posted
Honestly, WITHOUT all of you, and the other Lyme Organaizations, I'd have gone into a coma and died of kidney failure, as NONE of my regular docs were willing to do anything but crisis care and then palliative care (what is done in a hospice-symptom relief only for cases where there is no known cure for an ailment.
When I left the hospital, ONLY my LLMD was willing to give me abx beyond the crisis, and in an attempt to "take a break" due to yeast (BIG MISTAKE), I got dangerously ill with *another* kidney infection. Again, ONLY my LLMD was willing to give abx to pull me out of the infection.
Thank God for ILADS, CALDA and LYME NET.
You all LED me to HIM and HE's SAVING me! THANK YOU * THANK YOU * THANK YOU!!!
I made this video to show the SEVEN FACTS that could have saved me...
posted
Thank you! SO MANY don't have/take the time to read, so I'm trying to give them a quick peek into what it took me so long to learn from so many sources.
Thank you so much for your help. Let's stop the spread if we can, and lead others to treatment when it's too late for prevention. We all know that only our knowledge has saved us, and the others who led us to it, have collectively saved our lives.
-------------------- "SEVEN LYME FACTS THAT COULD HAVE SAVED ME" VISIT ME AT:
TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
Well done!!
Posts: 6286 | From Oregon | Registered: Jan 2006
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joalo
Frequent Contributor (1K+ posts)
Member # 12752
posted
Well done! This is going out to everyone on my contact list. Thank you so much!!
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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posted
Wow! Thank you so much. You have no idea just how many this may reach. And it is hard to reach people. Video is well-done, though. Scary, but Lyme is scary. After 15 years, I'm damn scared of it. We knew I had been bit. I had the bull's-eye rash. Doctors misdiagnosed for 8 long years. Someone may avoid this because of your work on this video. Thank you again.
Posts: 108 | From Florida | Registered: Sep 2005
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
OMG, this is FABULOUS!!! Thank you, thank you, thank you. I'm sure that it will help a lot of people over time.
Posts: 3771 | From around | Registered: Mar 2008
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posted
Thank you so much for this wonderful work! Blessings, Just Jan
-------------------- I used to be marblenose but my lymebrain could not remember what email account I used to sign in so now I am just jan... bit in 1994 diagnosed in 2004 I have tried every anbx and alternative known to personkind.
NICENESS COUNTS!! Posts: 61 | From orange county new york | Registered: Jul 2008
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-------------------- DOCTOR: "I don't think you are sick." PATIENT: "We are all entitled to our opinions. I don't think you are a doctor." Posts: 697 | From Northern California | Registered: Jul 2009
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posted
Wonderful video. I also have it on my facebook page and am also sending it to many friends and family. Thanks for taking the time and energy to create it. In Gratefulness Joyce
Posts: 905 | From Santa Cruz,Calif | Registered: Aug 2005
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
FYI-
You got a big thumbs up from some influential folks in the Lyme community for your work on this. Heard it through the grapevine.
Amanda
Frequent Contributor (1K+ posts)
Member # 14107
posted
This is so well done!
Have you thought about sending it to your local news station?
-------------------- "few things are harder to put up with than the annoyance of a good example" - Mark Twain Posts: 1008 | From US | Registered: Dec 2007
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posted
Sort of....WE're a bit fragmented, but add me as Ticked Literally, and it'll link you into a lot of wonderful and helpful Lymies, some with pages.
I SO WISH we could conglomerate! God help them if we moved as ONE!
-------------------- "SEVEN LYME FACTS THAT COULD HAVE SAVED ME" VISIT ME AT:
posted
Hey, congrats, LymeLearned - I recently saw it -
Wanted to let you know that some folks at CALDA are impressed too and put a link for it on our CaliforniaLyme discussion!
Keep fighting - it's a marathon, not a sprint -
Posts: 13117 | From San Francisco | Registered: May 2006
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Cass A
Frequent Contributor (1K+ posts)
Member # 11134
posted
Very Well Done!
Best,
Cass A
Posts: 1245 | From Thousand Oaks, CA | Registered: Feb 2007
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
OMGoodness. I love Enya. She was our fall asleep lullaby when my daughter was a baby. We listened to her every nite after our stories. Thanks.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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