Hambone
Frequent Contributor (1K+ posts)
Member # 29535
posted
How sick was Dr. B? He looks great now. I never knew he had Lyme until yesterday.
Posts: 1142 | From South | Registered: Dec 2010
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
He doesn't have lyme now. This was many years ago. Don't know exactly how many but it could be 20 years ago.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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posted
Thank you Lululymemom for reviving this thread! Answers so many questions that I had.
-------------------- We really know so little about the body and the microbiome. Posts: 261 | From Southern California | Registered: Jan 2011
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lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
You're welcome, Sunny, I think it's interesting because he took such a unique approach to treating this illness.
posted
hum, this approach does not seem to be honest... unless ceftin acts as an anti inflammatory. In this cas, he had a strong immune systme that took care of the infection by itslef, thus a great inflammation (herx), then ceftin was used to lessen it... Has anybody else been cured using the same protocol? The other explanation i think of, is he had chronic fatigue, which apparently can go into remission after 4 or 5 years...
Posts: 723 | From Montreal | Registered: Oct 2010
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posted
I don't beleive in Chronic Fatigue. I beleive in it as a symptom, but not a diagnosis. I dont think someone would spontaneously feel tired all the time-- I absolutely think 100% of CFS people are undiagnosed with other infections or medical condtions, much like Lyme.
Posts: 844 | From CA | Registered: Apr 2010
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lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
[QUOTE]Originally posted by Shahbah: [QB] hum, this approach does not seem to be honest... unless ceftin acts as an anti inflammatory. In this cas, he had a strong immune systme that took care of the infection by itslef, thus a great inflammation (herx), then ceftin was used to lessen it... Has anybody else been cured using the same protocol?
As it appears in the thread here, Pam Weintraub, author of Cure Unknown, has also used this method of treatment. She even discusses it here.
Bartonella henselae 1:100 Posts: 2027 | From British Columbia | Registered: Jun 2010
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phyl6648
Frequent Contributor (1K+ posts)
Member # 28522
posted
My doc told me he had two lyme pts that got well on their own. Like it just left. He had no explantion Hoping that will happen with me..
He is not a LLMD but seems knowledgeable about lyme but unsure of treatments. He feels different treatment for each person, some antibiotics others not. I think I am one of the nots..
Posts: 1058 | From VA | Registered: Oct 2010
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I wonder how long Pam and Dr. B took Ceftin after becoming symptoms free. Did they take it for two months past the symptom free date, like we are advised to do?
I also wonder how long it took them to achieve remission each time. And how long was it after quitting therapy that the disease became active again.
It is important to realize this treatment only works when a person can remain completely symptom free while on abx. You also need to be free of co-infections. Most of us are not there yet.
I am treating babesia d now and my other symptoms are undercover. I expect the other infections will come out when the babesia is taken down. I believe I should then concentrate on eradicating the erhlichia and bart.
Then with only Bb left try this approach with Ceftin.
Maybe I will get lucky and the other infections are already taken out and not just lurking waiting for their opportunity.
I doubt it.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
I think it's silly to speculate about how the number one doctor at the time cured himself. He's probably still number one, only he doesn't treat anymore but is doing research.
Firstly, he's a doctor and has access to knowledge, medical testing and medications that we don't have.
To say he may have had CFS is really out in left field. He is the first LLMD to write treatment and diagnostic guidelines for Lyme disease and co-infections.. I think he knows the difference between Lyme and CFS, not to mention that he treated many thousands of patients in his day. Also, in almost all cases CFS is untreated or under treated Lyme disease.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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posted
Does anyone know where to watch the mystery diagnosis episode? I remember seeing it years ago and thinking, oh gosh, wouldn't it be crazy if this is what I had all this time (I had been to 30+ docs for my symptoms, undiagnosed for 15 yrs).
I would love to see that episode again... Now that I know it is Lyme...
Posts: 341 | From NY/FL | Registered: Apr 2010
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posted
I looked for that episode but could never find it.
It was Wild Condor's story...she used to be a member here and was a patient of Dr.B...cured also.
Posts: 410 | From Victoria BC, Canada | Registered: Jul 2008
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Hambone
Frequent Contributor (1K+ posts)
Member # 29535
posted
It's Mystery ER. Not Mystery Diagnosis (although there are two Mystery Diagnosis episodes about Lyme...one with Doug Posluzsney and one with Jackie Spar, the teenaged girl).
This is only part 1. I think you can click on part 2 from the link after watching part 1.
Posts: 1142 | From South | Registered: Dec 2010
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
UP...a very good post. Remember that there is no single cure, but this has good info / ideas to try once you are symptom free (and if you relapse with lyme proper (no co-infections)).
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3139 | From Massachusetts | Registered: May 2010
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nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
OK It's been a while for this one...Any update ?? I tried to see Wild Condor's,couldn't get through. What's the take on it now. I don't remember Keebler or TuTu on post,any input..
I've yet to see Ceftin or here of it since diagnosed... Never tried it. Has anybody lately?
Am I so sick and tired of being sick and tired that my body and or mind is stuck????
I've talked about this with 4 Dr's one a LLMD and another not so far off from being one. They all say no ... It is the illness and it is happening and at least 2 have given hope for feeling a lot better, they also thought I would have responded different by now.
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I forget who posted this information but I recently saw a note about how Pamela Weintraub has a follow-up book due out very soon.
I'm too tired to check her website but that detail may be there. Links are above in previous posts. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Pam Weintraub's revised Cure Unknown is coming out at the end of June and will have 25 additional pages.
Posts: 33 | From tri-state area | Registered: Mar 2013
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Lymedin2010
Frequent Contributor (1K+ posts)
Member # 34322
posted
I just shook her hands today & she again reiterated that it will be out in e-book. It is basically an addendum as the final chapter in her book.
I got her autograph too, yippeee. We can't thank her enough for legitimizing our experiences and cause in her book. Now dammit, where is the follow-up blockbuster movie starting Johhny Depp?
Posts: 2094 | From NY | Registered: Oct 2011
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posted
This is an old but fascinating thread, so I want to post a link to a video where Dr Burrascano talks about 'cycle therapy' during his presentation.
Joseph J. Burrascano Jr. MD. Lyme Borrelisosis: Part 2, NorVect 2014
It's a pleasure to hear him speak. He's a lake full of wisdom and very eloquent.
Posts: 109 | From The Netherlands | Registered: May 2014
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