posted
I am writing for my 78 year old mother. She has seen many doctors and nobody can determine what is wrong with her. They did the Ink Blot test and said she does not have Lymes. Yet, something is terribly wrong and she is getting worse everyday. She is suffering severe pain. She thinks she does not have Lymes since she does not have the most typical symptoms and the one blood test the doctor did was negative. However, if she is still having so much pain that began when a tick was attached to her ear for a week, how do you get a doctor to diagnose Lymes or at least, to do more tests to completely rule it out?
She started in late January with a very stiff neck that gets a little better and then worse, but has never gone away.
She has extreme muscle pain in her back and hip. She has most recently fainted suddenly and fallen flat on her face. They did a MRI and ruled out a stroke. She is now unable to walk or move her legs. She can hardly use her right arm because of extreme muscle soreness. She has become very depressed because of this pain.
Could these be symptoms of Lymes and if so, what can you suggest that I could do to convince her to see a LLMD? Thanks for any help you can give me.
Posts: 34 | From Florida | Registered: Mar 2009
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
Yes, those are all symptoms of Lyme Disease.
I don't know what you can say to get her to an LLMD, but she will NOT get better unless she finds a doctor that will support her and treat her, and that means going to see a LLMD. Maybe if you tell her that much?
Also, it is not called Lymes, it is Lyme...
Good luck! Hope your mother listens to you about finding a LLMD.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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posted
sorry to hear about your mother's health problems. I'd just like to add that testing is deplorably inaccurate (46-58%) even the best of them can't be used as a diagnostic tool.
so no test can rule lyme in or out.
As disturbedme said, strongly suggest finding a LLMD. Convincing someone -- that's a toughy. I'm not a persuasive person, so I'll leave it to others here for suggestions.
I don't know if bombarding her with information will help.
Good luck.
Posts: 571 | From Massachusetts | Registered: Oct 2008
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Igenex has the best Western Blot test I have seen.
Many have to do a challenge of antibiotics before
testing to get enough antibodies to react with the
antigens on the test. Borrelia hide within your own
cells and will not migrate to the tesing bands to
determine positive. So it would be best to just
get them to a LLMD asap. You can post seeking a
LLMD in xxxx in Seeking Doctor section in flash
discussion.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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