robi
Frequent Contributor (1K+ posts)
Member # 5547
posted
I have been on bicillin for nearly 2 years. Herxed a lot in the beginning. then not as much. Had some fairly good months ............ now I am slipping again.
Anyone else experience this pattern?
I have been on it with mino and now with azith.
i eat right .......... better than most. exercise. lead a healthy lifestyle. What now?
robi
-------------------- Now, since I put reality on the back burner, my days are jam-packed and fun-filled. ..........lily tomlin as 'trudy' Posts: 2503 | From here | Registered: Apr 2004
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Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
Azith over the course of time made me feel tired and not well. Maybe it is not that you are slipping with the bicillin, but that the zith is making you feel worse?
Although I did not feel great while taking it, zith did help greatly with my symptoms, so I am not recommending that you think about stopping it and I am glad that I stuck with it for months.
Just that the slipping feeling might be caused by the zith reaching some bug that the bicillin does not? One possibility, anyway.
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
what dose bicillin?
maybe you need to increase doseage? just a thought?
Posts: 3905 | From USA | Registered: May 2007
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robi
Frequent Contributor (1K+ posts)
Member # 5547
posted
dose is 1.2mu one in each side seekly. So two a week on the same day.
how much did you do?
-------------------- Now, since I put reality on the back burner, my days are jam-packed and fun-filled. ..........lily tomlin as 'trudy' Posts: 2503 | From here | Registered: Apr 2004
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posted
How about upping your dose to 4/week and adding in a cyst buster? Sounds like you need to up it a big notch.
Posts: 410 | From Victoria BC, Canada | Registered: Jul 2008
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WildCondor
Unregistered
posted
Hey Robi,
You might try spacing it out and use 1.2 MU Bicillin LA 3-4x week instead of the 2.4. Or you could add more of another antibiotic. Whats the zithro dose?
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posted
I did great with Bicillin for many many months...need to vary the dose: 2-3 to maintain, 4-5 during a Herx, flagyl to prevent cyst forms and biaxin or zithro for intracellular action.
Posts: 23 | From northeast | Registered: Sep 2006
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Dawn in VA
Frequent Contributor (1K+ posts)
Member # 9693
posted
I'd add flagyl or tinni to the mix, pal. Or switch to IM Rocephin. Very painful, said to be more so than the Bicillin IMs, but those lidocaine patches... You know where you can get the Rx; I have one from her in fact sitting in my back pocket.
-------------------- (The ole disclaimer: I'm not a doctor.) Posts: 1349 | From VA | Registered: Jul 2006
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robi
Frequent Contributor (1K+ posts)
Member # 5547
posted
I think I will try the 3 shots per week. I already am on Tindamx (tinadazole) one week a month. Also, on zith(dose of 500mg 1 x day) and adding mino (100mg x 2 a day).
Thanks for all the suggestions. IM rocephin .......... no thnks ... I am looking to reduce pain not increase it.
Further comments , ideas sugestions are , of course, welcome.
Thanks to all who responded.
robi
-------------------- Now, since I put reality on the back burner, my days are jam-packed and fun-filled. ..........lily tomlin as 'trudy' Posts: 2503 | From here | Registered: Apr 2004
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
robi~ I had a significant herx on the IM bicillin (it put me in the ER with extended and recurrent tachycardia among other things). But, in spite of the fact that I knew it was killing stuff off, I did not see huge improvements on it.
I later found out that I am also battling various viruses (HHV-6, EBV, coxsackie B) and Cpn. SO...you are on a lot of antibiotics. If you are not making headway, or are going backwards, consider getting tested for viruses. Enteroviruses should be tested for at ARUP lab: http://www.enterovirusfoundation.org/chronicinfections.shtml
Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
Hey Girl!
I am in agreement with the others who suggested that you increase the dose to 3 times per week, spaced out during the week.
Glad to know you are on Tnini too, that is important... or so says my LLMD. (I still haven't added mine, but plan on it at some point soon.) Posts: 7052 | From Colorado | Registered: Mar 2003
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Whats the zithro dose?
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