posted
Hi... I've been searching but cannot find anything about this. Perhaps the info is buried in old posts, but, have spent about 2 hours so far
My son and I both have lyme; he has done abx + more but still has problems (tho way lessened), I've been on and off the MP as 'life' dictates and have notable improvement, but/and just wanting to get done at this point and hoping for a quicker easier protocol. Yeah, I know, THE magic bullet, if there ever will be one.
Anyway, I'd read Dr. Whitaker's newsletter and some other alternative doctors' experiences with lyme pts and vit. C I.V.s, and it looks awfully tempting to try. (Dr. Levy is promoting a product called liposomal C that he says is even better than an IV. I've asked for their clinical studies, will let you know what I hear about that.)
But, has anyone tried I.V. Vitamin C or known anyone who has, and what kind of rates of success has anyone had?
Thanks all. Without you I wouldn't have found my son's doctor a few years ago...
Posts: 6 | From Athens GA/Patzcuaro MX | Registered: Oct 2009
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massman
Unregistered
posted
Yes ! had a friend - RN and ND (Naturopathic Doctor) who had a daughter that got lyme at age 3.
I knew the kid at age 16 and boy was she a mess. Really messed up knees, extensive muscle pain and fatigue. Lyme was laughed at in WV at the time.
Mom searched and searched and finally decided to try IV Vit C.
Excellent results ! I saw her about 2 years later. She was doing well and had had a baby that was in excellent health.
The girl's stepdad was a really sharp master herbalist but the IV C was the thing that by far worked the best.
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bettyg
Unregistered
posted
sorry, no info on that, but welcoming you.
did you look thru TREEPATROL'S NEWBIE LINKS??
Welcome to Lymenet! I'm so glad you found us! You've come to the right place for education and support!
The following is some links that may be helpful to you:
People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.
The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately.
This explains the medical politics around Lyme, and why you need an ILADS-educated or ILADS-member LLMD (and there are also some ILADS-member LL NDs (naturopathic doctors):
ILADS The International Lyme and Associated Diseases Society (ILADS) provides a forum for health science professionals to share their wealth of knowledge regarding the management of Lyme and associated diseases. www.ilads.org
They will also send you a ``test kit'' with their required form, all the test vials, & box to ship it in. Be sure to download Igenex's required form. MD, DO, ND, AC, DC are all fine** must sign, date, and show diagnosis code on there why he's ordering the test.
Optional tests include: co-infection panel for your area of country and PCR whole blood
Igenex is pre-pay/out of network for most insurances. If you are on medicare, Igenex will file the paperwork & it's free to you.
Betty's suggested posting guidelines: Many of members have neuro lyme, and it is hard to read long solid block text and be able to comprehend.
For easier reading, please edit your post by clicking the ``paper pencil' icon to right of your user name, which opens up the subject line and body text.
You can break up your longer paragraphs into smaller paragraphs. Please hit ``enter'' key twice after each paragraph, also.
Go to left hand corner and mark box to receive `all replies', and click edit send.
Thank you for posting in a manner that makes it easier for all to read and help others.
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posted
Thanks Massman, that's really encouraging to hear!
Thanks for the welcome Betty... We've been dealing with for a long time, TG for this site and the internet in general!
actually I've been off and on here since 2005 tho didn't post much, but lost/can't remember my user name, couldn't remember what email I'd used to recover it, etc... LOL plus a new computer that of course doesn't know that info. So I decided to just re-register. Happily now my computer can remember for me! Posts: 6 | From Athens GA/Patzcuaro MX | Registered: Oct 2009
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posted
My son and daughter did vit C IV's over the summer. My daughter had 17 and my son had 13. They felt perked up for a while... it seemed to give them a boost for a few weeks but that passed. I couldn't afford to keep that up with 2 of them going. It did help at the time but eventually that all wore off. It gave them a bit of energy but not sure it did much for the Lyme....
Posts: 89 | From NC | Registered: Jun 2008
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djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
Also bear in mind there is often an over active immune response w/ lyme that iv vit c would complicate further.
its a delicate balance eradicating the infections while balancing immune function then rebuilding it.
-d
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
posted
The IV vitamin C and glutathione IV are what helped me turn the corner. I cannot do any antibiotics, allergic reactions to everything but Levaquin...no not herxes..true angioedema reactions with rash.
I am getting it every 6 weeks now and am holding my own, able to do more and not end up sick again.
Posts: 130 | From Central NY | Registered: Jul 2009
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WildCondor
Unregistered
posted
It does not treat Lyme and it doesn't do much of anything. It can help with energy, but it also messes with your insulin, you can get the Vit C you need by mouth, everything in moderation is good. i used to do IV Vit C so I am experienced and now, years later, I realize it was indeed quite useless.
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WildCondor, could you direct me somewhere that I can read about how it messes with one's insulin? I've never read that before...
My son did 2 glutathione IVs - the 1st one was only glutathione and it really seemed to help him detox. The 2nd had B12 (the good kind) added, and he had to stop after a few minutes as he wasn't feeling well. They were done a few months apart, too, so not sure why that 2nd one did that. There were no preservatives.
Posts: 6 | From Athens GA/Patzcuaro MX | Registered: Oct 2009
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posted
I spent 10 days in a Mexican hospital on daily IV's of Vit C and something called Dioxychlor. Their primary focus was to cure my severe candidiasis. So I was on a special (and delicious) diet, too.
I have to say that I walked out of there feeling so very much better! I can't say what the reason was, but it was a high point for my on my long road.
Now I am taking fat soluable vit C that my doctor recommended. But if I could do it, afford it....I would do the IV vit C again.
-------------------- DOCTOR: "I don't think you are sick." PATIENT: "We are all entitled to our opinions. I don't think you are a doctor." Posts: 697 | From Northern California | Registered: Jul 2009
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posted
I posted about this last year. I had an IV vit c infusion in about november last year. I only had one because I felt terrible afterwards for about 3 -4 weeks. I was probably herxing, but my doctor was inexperienced with lyme so I was worried it was a reaction and discontinued. I also found them cost prohibitive.
-------------------- Sx Start Jan 08 (test neg, but herxing)Susp Lyme, Bart + Babs??
ABX Doxy 400mg + Amox 1g Jun - Sep 08 Rifampin 600mg + Biaxin 1000mg Tinidazole 1000mg/day - Sep 08 to June 08
Currently taking Salt/C 15g (himalayan salt)
85-90% better Posts: 231 | From Australia | Registered: May 2008
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