posted
After 5 weeks of IV therapy, I've become allergic to Rocephin. My LLMD has ordered Invanz, 1 G per day, for 2-4 weeks. He's also prescribed oral Tindamax.
Has anyone tried Invanz and what was your outcome? Is 2-4 weeks sufficient?
-------------------- Misdiagnosed with CFS for 7 yrs. Diagnosed by LLMD in 2009. Aggressive treatment for 3 years with minimum improvement. Posts: 120 | From FL | Registered: Jun 2009
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My husband did Invanz and we didn't notice any changes but it was toward the end of his IV treatment and he had already made alot of progress. I believe he did a couple months of it.
Posts: 984 | From San Diego | Registered: Nov 2006
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-------------------- Misdiagnosed with CFS for 7 yrs. Diagnosed by LLMD in 2009. Aggressive treatment for 3 years with minimum improvement. Posts: 120 | From FL | Registered: Jun 2009
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Did some research about drug .Seems good stuff -csf penetration ,gram negative activity, resistance to beta lactamase. Downsides - vulnerable to efflux pumps (but so are other drugs) and HUUUGE price tag, - $800/ 1g? $30k /month? - more expensive than tigecycline lucky those whose insurance covers it
Posts: 856 | From MA | Registered: Jul 2009
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coltman - thanks so much for the link and info.! I love the lymemd's blog! I'm feeling more optimistic about invanz, now. I guess I'm lucky that my insurance has covered it 100%.
-------------------- Misdiagnosed with CFS for 7 yrs. Diagnosed by LLMD in 2009. Aggressive treatment for 3 years with minimum improvement. Posts: 120 | From FL | Registered: Jun 2009
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Coltman are you sure about the $30,000 price tag? Insurance didn't even blink although we did have a very good infusion company that got things authorized for us. Still, $30,000?
Posts: 984 | From San Diego | Registered: Nov 2006
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quote:Originally posted by Parisa: Insurance didn't even blink although we did have a very good infusion company that got things authorized for us. Still, $30,000?
I am not sure but only price I could find lists it at $800 per 1g.
You can easily check how much they charged the insurance company though (just ask them)
Posts: 856 | From MA | Registered: Jul 2009
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I am starting my 3rd week of once daily, I.V. Invanz. It is much easier on my system than I.V. Rocephin, and I am seeing slight, gradual, improvements on this medicine. I'm also taking oral Alinea, and Benecid. The only side effect for me is a slight metallic taste in the mouth after my dose. That effect lasts about 2 hours. (Rochephin beat me up pretty badly.) Invanz is MUCH easier on my system. I'm using a saline drip bag with a dry powdered Invanz bottle attached. You break an internal valve feeder seal to the powered medicine, squish and shake the saline bag mix them together, then start the drip.
Posts: 135 | From Orlando, Florida | Registered: Feb 2009
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gridmonster - I'm happy to hear that Invanz is easier for you to tolerate and that you're seeing improvement. That's great!
I'm having a very hard time with it. It gives me severe muscle pain (mostly in legs), vertigo, and a feeling of being very sick. I've taken 2 days off because the pain became unbearable. I don't think I'll be doing more than 2 weeks of this stuff.
For others, the cost through my pharmacy is $70 per 1 gram.
-------------------- Misdiagnosed with CFS for 7 yrs. Diagnosed by LLMD in 2009. Aggressive treatment for 3 years with minimum improvement. Posts: 120 | From FL | Registered: Jun 2009
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