posted
Hi everyone I am looking for some first hand accounts of Minocycline...reason being that I was feeling mostly good for quite some time with Ceftin/Biaxin/tinidazole and switched the Biaxin to Minocycline and noticed I gradually started to sink.
I'd been on Ceftin for about 9 months at only 2000mg a day and maybe the bacteria were getting used to it, but I thought Minocycline was maybe the weak link.
Any thought/experiences to share?...don't want to but more expensive macrolides if Minocycline is legit...
Thanks
Posts: 410 | From Victoria BC, Canada | Registered: Jul 2008
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better days!!!
Posts: 298 | From usa | Registered: Aug 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Some do fine with mino. Others have ear trouble with it. If your ears do okay, great. But, if not, try to switch at the first sign of tinnitus or vertigo.
B-6 and NAC can help. Liver support is essential when on mino. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Mino is doing well by me. I was in remission last year, then relapsed after 6 months off meds. I have a new LLMD, she has me on mino... and it is doing wonders.
The first few weeks was a terrible, terrible neuro herx (spacy, dizzy, lots of nerve pain, L'hermitte's sign, etc.) but... now I am doing much, much better.
Good luck and fast healing to you.
-------------------- "Looks like freedom but it feels like death.. It's something in between, I guess"
Leonard Cohen, from the song "Closing Time" Posts: 822 | From California | Registered: Jan 2006
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posted
hmm good replies. Maybe it's not a waste of time after all. Sounds like many people are using it...
I seem to remember Burascanno saying minocycline was ineffective against Lyme a years ago too but obviously other LLMDs are using it with effect.
Posts: 410 | From Victoria BC, Canada | Registered: Jul 2008
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Lauralyme
Frequent Contributor (1K+ posts)
Member # 15021
posted
I'm on mino with good results so far. It does cross the blood brain barrier.
Sorry if you replied to my PM and my mailbox was full, I did clear it.
-------------------- Fall down seven times, get up eight ~Japanese proverb Posts: 1146 | From west coast | Registered: Mar 2008
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posted
I was on mino for about four days before Dr. R pulled me off due to extreme vertigo, balance issues, etc.
Turns out that woman are much more likely than men to have vertigo and other vestibular disturbance problems with mino. (Link.)
Anyway, mino is supposed to be very helpful if you can take it. I had to switch to doxy, which has been helpful.
Posts: 398 | From By the Salish Sea | Registered: Dec 2008
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posted
Tried mino a few months ago. I got dizzy, weak, more emotional, and had a lot of tingling in my arms and eventually my tongue. I switched to doxy and don't have the same problems.
Women do seem to have more problems with this drug if you look it up. It's hard to say though if it was a drug side effect, herx or what.
Mino is supposed to have a smaller molecular structure and thought by some to cross the BBB better than doxy. It is thought to go after the lyme, erlichia, RMSF and have some effect on bart.
I don't know if that helps. How are you doing?
B4LYME
Posts: 144 | From PA | Registered: Nov 2009
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
Daughter has done well on mino. Really did help the brain issues.
Been on it for two years. Had to start VERY SLOWLY.
Posts: 2903 | From AZ | Registered: Feb 2006
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