posted
My 25 year old son has been on abx treatment for Lyme, Bartonella, Babesia, and Mycoplasma for over 3 years. I'm thinking that our next step could be an appointment with Dr. K. I would appreciate any feedback (good or bad) from anyone who has seen him. My son has made some progress, but still deals with seizures and periodic psych symptoms. Any input will be much appreciated. Please PM me. Thanks, Karen
Posts: 89 | From Long Island, New York | Registered: Mar 2007
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posted
I have a friend that's seen him. He is very knowledgeable concerning lyme and not only lyme but also all the conditions that go with it and can lead to it thriving in the body. He does however base a lot of his treatment on unscientific nonsense. He started a diagnostic program called ART that has no scientific basis or research whatsoever. So he's cutting edge in some cases and in others he's completely off base. There are a lot of people that will disagree with me here, but I stick to science and reality. There are some that feel that magic and baseless ideas are the way to go and they'll say Dr. K is great all around. But I'd say 1/2 amazing, 1/2 crazy.
Posts: 499 | From Indiana | Registered: Oct 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Andrographis has helped calm seizures for me. It's been the best thing I've used. As in Buhner's book "Healing Lyme"
Two major strengths of Dr. K's protocol that can help - in addition to treating infections:
* addressing heavy metals and
* exploring if excess porphyrins are connected due to liver dysfunction from toxicity.
Topic: Buhner Healing Lyme Q & A links have changed -
[ 03-21-2010, 10:20 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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gwb
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Member # 7273
posted
quote:Originally posted by pryorka: I have a friend that's seen him. He is very knowledgeable concerning lyme and not only lyme but also all the conditions that go with it and can lead to it thriving in the body. He does however base a lot of his treatment on unscientific nonsense. He started a diagnostic program called ART that has no scientific basis or research whatsoever. So he's cutting edge in some cases and in others he's completely off base. There are a lot of people that will disagree with me here, but I stick to science and reality. There are some that feel that magic and baseless ideas are the way to go and they'll say Dr. K is great all around. But I'd say 1/2 amazing, 1/2 crazy.
Hope you have your body armor on for when his supporters come out of the wood work. LOL! : )
posted
Another point you need to be aware of -- I have heard from other patients that he will not treat for Lyme etc unless you treat for heavy metals first. I do agree that mercury toxicity etc can be a serious issue, just not quite convinced that it is a major problem for everybody.
Hubby has never seen Dr K and what I am reporting is "hearsay".
I also am concerned about the fact that you live so far away from this doc -- from what I have read about his protocols you would need frequent visits.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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massman
Unregistered
posted
Crazy to me is not realizing that so many things cannot be measured in the "scientific" way.
Sort of like comparing cross country skiing to downhill skiing.
Check out the great thread here now about how incredibly poor the drug studies actually are.
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seekhelp
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posted
Pryorka, prepare to be beaten into oblivion by tomorrow AM on the forum. You've awaken angry wolves. Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
DK is an excellent Dr and probably one of the most knowledgeable in existence regarding how to rebuild the body from the ground up.
Granted, there are many great LLMDs out there who know how to throw awesome abx combos at one, and they usually work w/ time, but there are many of us who are left behind in that wake.
His published literature is truly brilliant and IMO most of what he has to offer can be learned from reading his teachings.
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
Quote:
"I have heard from other patients that he will not treat for Lyme etc unless you treat for heavy metals first."
This comment by Bea S. is so wrong - it hurts me just to see it written in Lymenet.
I will not comment on the rest, except that I can say that Dr. K. is the only person that helped me, as a very elderly person heading toward 80, to get well, from a very serious Lyme infection with seven co-infection, 12 root canals and environmental toxicities of all kind.
I was treated with everything and for everything with plenty of antibiotics, pharmaceutical drugs, and a lot of energy medicine, herbals, mostly based on what some people call "hocus-pocus" of kinesiological testing ( ART) always combined when necessary with costly lab work.
We all have a choice.
Take care.
Posts: 9834 | From Washington State | Registered: Oct 2000
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
Dan's Mom, Feel free to e-mail me at [email protected]. Sorry, I do not use the PM feature, so I cannot write to you.
Hope your son is getting better every day.
Take care.
