different from living in Switzerland.
I am enjoying air conditioning, and my parents keep the house very cool. This helped me sleep well last night after we arrived.
I want to respond to all your comments, so if I pass one by without responding, please point that out.
As far as using the computer and EMF, I did use my home computer which has a land line. Nevertheless, EMFs could be a huge problem in my home. I'll have to investigate that.
I don't know how many people are reading my thread, but I figured I should do this bionic posting because if I were in the U.S. and heard about bionic, I would want "the good, the bad, and the ugly." :-)
Antibiotics and antimalaraials all causing a reaction for me.....
Well, that is how the picture developed by late winter....and I tried so many times single medictations to try and figure out what I can and can not take. They all caused the same horrible "lupusy" reaction.
Then, after dropping my plaquenil, I was able to take biaxin. Surprise, surprise.!!!!
Tried an antimalarial again a few weeks ago, and boom....lupusy pain.
So I decided that plaquenil, as far as I know, takes up to two months to exit the system, so if it were plaquenil causing the drug reaction, then I would need to wait longer and then try an antimalarial again.
Yes, I did take one plaquenil during the height of my "healing crisis" while on bionic, but just that one pill, and not another.
I was desperate and terrified. I never took an antibiotic during my treatment. I was off all antiboitics for treatment.
I have not been on plaquenil now for 5 weeks, minus that one pill.
Today I took one malerone. Let's see how that does. I'll know after a few days, or even tomorrow, if I am going to have that horrible reaction again.
So....right now, since the completion of my bionic treatment, I am taking biaxin, and trying to add in malerone.
If this does not work, I will have to go back to the herb route and give that a go. Thank you for listing the herbs that are most helpful. Really, I appreciate those "flotation" devices being offered.
Loosing weight.....I cannot believe that borrelia will not be cleared if one is very overweight, yet, if the body is very toxic, which mine must be, then doesn't this lower the immune system? Doesn't it make detox pathways very burdened, making me feel sicker? Could these things make the lyme disease have more power over me?
My mother feels very strongly that loosing the weight and staying in Germany for the treatment has to be my goal. I think so also.
I have had to wonder why my children and husband do not have the same problems with medication I do. They are thin and I am not. A connection? Maybe. Probably.
I miss my bionic treatments. It was exciting to be off medication....just the idea of it was full of hope. And the treatments itself really affect the body. It just wasn't enough for me, for whatever reason.
Jet lag setting in....must sleep. I'll post tomorrow I hope.
Mary
Posts: 1034 | From North Carolina | Registered: Aug 2003
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posted
It is my understanding that borrelia die off is very toxic--in fact isn't that one doctor's theory that borrelia die off is considered a neuro toxin?
If I am miss stating, I apologize, but it would make sense that you might have more toxins stored and that is a bigger problem for you.
I believe I have also read--but I don't know where--that when you loose weight that you will release toxins and herx from that.
I very much appreciate your sharing and I think you have a good treatment plan.
Posts: 177 | From God's Grace | Registered: Apr 2007
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Truthfinder
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posted
Mary, I suspect the use of Plaquenil has affected your Bionic treatment more than you think. Not just the two pills (your post said you took 2 pills that day) during treatment, but the 7 years of it prior. Your body compensated for that, and I'm not sure 2 months off would be enough for a return to normal operation for your body. At the very least, I'd sure ask Dr. W. about it before any subsequent treatment.
It certainly would be nice if he could use his machine -or his own biotensor - to determine if a person were `ready' for Bionic treatments.
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
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lymeparfait
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Mary,
Plaquenil goes very deep, and stays a long time after you stop, as I was on it as well for lupus, before being ready for the bionic. although I was not on it as long as you, only a few months before I decided to get off it to go to Germany. This was scary to stop! But I felt it was right to stop...so took the risk!
It took at least two months detoxing to be ready and cleared via ART testing, to get a YES, to being physically ready to start the bionic treatment.
As I have posted, I did not go to Germany for treatment, due to other family comittments, and postponed it, and started the AI here at home with continued detox.
so I cannot post anything about the bionic 880 experience. Only my experience with plaquenil, and the fear associated with having lupus. I relate.
Although I can tell you my lyme is not testing positive now. ART testing cannot detect it, nor can the IGENEX test.
This was due to the detox! Specifically after treatment with abx for almost 2 years, and then finally getting off everyting and detoxing body and spirit!
