posted
The Low dose naltrexone helps me fall asleep and wake up more refreshed and less sore. But I was really hoping it would also help with my left arm weakness and the numb feeling in my left cheek and the tingling in my fingers and toes, which it has not done.
I've been taking the low dose naltrexone for about 4 days. I guess it's too soon to be expecting something? But the left arm is doing really bad today. Could that maybe even be a good sign? Like maybe it has to get worse before it gets better?
Posts: 311 | From CA | Registered: Jul 2008
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posted
Maybe it is mysterious and elusive "herx" people talk about here.
Frankly why you think LDN will help everything in your system? It is just immune modulator, not properly researched in this role. Its effectiveness is based on anecdotal evidence so you dont know what it does and how it does it and whether it applies to you at all
Heck I myself love to have lab tests which will show immune function ( I know what I need to know) but I cant find a doc who has a slightest clue about immune system labs. Seems the only people who actually get proper labs are ones in some specific clinical trials
This way you could get baseline before LDN ,and then after taking it and see what it actually does.
Posts: 856 | From MA | Registered: Jul 2009
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D Bergy
Frequent Contributor (1K+ posts)
Member # 9984
posted
LDN takes months to really start making a difference. It is a very subtle treatment.
Dan
Posts: 2919 | From Minnesota | Registered: Aug 2006
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
I agree with Dan. It is a subtle treatment and will take time to see improvements.
Sounds like you probably have neuropathy. Lyme and co-infection treatment has helped my neuropathy a lot. Hopefully you are in treatment for whatever infections you have.
Colt - Are you seeing an LLMD? They will typically run some immune system testing. Some LLMD's may be willing to run tests that you ask for if they make sense in evaluating your condition. Can't hurt to ask.
Colt wrote: Maybe it is mysterious and elusive "herx" people talk about here.
That's hysterical to anyone who has to suffer through lots of serious herxing. If only it were elusive. My herxing has finally stopped being 100% of the time just in the past few months.
Terry I'm not a doctor
Posts: 6286 | From Oregon | Registered: Jan 2006
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quote: Colt - Are you seeing an LLMD? They will typically run some immune system testing. Some LLMD's may be willing to run tests that you ask for if they make sense in evaluating your condition. Can't hurt to ask.
I dont need "some" ,I need particular tests. None of Drs (including LLMD) know where and how order them -apparently not standard stuff. And I cant pay for those out of pocket and arrange the lab as I dont know whole logistic setup (didnt have time to investigate it) and it might be very expensive ( for it to make sens I will have to run at least 8 assays at least 3 times - before , during and after).
quote: My herxing has finally stopped being 100% of the time just in the past few months.
How do you know its "herx" and not symptoms flare up?
Posts: 856 | From MA | Registered: Jul 2009
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posted
Well I can testify that a Herxheimer reaction is a real thing.
About 3 weeks after tick bite, two weeks after circular rash, 4 days of flu symptoms, and 12 hours of facial droop, I started Doxycycline and Flagyl. 3 days later, I couldn't move my head, couldn't bend over to tie my shoes, my wrists curled up with pain, and I could hardly speak a sentence without forgetting why I had opened my mouth.
I have had weaker versions of this effect (every time I restart Flagyl) throughout the past year and a half. Never lasting more than about 5 days.
Classic Herxheimer.
Posts: 410 | From Victoria BC, Canada | Registered: Jul 2008
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Coltman, you sound smarter than LLMDs! You've got to have some serious medical background.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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You've got to have some serious medical background.
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