seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Is there ONE article written from a non-LLMD on how to treat this organism? My ID doc will never ever read nor respect the findings of Dr. S in FL or other LLMDs. Is there anything in the mainstream world saying Mepron/Zithromax is not the best treatment for the WA-1 strain? I've looked over and over again and come up empty. I don't see how this is possible if mainstream labs like Quest/LabCorp test for it. Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
The tests aren't the problem. The LLMD's aren't the problem. The scanty research on WA-1 (ducani) isn't the problem.
It is the IDiot duck.
And THAT will be your downfall and stressor through this ordeal.
seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I understand TInCup about that issue with the ID doc, but I'm just perplexed no real research exists on WA-1. Why bother developing a commercial test for it then it it's irrelevant? Somewhere, there has to be scientific research.
If only Igenex tested for it, I'd understand more. Are you saying ID docs are clueless about even the existence of WA-1? They know every pathogen under the sun. How can they let this slip by?
I'm trying to determine if WA-1 is even a real Babesia organism like Microti. Where do these LLMDs come up with all these definitive treatments?
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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Health
Frequent Contributor (1K+ posts)
Member # 6034
posted
I have Babesia Duncani, I think this is WA-1 is it not?
I know it is not Babesia Microti. I tested positive for Babesia Duncani on the FISH test and another IGENEX Babesia test, very positive the LLMD said on both Babesia Duncani tests. I had untreated Babesia for about 18 years.
Here is my input and I feel it is very valuable, because I did both treatments for Babesia, the older treatment for Babesia which is the Clindamycin and Quinine and the Mepron and Azithromycin.
Clindamycin and Quinine was my first Babesia treatment I used. I had nothing else to compare
Posts: 1250 | From Canada | Registered: Aug 2004
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Yes, WA1=Duncani. I'm missing the point on whether or not one of your treatments, if any, was more effective in eradicating this bug. Can you elaborate Health? Are you cured of it?
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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Health
Frequent Contributor (1K+ posts)
Member # 6034
posted
Hi again,
I have Babesia, it is really terrible. I have the EMF sensitivity and light sensitivity that was and is from Babesia, as well as much much worse lyme from Babesia.
I would have died had I not treated Babesia, AND
I recommend BOTH treatments for Babesia or a few different treatments, drug TREATMENT, no herb did it for me, just like drinking water taking herbs, that is how bad my babesia was and is.
I feel both treatments helped, but the Quinine and Clindamycin helped the EMF so much, almost cured it but I did not stay on it for 4 months,
I only stayed on it for 3 months, then relapsed with Babesia 8 months later, and saw new LLMD, my regular one retired, so this new LLMD put
me on Mepron and Azithromycin, and I herxed so badly, I went off it because I was almost in a coma, and then back on it, but still the EMF never really got much better,
will see LLMD in a few weeks, I would like to try Quinine and Clindamycin, because I have the EMF, and this combo nearly got rid of EMF, I am so sick on computer, could never work on it, the computer
is when I work, so I will let you know if the Quinine and Clindamycin works.
no where have I ever seen my story that the quinine and clindamycin got rid of EMF, took 3 months but helped soooooo much.
hopefully it will work again? I hope so, I just hope so because I just want to work again, and I cannot because of the EMF, which is the electro magnetic sensitivity,
the light is better though, and the Mepron and Azithromycin helped this, so I think that both combos are what I need, I feel that I could? be on Babesia treatment for 1 more year, so that is really, over 2 years of treatment for Babesia,
it is really tough, really tough with Babesia treatment,
Trish
Posts: 1250 | From Canada | Registered: Aug 2004
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massman
Unregistered
posted
If I recall correctly Buhner said we have only been aware of Babs since 1990.
Remember that the government moves like sludge so they have probably not funded any studies. Yet...
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
Hi Trish!
I have the bad EMF sensitivity too! How strange.
Can you tell me the dose you took of the Quinine?
Was it 650 mg three times a day?
Or even if you know how many pills you took, how many times a day, that might help.
I'm trying to figure out if my current dose is enough. It's 324 mg X 3 daily.
Now, in the U.S., you can only get the brand name of Quinine which is called Qualaquin (they are clear capsules filled with white powder), and each capsule is 324 mg.
But if you took it awhile ago, you might have taken just the Quinine tablets.
Thanks if you can help. We might have talked about this awhile ago, but I just can't remember!
Posts: 4590 | From Midwest | Registered: Jun 2008
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Health
Frequent Contributor (1K+ posts)
Member # 6034
posted
Hi Hoossier,
Wow, that is unreal you have the EMF too, that is such a terrible thing, I also have MCS,
I was SO much better with the EMF on the clindamycin and quinine, but the light took a long time to get better, but I am out in light now for few hours and ok, so it seems,
I am not sure what dosage I took, but will look it up for you later, going to bed now,
I took it twice a day, I think 600mgs twice a day of each, I will check, clindamycin and quinine
I noticed I could go on computer for few minutes NO emf in a week, then slowly better,
write later,
I want to cure EMF, I hope we can,
I thought I was almost cured, but not quite.
however I think I have permanent ringing in ears, from quinine, but it may be lyme worse? i dont think so.
have you been on the clindamycin and quinine?
Trish
Posts: 1250 | From Canada | Registered: Aug 2004
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
Thanks for checking into that for me!
Yup, I am on Q/C right now. I'm taking 324 mg of Qualaquin (quinine) three times a day, and 600 mg Clindamycin three times a day.
I have heard of people taking more quinine than what I'm on, so I may ask my doctor about increasing it. Surprisingly, it isn't bothering my ears too much. Though if you took 600 mg X 2 daily, I'm taking less than you were.
Also, did you pulse it 10 days on, 10 off, like some people do?
Thanks again! And sorry if I am changing the topic too much here.....
Posts: 4590 | From Midwest | Registered: Jun 2008
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