posted
I'm wondering if anyone else has the same type of problems with heat that I do.
For a year or so, heat would highly activate my sensory symptoms and I'd tingle/buzz like crazy. Thankfully that has subsided to a considerable extent.
I still get this, like if I get into my car on a hot day my face immediately tingles strongly. However it is slowly improving.
But heat can still make me feel awful, in the form of exhaustion.
Today it is unseasonably cool here in MD, so I took a hot shower. Not exceptionally hot, probably the temp that most people prefer, but I usually go luke-warm so it was higher than my standard.
It felt very relaxing and soothing at first.
But after a couple of minutes my stomach turned over and I felt malaise throughout. Plus I feel like my energy went down the drain with the water.
This has happened to me before and was more severe earlier in my treatment, but I never asked about it and I don't read too much about others with Lyme and heat intolerance.
So whether from exertion or an external source (shower or weather), heat can either activate my sensory symptoms and/or zap my energy. Do other people get this? Does anyone understand why this happens?
It is a delicate line, because heat can feel therapeutic. But if I take it an inch too far, I pay for it all day with exhaustion.
Thanks in advance for commiseration or thoughts.
Posts: 455 | From Was in PA, then MD, now in the Midwest | Registered: Nov 2008
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I've been intolerant to heat and sunlight from the beginning. I've been sick for three and a half years and treating for about a year and a half.
I still have this particular symptom, although it is slightly improved. Epsom salt baths used to set me back, but I could handle a short shower. I haven't spent much time outside since getting sick, esp. in warm weather, as any amount of sun hitting my body sends my CNS into a bad place! I always get tingling and patchy dysthesias with heat and sun, too.
My LLMD has me on a low dose of Lyrica for this, but it's not helping as far as I can tell. I just keep on treating and hope it will get better. I can commiserate with you all day long! I would love to be able to spend some time outside this summer!
-------------------- IV graduate. As of 1/10, oral Omnicef, Minocyline, Mycobutin, Levaquin, and Flagyl. Lyrica and a bunch of supplements. Posts: 123 | From Atlanta | Registered: Mar 2009
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I can't walk past a hot stove or get near a window with sunlight pouring in without that "drained" feeling.
I hate the summer.
Shall we all move up north?
-------------------- When we are no longer able to change a situation---we are challenged to change ourselves. (Viktor Frankl- Holocaust survivor) Posts: 460 | From Maine | Registered: Apr 2009
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kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
My daughter has this. She does take the epsom salts bath, but she has to use tepid water. And she gets really sick if she stays outside for too long.
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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posted
Do a search on "Uhthoff's sign"... I believe it applies to many diseases where nerves/conduction of nerve impulses are affected, not just MS.It's been mentioned here before also,and you should be able to find some posts about it.
Joe
Posts: 249 | From Northern NJ | Registered: Jul 2005
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Jane2904
Frequent Contributor (1K+ posts)
Member # 15917
posted
Our daughter has this too.
Feels sick and gets light headed when it is hot.
Posts: 1357 | From Massachusetts | Registered: Jun 2008
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MDW005
Frequent Contributor (1K+ posts)
Member # 22706
posted
not so much the exhaustion, but the sensory issues you have/had I can truely relate to.
-------------------- God's promises mean you always have something wonderful to look forward to. Posts: 2150 | From Georgia | Registered: Oct 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Heat can cause major trouble for many lyme patients. You may need to get a cooling vest - or have ice packs behind the small of your back, around your neck, at your wrists when in heat.
Avoid iced cold drinks, though as they can be a strain and cause the body to actually work harder to warm itself up, thereby, a boomerang effect. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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joalo
Frequent Contributor (1K+ posts)
Member # 12752
posted
I can't stand heat either. When I get warm I can feel my strength and energy disappear. I feel like I'm going to just drop to the floor if I don't sit down.
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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