Posts: 9834 | From Washington State | Registered: Oct 2000
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posted
Thank you all so much. This is exactly what I was looking for; the good and the bad. Let's face it no LLMD is a perfect fit for everyone. They all have their strenths and weaknesses. So in making a decision to seek treatment this far from home, we need to look at it from all angles. My sister lives about 8 hours from Seattle and has offered to let us stay with her for as long as it takes. That being said, it would still be a trek, but certainly less costly than having to rent an apartment and all that goes with it.
Keebler - Thanks so much for the links, they have provided me so many more options and we will certainly try the Andrographis.
Djf2005 - Your suggestion to learn from his literature is going to be our next step, I think. We can certainly try incorporating some of his protocol and see what happens. The only drawback to that is that because of Dan's sensitivity to any kind of change in supplements and/or meds, we have to start low and increase very slowly. Thank you!
GiGi- Thanks, I will be e-mailing you.
Also, I want to say that this site is such a wonderful resource and all of you who respond are true "life-savers". One thing I have learned in our 3 year battle against this disease is that information is our best weapon. And Lymenet is chock-ful of information and wonderful people who are willing to share. Thanks again, Karen
Posts: 89 | From Long Island, New York | Registered: Mar 2007
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djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
Gigi-
How is is wrong to say DK would prefer to treat metals first? I was in the process of scheduling an appt. w/ his office a few months ago and was told my amalgams had to go before I came. I have heard this before also from many people. I think it is wise, and they are almost fully out. He also requires 100% compliance now w/ his protocols and they request you do not work with any other doctors that they do not recommend, all things one has to take into account financially and other wise. Apparently the new system I was told by Ron was that it's about 9 months to see DK once you call, and in those 9 months they want you to work w/ closely trained practicioners in Wa. Again, 100% compliance is required. I don't see any issue in treating this way or in this order. It is just what I was told.
Dan's Mom-
Glad you are pursuing it further, I think it will help.
Also consider ordering his "Fundamental teachings" dvd set or sometimes referred to as "seven levels of healing".
It is expensive, but full of good info. I can let you borrow mine actually if you would like.
Best
Derek
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Seek, you know the great thing about lymenet these days....is we tend to agree to disagree about many treatment protocols.
I haven't seen ugly around here in a long time. The alternative side has too much going for it to waste time and precious energy.
Dan's Mom, I've been here for 8 yrs. See the mild to severe stories.
It would be very expensive to fly from Ky to the west coast and see the great Dr K, but I would do what I had to do for money, if I was in a serious way with this illness.
If I was one with severe MS, ALS, dementia etc I would see Dr K without a doubt. Dr K protocol is long and drawn out process. One must be totally commited to his step by step protocols.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
Derek, He does not touch anyone with amalgams in the mouth because they are without a doubt the major problem to start with. You turn the gas stove off before you force yourself to breath in more toxin. THE FIRST ORDER IN TOXICOOGY IS TO REMOVE THE TOXIN.
What follows is up to his testing of the autonomic nervous system. If the body signals metals, he may treat metals. If the body signals parasites or other issues that have to be solved before any successfull METAL detox can even start, that will be addressed.
Some people can tolerate addressing different issues at the same time, some CANNOT.
It is a fact that he will not touch anyone with mercury in the mouth or a major dental situation that he knows will be a stumbling block to healing. It is a waste of his time and the patient's time and resources.
There are a number of other practitioners who have trained with him for several years who will approach things in a similar way.
He also is suggesting to some patients at an early time that they consider the Allergie Immun Therapy if he feels that will be beneficial.
To everyone who goes there, you will be in control of what you feel comfortable with doing. You have to determine that. Ron does not determine anything, except that you will either get an appointment or not get an appointment. But it is a fact that Dr.K. will not take on a patient whom he has to educate or convince first that there is hardly a worse toxin than mercury. He has been dealing with the reality of toxic heavy metasl for 30some years. But when, how, and in which combination he treats toxic metals and all the other underlying problems is determined by common sense and the body's response via the Autonomic Nervous System through ART.
Dr. K.'s protocol is more streamlined than I have ever ever seen it when I was his patient in 1998. because many of the heretofore unknowns are no longer a puzzle.
Treatment follows totally the body's requirements and what a person is able to handle safely. To the outsider it may look the same, but it is not.
You have heard of the fact that the parasites hold some of the metals in their coats? Where do you start treating? What kind of parasites? Little round worms or a many foot long tapeworm?
Where do you start treating ANYTHING if your house is full of hidden mold or you are living with a microwave tower looking in your bedroom window?
Common sense reigns with Dr. K.
Take care.
Posts: 9834 | From Washington State | Registered: Oct 2000
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ping
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Member # 6974
posted
Now that the hornet's nest is all stirred up, I'm going to swat it again...real hard.
Dan's Mom:
I'm closing on 60 years of age and wasn't diagnosed with Lyme and a couple of other co-infections until I was almost 50. It took 5 years of hard antibiotic treatment to get me into remission and I've been off the meds for 3 years now. If I had it to do all over again, the only thing I'd change is to have looked into the possibility of Lyme a bit sooner, instead of it taking 50 years to find out what was really wrong.
At the time I was diagnosed and began treatment and at this writing, I carry 9 amalgams in my mouth. The docs I saw did not ask me to rid myself of any sort of toxins first before treating me for these deadly infections and I'm so thankful for it! I'd not be alive today had any of them demanded such a thing of me! Yes, amalgams are dangerous, but the utter stupidity of not treating these infections until other so-called toxins are cleared is much more dangerous.
And though it might be possible that Dr. K. is recommending that some of his patients take Allergie-Immun Therapy, as far as I can tell, this is strictly a verbal request of them, if it's in fact being requested at all. I've seen nothing on paper published by Dr. K. as yet making this a recommendation of any sort to anyone.
In favor of Dr. K., he does have some excellent detox protocols and I am using a number of them before having my amalgams removed and will continue them after removal. This is far different than treating tick-borne diseases (TBD's) of the type in which you say your son is afflicted.
I don't know the state of your son's dental health, chemical/toxic exposure, etc., but please don't let anyone convince you that other peripheral issues need resolving before combating his infections. It was a full 3 years into treatment before I even BEGAN to feel better and I didn't have at least a couple of the co-infections you listed, so your son is not reacting abnormally. In fact, he's blessed to have youth on his side.
If you and your son don't like the doc he's seeing, then find another that will begin direct treatment of TBD's. Should the decision be made to stop his medications for an extended length of time and allow the infections to regain ground, you might just have wasted 3 precious years of both your lives,... but especially his.
Now, should you want to communicate with me via email, I can be reached at:
posted
I wish I could say something good, but Dr.K.'s treatment in Germany didn't work for me.
Posts: 844 | From home | Registered: Sep 2006
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glm1111
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posted
I agree with ping about treating the infections without having grueling dental amalgam removal first.
I still have a few amalgams, but I know getting rid of the parasites and everything they carry (including bacteria which they protect) saved my life.
I also had a girlfriend who saw Dr. K. a few yrs ago and he didn't request that she remove her amalgams first.
He gave her a script for alinia (antiparasitic) along with a script for an epi pen in case she had any reactions to the drug.
That said, I do think Dr. K. is an excellent physician and I know he is one of the few LLMDs that makes going after parasites a priority as GiGi has stated in another post. Wishing you and your son the best,
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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massman
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posted
Gigi posted "Common sense reigns with Dr. K."
This is great because commom sense isn't too common anymore !
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seekhelp
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posted
Tosho, did you treat with Dr. K himself? What did you do? Is the U2 girl cured now?
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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Amyqu
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posted
This is second hand but someone who treated with K told me it was pretty expensive.
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seekhelp
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posted
I'm sure Scott F can comment.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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CD57
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posted
what is this I hear about people having to live there to get treated? how often are the office visits?
Posts: 3528 | From US | Registered: Apr 2007
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
Ping's comment above:
"And though it might be possible that Dr. K. is recommending that some of his patients take Allergie-Immun Therapy, as far as I can tell, this is strictly a verbal request of them, if it's in fact being requested at all. I've seen nothing on paper published by Dr. K. as yet making this a recommendation of any sort to anyone."
To clarify this comment by Ping on this thread, Dr. K. has been doing the AI therapy for himself for several months. His opinion about the AI therapy is obvious - please note the www.allergie-immun.de links on the AI homepage, in orange left-hand column, which indicates that he is recommending the AI Therapy. Sorry it is in German. "Emphiehlt" means "recommends" in English.
He is very happy with AI for his own body. He was not familiar with it until he learned about it from me. He told me that he liked what he saw in some patients who had done the therapy on their own before they became his patients. As we all know, allergic dysregulations are a huge problem and stumbling block to get back to health.
Take care.
Posts: 9834 | From Washington State | Registered: Oct 2000
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