And being "open" to trying new and different, safe approaches to rebuilding my immune system, and removing my emotional blockages to healing. This was the turning point.
Preparing for the bionic and my friends here on lymemet encouraged me to move in this direction. So in some sense , I can say the bionic helped me! Little did I know the power of detoxing.
This is something we all need to do, no matter our pre-existing conditions.
Detox will get us to a place for the next level of healing. There are different stages for each of us.
It is hard to not be where someone else is physically when we all compare notes, but know that there is healing available for all at different degrees!
I suggest, while back in the states, get tested by a ND who can direct about ways to detox , and test you to see when the plaquenil will no longer give you a problem with thee bionic treatment.
Go to Dr. K"s site and look for ART practitioners near where you are staying. They can give you some plan and direction. Also give you some specific remedies made for you, that will aleviate your lupus imflammation symptoms as you move forward.
We are all different, but detox is key. Plaquenil stays for a long time, so give it time to remove!
Someone said to me "the turtle wins the race". Go methodically and stick with your plan.
so don't get discouraged. This is a learning experience about your own body, and you will gain support and knowledge here from those who have gone before you. peace and healing. lp
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Mary, my symptoms were horrible in Germany, most of the time during treatment, I physically could barely get back to the apt. to rest, I was such a mess and in tremendous pain. It gets better very slowly. The Bionic does still zap my energy, but the pain is way down. Symptoms are different now after treating. Troy
-------------------- Troy Posts: 50 | From California | Registered: May 2009
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sixgoofykids
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posted
I find toxicity is still my #1 issue after treating with the Bionic .... and I am fit. I still test negative for borrelia, but if I'm not constantly on top of toxins (liver cleanses, coffee enemas, KPU, red root tincture, homeopathic detox, exercise, lymphatic drainage massage, etc.), then I will start having pain.
I think (but am just guessing on this) that it's a lifetime of toxins that are just starting to be released now that I'm getting healthier. Interestingly, I am also noticing that the fat and cellulite is going away ... though I am thin and have lifted weights throughout my illness, I had some cellulite on my legs. I do think, from my experience, that fat can store a bunch of toxins since as I'm detoxing more and more this fat is going away.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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lymewreck36
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Shoot...here I go trying to reply to everyone. My lymebrain is very limited. (still need to get to my p.m.s)
Well, yes, borrelia die off is very toxic. If I know anything, I know this. A herx is a die off response. IT HURTS!
Interesting thing is that the "herx" I had from bionic treatment, be it stored toxins causing it or borrelia, was just as painful, just as fatiguing, but had a different character. It is hard to express.
The fatigue was unbearable. Trembling, earth shaking lymph node pain and even my hair was fatigued.
Each treatment brought this on, but less and less each time. It would have been nice to continue and see how this might continue to decline, and then how my energy might finally go up.
But....as I have learned and I think you all point out very astutely, I think I need to be "ready" for treatment before I try this again.
Plaquenil was still exiting my system while I did this treatment. I did not consider how this might affect my outcome. Didn't occur to me.
And the toxicity levels of my body did not occur to me before I did the treatment.
LP, you have been so very supportive, and Troy, and Six, and Truthfinder, and Brussels, and Hiker53, and Bamboo....and others....
Thanks so much. I think we all know how much it means to have our hands held through these journeys, but I can't say it enough.
I never understood detox the way I do now, so that is what I am focusing fact finding on right now, and weight loss.
I am hoping that I can continue to get advice/treatment from Dr. W. on detox methods.
My parents are doing the Zone diet, so I have been on that since I touched down in Alabama. Doing well.
My malerone trial is going great. This reinforces the idea that plaquenil was the drug causing my disaster from the beginning. But the journey I have been on while wading through this mess has been very enlightening. Maybe that is what I needed to start to see the forest.
So now I am on biaxin and malerone, and started to add in ominicef yesterday. Within 24 hours, my head cleared, and joint pain reduced. This is called the "honeymoom" before the herx.
God's willing, I will not crash with lupus again, now that plaquenil has diminished in my system this much.
This will get me through the time I need to loose weight. I pray for the strength to get through that as well.
In the meantime, I have reason to believe that my gallbladder is failing me, or is diseased, probably from 1 1/2 years I.M. claforin injections. SLUDGE!
