posted
i understand...i just posted a similar post in general support i am so darn fed up with the whole thing also........apart from the fact of not feeling well.....all the politics, paperwork and general...whats coming next feeling....so i completley understand.....
-------------------- Oct 09 Positive CDC Western Blot Jan 10 Positive Babesia Duncani Jan 10 Cd57 28 Mar 10 EBV, IgM, IgG HHV-6 IgG Posts: 739 | From NC | Registered: Oct 2009
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
I understand. I was a mad woman looking for answers
and I found them here. I was even madder when I
found out my doc dismissed me with having one band!
They run the Elisa and if positive they run a WB. Good Luck.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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posted
My stomach also bothered me when I first started doxy, but then again I took it on an empty stomach as recommended by the pharmacy medication info sheet. Big mistake!
I had to go off doxy for a while so I could eat. I then started taking it with my large meals, and it did not bother my stomach.
However, I was on doxy and zithromax for 5 months before I started to see a reduction in my LD symptoms.
I then switched to Biaxin and Flagyl and got about 80% better. A year later I am still working on that last 20%.
I have always been a pretty easygoing person, but LD caused me to have anxiety, rage, and insomnia. SSRIs and sleeping meds (Ambien, Rozerem, etc.) made me worse.
You might want to try Buspar. It helped me a little with the anxiety.
posted
Sounds like you will have to treat Bartonella. This is the scariest co-infection and is the one that causes the most anxiety, and the most neurological and emotional problems in Lyme patients.
I will tell you I never herxed on Doxy, I just don't think the stuff is very powerful on its own, in fact I don't think I've ever herxed on any treatment so far, don't know why. (though haven't done any cyst busting) But I did get pretty nauseous on doxy as my stomach started adjusting.
I'm 6 months into treatment. But I've been where you're coming from and still am not sure what to make of the test results, I too only have band 41 positive. I've been through the bart treatment and now my anxiety and other issues feel much more normal.
Bart and Lyme can cause some serious treatment resistant depression. SSRIs and mood stabilizers never did much for me. Doxy(for Lyme) and Levoquin(for Bart) were the absolute best neurological treatment I've ever had.
I do still take a small dose of Klonopin and it has helped more than anything for the anxiety.
You have a long road ahead, but it is a road of improvement, enlightenment, and understanding.
I still have the babesia road to travel, I still have chronic fatigue to deal with, but hope is the fuel that will carry you through. Please don't lose it.
Posts: 121 | From Silver Spring, Maryland | Registered: Oct 2009
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RZR
Frequent Contributor (1K+ posts)
Member # 20953
posted
I am so sorry you are going through this.
I too am feeling the same. I am into 4 months of ABX and think I cannot make it. I am dealing with yeast so early in my treatment that I don't know what to do.
I wish this nightmare could end for all of us.
Jen
-------------------- Tick bite May 2009 Diagnosed June 2009 Posts: 2329 | From SouthEast | Registered: Jun 2009
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Only having this for a short time could make it harder. I know, before I got diagnosed, I had trained myself to ignore my symptoms, and to accept them as my new normal.
Now, I can hardly remember what it was like to be healthy, so I don't miss it as much.
Also- I agree with everyone who has mentioned Bartonella. Bartonella gave me horrible emotional problems and anxiety. I also feel like a crazy person at time.
If you can afford the Lyme specialist, they will most likely rely more on a clinical diagnosis rather than the blood test- assuming the are ILADs trained.
Although Igenex is more reliable than other tests, not everyone tests positive. So if the test comes back negative, don't lose hope!
Nicole
Posts: 503 | From Alberta, Canada | Registered: Jun 2009
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Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359
posted
Mel, sorry you've been forced to join the ranks here. Hang in there.
There are many peaks and valleys with lyme, but you're probably sick of cheery cliches by now.
But, seriously, I've been at this for a while now and it does get better. It's a bit of marathon and not the 100M dash.
Once you get into your LLMD and get on the right protocol, it will be easier to feel positive.
-------------------- "Whatever can go wrong will go wrong." Posts: 2062 | From CT | Registered: Jul 2008
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