posted
Pinelady - hope your friend is doing better - just looked up Legionnaire's disease - says it's due to exposure to water contaminated with the Legionnaire's bacteria.
My first Lyme symptom: stiff neck and shoulders.
Haley - so many doctors have made the statement that we don't have Lyme in CA, that one of our CA advocates conducted a survey of us in CA.
She got over 150 responses back about where we had contracted it here. It's on the CALDA website, www.lymedisease.org, in the blog Touched by Lyme, March 12.
There are also 900+ folks on CaliforniaLyme now.
Posts: 13171 | From San Francisco | Registered: May 2006
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
I remember the shock to that thread Robin123. Wonder how many they are missing?
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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lymemomtooo
Frequent Contributor (1K+ posts)
Member # 5396
posted
Pinelady. My daughter's first noticed symptom was anxiety and mild panic. She started separting from her friends..But looking back, think she must have been slowly putting herself in the background and they stopped wanting to be her friend.
She had many previous times of being covered by deer ticks..But you know the drill, a negative test..lmt
Posts: 2360 | From SE PA | Registered: Mar 2004
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posted
My very first symptoms: Raynaud's in my hands. Also the veins on the sides of my fingers would bulge out and feel sore/tender, off and on.
Around that same time I developed costochondritis and my sternum was tender and swollen. All of these symptoms would come and go.
After that (a year or so later) more symptoms: fatigue and all over pains (which would come and go).
I didn't think much of it for the first few years, as the symptoms were not constant.
And as I was a city person (and no bulls eye), Lyme and other tick-borne diseases were not on my radar.
Posts: 366 | From MA | Registered: Apr 2006
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posted
Swollen knee, and strange very occasional burning sensation in skin of back (small area). Bone pain in the leg without the swollen knee - would come and go. Red mark on skin that never went away (small, not bullseye). I saw a mark just like this on a doctor's arm who told me it was where he had an attached tick.
Posts: 8430 | From Not available | Registered: Oct 2000
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lymetwister
Frequent Contributor (1K+ posts)
Member # 19590
posted
Gut Wrenching Anxiety, followed by Breathing Attacks (Not Air Hunger) that only Benadryl would hault, then Tachycardia, then POTS.
LT
Posts: 1227 | From District of Columbia | Registered: Mar 2009
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posted
I think that I knew that something was wrong about 4 years ago. I was so tired. My brain was foggy. I went to the Dr and she said that my fatigue was because I was depressed. I may feel sad at times but I have rarely been a depressed person. This lead me to do acupuncture and work with a nutritionist, he thought I was weak in the adrenals... felt better with supplements but never totally back to normal. Flash forward to July 2009. I have a flu that keeps me pretty much bed ridden for 6 days. Then about one week later a large rash on my right hip. Dr says that it is a spider bit. I start looking at things about Lyme, not sure why but a gut feeling. I go to the Dr again because I feel sick again and hip hurts. I woke up to Wisconsin Public Radio and the show is about Lyme Disease. I advocate for myself and convince the Dr to give me antibiotics( I have always avoided antibiotics). I have a blood test and the test comes back positive. After 3 weeks of antibiotics, I feel tired, foggy again. I have convinced the Dr to give me 3 more weeks of antibiotics. I have an appointment with a Infectious Disease Dr Sept 9. I want to make sure I do this right. Sometimes the stuff on here makes me scared. Will I get better? I really feel that I have gotten off easy so far!
Posts: 3 | From Burlington WI | Registered: Aug 2009
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posted
The first really obvious symptom was crushing fatigue.. absolutely out of nowhere... if I remember a few days back from when that started, I had some twitching and just felt off...
Posts: 245 | From East Brunswick, NJ | Registered: Oct 2008
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
He called his friend today and told him he knew he
was a lucky man. But he don't remember much about
what happened and wanted to be refreshed. We are
guessing he got in on the plane or at one of the
motels he stayed in. Air conditioner.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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Cass A
Frequent Contributor (1K+ posts)
Member # 11134
posted
Dear Pinelady,
Thanks for the good news!
I got a bull's eye rash in 1998, but wasn't treated at that time.
As for me, my first symptom that was really bad was vertigo, where I had to lie down.
But, I kept going...
Then, hypothyroid that wouldn't correct...
Then, tinnitus out of nowhere---that lead to the Lyme tests.
Best,
Cass A
Posts: 1245 | From Thousand Oaks, CA | Registered: Feb 2007
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posted
My initial problem was my entire spine hurt, felt raw and almost like a constant cut going down from my head to my butt, and constant popping and cracking. Shortly thereafter, migraines and temporary blindness, lasting a few seconds, sometimes as long as a couple of minutes before it returned.
Everything ached, just like the flu, then palpitations. 3 years later, I was diagnosed. 18 years since I got sick, and the beast has returned in the past ~4 years.
-------------------- Ticks suck. Posts: 140 | From Alabama | Registered: Aug 2009
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Dawn in VA
Frequent Contributor (1K+ posts)
Member # 9693
posted
After first round of tick bites, vertigo and balance issues. Had no clue about Lyme.
Second bite many years later, swollen lymph nodes, joint pain and severe headaches. Figured it out then.
-------------------- (The ole disclaimer: I'm not a doctor.) Posts: 1349 | From VA | Registered: Jul 2006
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quote:Originally posted by Healthygirl: I have an appointment with a Infectious Disease Dr Sept 9.
Hi, and welcome here! - ID docs don't usually get it right re Lyme. I suggest you post in Seeking a Doctor for a doctor in your area. You should put your state name in your heading. People here will send you an LLMD list. You can also post about your own situation in General Support or Medical Questions.
Posts: 13171 | From San Francisco | Registered: May 2006
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
quote:Originally posted by Healthygirl: I think that I knew that something was wrong about 4 years ago. I was so tired. My brain was foggy. I went to the Dr and she said that my fatigue was because I was depressed. I may feel sad at times but I have rarely been a depressed person. This lead me to do acupuncture and work with a nutritionist, he thought I was weak in the adrenals... felt better with supplements but never totally back to normal. Flash forward to July 2009. I have a flu that keeps me pretty much bed ridden for 6 days. Then about one week later a large rash on my right hip. Dr says that it is a spider bit. I start looking at things about Lyme, not sure why but a gut feeling. I go to the Dr again because I feel sick again and hip hurts. I woke up to Wisconsin Public Radio and the show is about Lyme Disease. I advocate for myself and convince the Dr to give me antibiotics( I have always avoided antibiotics). I have a blood test and the test comes back positive. After 3 weeks of antibiotics, I feel tired, foggy again. I have convinced the Dr to give me 3 more weeks of antibiotics. I have an appointment with a Infectious Disease Dr Sept 9. I want to make sure I do this right. Sometimes the stuff on here makes me scared. Will I get better? I really feel that I have gotten off easy so far!
If you have felt this way for 4 years I would get
an appointment with a LLMD. Most IDS docs do not
recognize this disease to be like it cousin
syphilis which can become dormant and reemerge
later. For this you need a LLMD to treat. Please
do like Robin123 stated and post in Seeking LLMD in ?
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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