posted
I think my LLMD is the same as yours. He has me on Flagyl 250 mg twice daily for 2 weeks on then 2 weeks off.
Posts: 984 | From US | Registered: Dec 2007
| IP: Logged |
I was on 1000mg/day and went to a new LLMD...he shook his head and said "That is not enough...you need to up that to 500mg three times a day if you want to kill the cysts."
I'm not saying who is right but only 500mg a day is low by most standards I have read.
Posts: 410 | From Victoria BC, Canada | Registered: Jul 2008
| IP: Logged |
lymebytes
Frequent Contributor (1K+ posts)
Member # 11830
posted
My LLMd just rx'd Flagyl 1000mg per day for the next 3 months. (He is well known ILADS LLMd).
I need to go on it because of H.pylori. But am really afraid of he LD cyst busting effects. How have you done?
TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
My now famous lyme doc had me on it daily (3 times per day, if I remember correctly) for 2 months.
Posts: 9931 | From Maryland | Registered: Dec 2007
| IP: Logged |
MariaA
Frequent Contributor (1K+ posts)
Member # 9128
posted
quote:Originally posted by migs: What's with the low dose?
I was on 1000mg/day and went to a new LLMD...he shook his head and said "That is not enough...you need to up that to 500mg three times a day if you want to kill the cysts."
I'm not saying who is right but only 500mg a day is low by most standards I have read.
I had lots of improvement with only 250 mg a day and a lot more side effects if I went higher. I know that it's usually prescribed higher. My LLMD was OK with me exploring the lower dose, since it was part of combination therapy with other antibiotics.
-------------------- Symptom Free!!! Thank you all!!!!
Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
A high percentage of people get permanent neuropathy if they stay on Flagyl for an extended period of time. I have never had neuropathy (sp), I experienced it after being on that drug for 2 weeks. Everyone is different. I will probably still take it off and on but it had a strong affect on my nerve endings. I took 1000 mg a day for 2 weeks. I'm trying it again and it is doing the same thing.
Posts: 2232 | From USA | Registered: Aug 2009
| IP: Logged |
posted
I took flagyl for 5 days, 500mg 3x per day for a total of 1500mg per day. The prescription was for 10 days, but after 5 days, I had terrible reaction to it, including numb fingers, toes and feet. It totally freaked me out, because you can get permanent peripheral neuropathy from flagyl. I decided to stop taking it. I might consider pulsing it in lower doasages in the future. But never again will I take that high a daily dose. I just couldn't handle it.
Posts: 14 | From Northern VA | Registered: Nov 2009
| IP: Logged |
Dawn in VA
Frequent Contributor (1K+ posts)
Member # 9693
posted
I got a super-duper and debilitating headache (neuropathy-induced I believe) when taking tinnidazole (same class and action as flagyl) after a couple of months on it and had to stop.
However, after taking about a month's holiday from it, I was (and am) able to be on it with no problem. Maybe you just need a break?
-------------------- (The ole disclaimer: I'm not a doctor.) Posts: 1349 | From VA | Registered: Jul 2006
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic