Topic: cause of increasing migraines? bart? any ideas?
cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
[Sigh] ...I have been hoping and crossing fingers that my good streak would continue, but am finally facing the fact that either I'm relapsing or there is something different going on.
Have been off Lyme and Babs treatment since last Feb, and have been functioning at about 85 - 90% on most days.
A few remaining symptoms were keeping me from hitting that 100% mark, but I thought they might be related to other issues, secondary to Lyme.
But... the 3 - 4 day long migraines and episodes of cranial neuralgia are increasing in frequency. Previously they were once a month, then twice.
Now I've had 5 in a six week period. This is ridiculous.
LLMD suspects bart could be the issue. But with my GI history (c. diff) and an inability to tolerate bart meds... I'm in a tight spot re: bart treatment.
We've sent off more bloodwork to see if anything shows up, and I'm getting another neuro work up with MRIs etc (previous MRIs have shown plaques, etc).
Any ideas on what can cause increasing migraines?
These are purely right sided, wake me in the night, completely debilitating. Axert gives a bit of relief, but it's not foolproof.
I have diminished sensation on the right side of my face/head, and documented inner ear damage on that side as well (non-LL ENT categorizes it as damage from bacterial or viral infection).
The pain extends down my neck into the upper back. And evidently there are numerous trigger points as well.
Any thoughts on what's causing this? I'm open to all shots in the dark here, and any thoughts on how to proceed.
Thanks for any guidance.
Ready to cry because I'm so sick of this ridiculous complex of diseases, cactus
Editing to add that the only clinical diagnosis I've ever received has been bart. Everything else - including a ton of co-infections and viruses - has been confirmed via bloodwork. The small amount of bart treatment I've done did yield results - which is why we are wondering now about bart.
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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posted
What's your 1,25D level? I had near daily headache pain until I got my 1,25D level down.
Posts: 727 | From USA | Registered: Mar 2006
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
Cactus, You might be looking in the wrong direction for the answers.
I had daily headaches and migraines that were incapacitating.
I started taking Wobenzym, and within two weeks, I no longer woke up every morning with a splitting headache.
Wobenzym is a blend of systemic enzymes. Systemic enzyme therapy helps to reduce inflammation and fibrin, which is high when you have hypercoagulation.
Dr. C. found that 90% of his Lyme patients have hypercoagulation.
Symptoms of hypercoagulation include pain, fatigue, and headache.
Carol
Posts: 6947 | From Lancaster, PA | Registered: Feb 2004
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Cactus,
I am so sorry that you are in this boat. I have the same complex. It is the symptom that keeps me debilitated. the pain is excruciating......
I have had *some* relief in frequency with babs tx. I still get 4-5 days per month, one week before my period that I cannot function at all from the head pain...but! the rest of the month is OKAY.
I have not treated Bart yet, but I suspect that it is a player for me....I do take lumbrokinase (same concept as Wobenzym, I think).
I hope you find an answer. Daily HA's are bad, but these migraines are torment.
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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posted
I agree that Wobenzyme could help. Worth a try! It sounds like an inflammation problem, which MIGHT be a separate issue from Lyme& Co.
I used to have migraines too, so I feel for you. I also have had cranial nerve pain and it is horrible.
My migraines disappeared after treating for Lyme and babesia.
Have they tried any beta blockers on you for the migraines?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
An enormous thank you to all of you for the suggestions - I want to hug you all for giving me some hope.
I am emailing my doc now, and asking about all of the above. Maybe we can try one option at a time until we find something that works.
Too sick to type more, just wanted to say thanks.
Will update tomorrow, cactus
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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posted
I have been seeing a chiropractor for my lingering shoulder pain, and it ends up that my spine was not mobile in areas, which caused my shoulder pain.
Apparently toxins can cause subluxation, then subluxation creates a stagnant place in your body for more toxins and pathogens to live.
Sometimes it's not the Lyme, but the damage Lyme causes to our body.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
quote:Originally posted by cottonbrain: what helped me most...was low dose benicar. it's an angiotensin inhibitor and really goes after inflammation.
Cottonbrain, Reading about Benicar was what got me looking for something to reduce inflammation in an attempt to reduce my symptoms. That's how I found out about systemic enzyme therapy.
Low magnesium can also be behind migraines, and taking supplements may help reduce headache.
quote: Two doubleblind studies have shown that magnesium supplementation may reduce the frequency of migraine.
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