Topic: I've made up my mind. Self treatment ***New questions & post***
sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
quote:Originally posted by seekhelp: Without the Bionic, would you be where you are now though? Are you saying the LED could've replaced it and you feel you'd be where you are now? Just curious.
Me? No. I am not good at muscle testing myself, have never learned the art. The Bionic has a tried and true method. The other LED's are slightly different (the PE1 is strong), so do not use the same method and no one has developed a tried and true way. We discuss this in the email group (links to that group from the forum).
The three people I know personally who use the other devices with energetic testing, diet, homeopathics, are just as well as I am. Bob is one person I go to for help when I get caught up in what to do next. Every time we come up with something and I move to the next level. (Bob, I am going to beat you to remission )
So, I think Germany and the Bionic are the #1 way right now to do LED. I think that the PE1 is second, but only because there is not a developed protocol. I think both are adequate to fight the infections .... then you just have to add from there to rebuild your body to what it was/should be.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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tickled1
Frequent Contributor (1K+ posts)
Member # 14257
posted
I didn't read everyone's replies so maybe someone mentioned this but Stop and Shop has many abx for free. I recently had to fill a prescription for my daughter for a UTI and went to Stop and Shop and her prescription was free! You'd of course have to get someone to prescribe for you though and find out which ones they offer for free.
Posts: 2541 | From Northeast | Registered: Jan 2008
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
If it were me, and I had already developed tendon issues, I wouldn't go back on the Levaquin - ever (and yes, been there, done that).
Magnesium or no, even people without lyme can get tendonitis from a short period on Levaquin.
Why not start with the Rifampin (baby dose and build up to the 600mg/day) and add in a low dose of Flagyl to hit the cysts.
The rages could very well be Bart.
Remember to take Milk Thistle, as the Rifampin is seriously hard on the liver. Am hoping you will have a pcp at least monitor your bloodwork if you plan on doing this.
Just my humble opinion. Wishing you the will to get through this.
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
I went after bart and Lyme at the same time. If you go on Levaquin and have tendon problems, don't go back on it.
I did parasite cleansing during bart treatment. After the parasite cleanse and during the bart treatment was the first time I really had a breakthrough in my CNS symptoms.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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ping
Frequent Contributor (1K+ posts)
Member # 6974
posted
quote:Originally posted by lymeinhell: If it were me, and I had already developed tendon issues, I wouldn't go back on the Levaquin - ever (and yes, been there, done that).
Magnesium or no, even people without lyme can get tendonitis from a short period on Levaquin.
Why not start with the Rifampin (baby dose and build up to the 600mg/day) and add in a low dose of Flagyl to hit the cysts.
The rages could very well be Bart.
Remember to take Milk Thistle, as the Rifampin is seriously hard on the liver. Am hoping you will have a pcp at least monitor your bloodwork if you plan on doing this.
Just my humble opinion. Wishing you the will to get through this.
BD,
I think 'lymeinhell' has the plan for you. If you're going to take Levaquin to assist your Rifampin, make the doses very small. Remember that Levaquin is the "push" drug for the Rifampin. At the first sign of joint pain, please stop the Levaquin, else you could end up with permanent damage. Be very careful with the Flagyl; start slow and low dose. Actually, starting low dose with all the drugs is the best thing for you, so you're not knocked on your rear. You might be going through the "Stop and Start-again" process (like randibear is right now) a number of times, so don't get too discouraged.
If you're going to take Mg, take it at least 2 hours after the abx, or 6 hours or more before the abx. As for the Milk Thistle, I don't take these types of supps at all. You might want to wait until you're up-and-running on the abx before adding anything (other than probiotics). Add one at a time so that if you have a reaction, you'll be better able to gauge to what substance is causing it.
Best to you, BD. I know it's terrible; it's HELL to be poor! When you've gotta do it yourself, you've gotta do it, yourself. Hang in there and give us a daily call.
ping "We are more than containers for Lyme"
-------------------- ping "We are more than containers for Lyme" Posts: 1302 | From Back in TX again | Registered: Mar 2005
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Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
While I NEVER recommend self-treating... I do understand that it is a necessary evil for many of us. But... PLEASE be very cautious!
-KNOW the links to drug interaction sites and check every single thing you put into your mouth. Many herbs interact with Rx meds.
-Be SURE that there is someone you know who is easily accessible who always is aware of what you are taking, when you are taking it and how much is being taken.
-Befriend an RN. This will prove invaluable.
-Think of joining MedicAlert. They have a program for those who can not afford the fee.
-Keep your local ER or Walk-in clinic on speed-dial, and know how to get there in an emergency.
-PLEASE, only start one thing at a time, start slow and be aware of each med's side effects and recommended dosing.
-Speak with your local support group leaders for more help and attend a few meetings. Those connections will also prove invaluable.
We want to see you well and not hurt further from self-inflicted preventable mistakes, so PLEASE... do everything you can to be smart about this.
Posts: 7052 | From Colorado | Registered: Mar 2003
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