I need to do a flush to see if I get improvement. Haven't gotten the nerve up for that . I did one 3 years ago with great sucess. So I know what it takes. Hopefully, I can take that on this Thursday.
My husband took our three daughters to the beach today, and I did not go which made me cry. Just not well enough to sit on a hot beach all day.
Maybe next year. :-)
Mary
Posts: 1034 | From North Carolina | Registered: Aug 2003
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sixgoofykids
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Sorry about the beach ... I think we all know how that feels to sit out ....
Please do the liver cleanse! Oh, it helps me soooo much!!
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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lymewreck36
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Thank you Six. Have any great links to gallbladder and liver flushes? Mary
Posts: 1034 | From North Carolina | Registered: Aug 2003
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sixgoofykids
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Just wanted to share this - I am borrelia free! Yes, I was tested three different ways - all three doctors confirmed.
Yes, I am still dealing with virals, parasites, fungi and emf's. I feel much different than I did in January/February. Though I still have symptoms, overall I feel better than I did.
Dr. W provided me Five Bb treatments with the Bionic. I purchased the machine and now treat at home.
Treatments at 75% 0r 100% - I see a doctor for IV's to detox. Treatments at 25% or 50% I detox at home.
Detox: Prep. has really helped me. - Prepare 2-3 quarts of water with HEEL detox drops - place beside the machine and drink what I can. - drink mixture of green bentonite clay with apple pectin - helps my elimination - I do this an hour or so before using machine - take clorella tablets and drink luke warm cilantro later in the day
Herx: You bet - I feel it every time I use the Bionic - always in my head. I feel the Rife every time I use it also. It seems I have lots of neuro symptoms.
Good Days: (Or parts or a day) ears ring less, head buzzes less or not at all, tingling disappears, horrid feeling from emf's not felt, eyes less dry/red, no headaches, no sharp pains in brain, no tingling in thyroid area, fingers/toes not swollen/painful, no shooting pain in eyes.
Bad Days: Add to the above heavy tingling, heavy buzzing in head
Symptoms Gone: Many, many.
Chronic: Systemic Candida
Two weeks ago I saw a homeopathic who tested me on his EAV machine. He confirmed "no" borrelia. This doctor said I am dealing with a high load of MycoPlasma + Candida, Nanobacterium, Mycobacterium TB, Chlamydia
Ohhhh for the Love of ancestral DNA!!
Bad News: Husband was just diagnosed with Ehrlichia.
We will treat with the Bionic, homeopathics and herbs.
EMF's: Dr W once told me he would never own a battery operated car as he would not place his children near those batteries.
I cannot ride with my girlfriend in her hybrid car (painful). Even my own car I can drive only 30 minutes, but can sit in the backseat for about 1 hour before I feel something.
Compressors and A/C's in grocery stores or theatres, even the overhead lighting and music frequencies I feel pain - heavy buzzing.
I need one of those special tents to hide under when I go out to shop.
Two relatives in Oregon live in a pocket without cell/TV reception. I will visit soon and see what this feels like.
Mary - I admire you. You will win this battle one day. Keep pursuing information and answers to your questions.
Detox... I had a friend who gave me homeopathic shots to open up my meridians before I went to Germany. What a huge help this was.
This friend has been traveling. I noticed that I need her help again as my lymphs are not as open as they should be. This detox pathway is critical as is our kidney, liver, spleen, lungs, and so on. I'm no expert in this area - barely understand it.
Have not been on LymeNet for a while but find I need you guys!!
Thanks for being there and sharing. Grace
Posts: 212 | From Arizona | Registered: Jul 2008
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sixgoofykids
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Thanks for the update, Grace! That great news!
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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ukcarry
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Congratulations on your improved health, Grace, and thank you for filling us in with such an encouraging account,
lymie_in_md
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posted
Mary -- put KPU on the horizon as well or look into it. You'll probably want to do at least 3 or 4 liver cleanses spaced 2 to 3 weeks apart. By doing the KPU you'll rebuild your livers natural enzymatic functioning. I now know after doing the cleanse only the KPU protocol helps to make this happen. Once the liver is rebuild you'll have to work on the kidneys. Find some good herbals to help detox the kidneys and the bladder. All this will take some time, but it appears your starting to make progress.
-------------------- Bob Posts: 2150 | From Maryland | Registered: Dec 2007
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sixgoofykids
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Bob, what kind of herbals do you think rebuild the kidneys and bladder?
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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