LymeNet Flash: How do I get prepared for LLMD visit?

LymeNet on Facebook

LymeNet on Twitter

Follow @LymeDiseaseNet

The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive

The Lyme Disease Network is a non-profit organization funded by individual donations.

»	LymeNet Flash » Questions and Discussion » Medical Questions » How do I get prepared for LLMD visit?

UBBFriend: Email this page to someone!

Author

Topic: How do I get prepared for LLMD visit?

stickymommy
Member
Member # 24233

posted

This is completely overwhelming. I feel like someone should put out a book- Lyme for Dumbies..I find info here then i can't find it again. Antibiotics ,symptoms, supplements, my head is spinning. There is a Dr. B who has guidelines that I can't locate. I am on a waiting list and they could call soon. I need to try to muster up some enerygy to get my act together. not that i'ss retain any info. my brain is mush. please help. so my hubby can get somewhat educated.

Posts: 41 | From Akron, Ohio | Registered: Jan 2010 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

MAKING THE MOST OF YOUR LLMD APPTM:

http://flash.lymenet.org/ubb/Forum1/HTML/020605.html

Dr B's guidelines... but not an updated one:
http://library.lymenet.org/domino/file.nsf

Who has the link to the newer version? I can't believe it's not in the Popular Topics section.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

Treepatrol's Links for Newbies (Lyme Disease for Dummies)
http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/29917

Lymebrary
http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/69723#000000

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001 | IP: Logged |

stickymommy
Member
Member # 24233

posted

thank you soooo much. you all have been so awesome. it's nice to have people who relte and have compassion.

Posts: 41 | From Akron, Ohio | Registered: Jan 2010 | IP: Logged |

Keebler
Honored Contributor (25K+ posts)
Member # 12673

posted

-
Dr. B's most recent guidelines:
-------------------------

http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf

Advanced Topics in Lyme Disease (Diagnostic Hints and Treatment Guidelines for Lyme and Other Tick Borne Illnesses

Dr. Burrascano's Treatment Guidelines (2008) - 37 pages

-------------

Go to page 27 for SUPPORTIVE THERAPY & the CERTAIN ABSOLUTE RULES

and also pages 31-32 for advice on a safe, non-aerobic exercise plan and physical rehabilitation.

----------------------

This is included in Burrascano's Guidelines, but you may want to be able to refer to it separately, too:

http://www.lymepa.org/Nutritional_Supplements.pdf

** Nutritional Supplements in Disseminated Lyme Disease **

J.J. Burrascano, Jr., MD (2008) - Four pages

==============================

This book, by an ILADS member LLMD, holds great information about treatments options and support measures:

http://tinyurl.com/6lq3pb (through Amazon)

THE LYME DISEASE SOLUTION (2008)

- by Kenneth B. Singleton , MD; James A. Duke. Ph.D. (Foreword)

You can read more about it here and see customer reviews.

Web site: www.lymedoctor.com
-

Posts: 48021 | From Tree House | Registered: Jul 2007 | IP: Logged |

Amy C
LymeNet Contributor
Member # 19297

posted

Oh I remember this exact feeling the 1st time I took myself and my 2 boys. It was overwhelming!

I can't remember where I found this but had a list of all possible symptoms and went through them and made a list of who had what symptom.

Then I racked my brain to remember mine and their health histories. As detailed as I could get it and even if it didn't seem important or related I listed it just in case.

I wrote a brief story about what was going on with each of us.

I also included a list of tests that I remembered having or doctors I remembered seeing while I was seeking a diagnosis.

Oh and a list of medications for each person.

I typed all of this in Word and then printed it. If you want to see my copy I am sure it's still on my computer. Just give me your email if so.

Don't forget to breathe...Best of luck!!

--------------------
My lyme disease blog:
http://lymetimes3.blogspot.com/
One BIG Lyme family!
I tested CDC + 10/08
My mom Igenex + 11/08 & My brother Igenex + 4/09, My 2 boys some + & IND bands, clinical diagnosis 3/09 (youngest has Aspergers too)

Posts: 470 | From Painesville, Ohio | Registered: Mar 2009 | IP: Logged |

Printer-friendly view of this topic

The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA
http://www.lymenet.org/