posted
Does anyone know what type of symptoms a patient typically would exhibit for their doctor to consider treating lyme with IVIG?
Due to complications from treatment, I probably won't be able to go back on antibiotics for quite a long time, if ever.
My symptoms are mostly neurological, with extreme fatigue...I don't know if IVIG is something I should look into or not.
Posts: 345 | From East Coast | Registered: Apr 2008
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losferwrds
Unregistered
posted
PM lymetwister, no bed of roses IMO
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posted
Some patients can get it for CIDP (chronic inflammatory demylenating polyneuropathy). You need to find a neurologist who is versed in IVIG and will prescribe it.
Some autoimmune conditions also qualify.
Posts: 984 | From San Diego | Registered: Nov 2006
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
There's a great lyme doc in my area who treats patients with IVIG. I don't know what his criteria are.
If you want to try calling his office and see if the staff can tell you, send me a private message and I'll give you the name.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
Apparently about half of the lymies respond well to IVIG, the other half don't. So, someone needs to characterize these groups; otherwise it is just an expensive gamble.
Even if insurance "covers" it, the co-pay is likely to be huge.
Posts: 8430 | From Not available | Registered: Oct 2000
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my neuro stuff is bad, and was wondering also about IVIG. seems i have good mix of MS and Parkinsons type symptoms...no fun at all
-------------------- i am not a Dr. any info is only for education, suggestion or to think/research. please do not mis-intuprest as diagnostic or prescriptive, only trying to help. **
dx in 08:lyme, rmsf, bart, babs, and m.pneumonia. Posts: 422 | From TX | Registered: Oct 2008
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I hope it works for you...how long have you been doing it? Have you had improvement of some of your symptoms?
Posts: 345 | From East Coast | Registered: Apr 2008
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posted
David....can I ask what insurance you have? You might not see this post though. Just wanted to ask. I heard it's realllllly hard to get IVIG and always wondered about it helping Lyme.
-------------------- ---Beautiful Disaster--- IgeneX WB: IgM: 18+, 31+, 41+, 58+, IgG: 31++, 39 IND, 41++, 31kda Epitope Test: Positive Labcorp: IgM: 23+, 41+ No LLMD due to money since Sept 2008. Was on Doxy, I.V. Rocephin (30 days), Flagyl. Also dx with Bartonella. Posts: 139 | From United States, East Coast-ish | Registered: Aug 2009
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lightparfait
Frequent Contributor (1K+ posts)
Member # 22022
posted
My neighbor was on it for 1 year, with no help! Very expensive too!
He has now been diagnosed with MS, as his symptoms worsened during this past year.
Posts: 1009 | From NJ | Registered: Aug 2009
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