posted
That I had band 39+ and don't have lyme???
Posts: 59 | From california | Registered: Aug 2007
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
What lab found it?
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
Lyme Disease is a "clinical" diagnosis! Treat if you are symptomatic and re-test in a few months. I got a CDC IGM positive after a year of treatment.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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Topic: Really need advice, please read, again symptoms when I'm pregnant.....
posted 18 May, 2010
In May of 06 I started to get real weak and got a headache that was never ending. My symptoms at this time were, tingling, pins and needles, weakness, fatigue, neck pain and some more things. This lasted for a full 3 months, at this time I got a brain and c- spine mri with no contrast and it was normal. My neuro said no chance of ms. My mri of spine showed 2 bulging disks, everyone was quick to blame all my symptoms on the disks but neuro said that the disks would not cause all these symptoms, he blamed it on anxiety.
My symptoms were gone in 3 months and soon after I had pain my eyes, sharp, dull pain behind my eye and it felt very scratchy for a good month.
I went to the opthahmalogist and they said my eyes were just fine.
Soon after the eye pain was gone. I had no symptoms until Feb 07, at this time I knew that something was definitely wrong with me.
My symptoms were, tingling, pins and needles, twitching, insomnia, headaches, face pain, itching, muscle pain, muscle weakness, my eye would at times see double, major neck and shoulder pain, pain in my mid back, burning feet, hot and cold sensations, some nights right when I was about to sleep I would get a whole body jerk,
again I went to the neuro and did a mri of brain with no contrast and it was normal, my neuro again said no ms. Soon my symptoms were gone. All blood work is normal too. Lyme with the infectious disease doc was negative.
I then decided to see a llmd, which I saw Dr. H, here were my test results
igm- 39+ 41 IND igg- 41+ 66+ 39 IND
He put me on 10 days amoxy and made me retest again only for IGM;
Results were:
IGM
30+ 41+ 39 IND
Also did a 30/31 kda test which was negative. He said I had borderline lyme, so all I ever did was 10 days of amoxy, I was 3 months pregnant with baby #1. My symptoms soon all went away, this is in 2007.
I had another baby a year later, no symptoms what so ever. Dr. H also told me that after I give birth if I did have lyme for sure that all my symptoms would come back in full effect. With my 2 kids this did not happen. So I put it away that I don't have lyme. Since the Dr. was also never 100% telling me that I do.
I am now pregnant with baby #3 and I think my symptoms are starting, 3 years later. I have had a headache for 4 days straight now, it starts at my temples and goes to the back of the head, it's been excruciating, have not had this since 2007, last night I couldn't sleep, I was itching all over and my left leg was hurting.
I am just wondering what is going on with me, did I have lyme, do my symptoms sound like ms, lyme is it just a pregnancy headache, or is it just anxiety? I am so confused already, do lyme symptoms go away for 3 years and come back??
(Marline) -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Marline,
I'm so sorry to hear that you're going through such a rough time.
First, yes, lyme symptoms can go away for 3 years and come back. I'm not sure what is going on but I do hope you can consult with a good LLMD. And nothing is ever "just" anxiety. Anxiety is a result of something out of balance.
As for this "sounding line ms?" - MS is just a constellation of things (often untreated lyme).
Since you are pregnant, I do hope you can find a good LLMD who can answer your questions.
MAGNESIUM can help lessen a headache and reduce toxicity that can cause one. Magnesium is often administered to pregnant women to treat toxicity issues.
==================
Dr C's Western Blot explanation is discussed here:
"With most infections, your immune system first forms IgM antibodies, then in about 2 to 4 weeks, you see IgG antibodies. In some infections, IgG antibodies may be detectable for years.
Because Borrelia burgdorferi is a chronic persistent infection that may last for decades, you would think patients with chronic symptoms would have positive IgG Western blots.
But actually, more IgM blots are positive in chronic borreliosis than IgG. Every time Borrelia burgdorferi reproduces itself, it may stimulate the immune system to form new IgM antibodies.
Some patients have both IgG and IgM blots positive. But if either the IgG or IgM blot is positive, overall it is a positive result.
Response to antibiotics is the same if either is positive, or both. Some antibodies against the borrelia are given more significance if they are IgG versus IgM, or vice versa.
Since this is a chronic persistent infection, this does not make a lot of sense to me. A newly formed Borrelia burgdorferi should have the same antigen parts as the previous bacteria that produced it.
But anyway, from my clinical experience, these borrelia associated bands usually predict a clinical change in symptoms with antibiotics, regardless of whether they are IgG or IgM." -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
I think it's hard to know. The founders of Igenex say that 39 is one of the Lyme specific ones.
I think they are probably right, barring any new scientific discoveries of things that cross-react with 39 we don't know about.
So if you had a + on 39, I would think it's at least a given you have been exposed. It can't tell you whether or not your symptoms are due to being exposed.
Right now, that is the assumption I'm operating under.
I had 39 positive (not IND, which I question personally...I understand the explanation about the fingerprint but still do not completely trust it) on Igenex and also had 39 on Stony Brook, along with many other bands (at least 8-10 different bands have shown up, not counting IND, usually 4 or 5 at a time at least).
I might question the diagnosis if I had 41 and 39 only, but once you start seeing lots of other bands too, you can't really question it. And from what I read, 39 is the band that convinced me it is Lyme, because a lot of them do cross react with things like HHV-6, like what Timaca is always telling people.
Personally, I think Dr. C's Western Blot Explanation is misleading (not saying intentionally misleading), because if you look at the science or talk to those at Igenex, they do know that most of the bands on the Western Blot cross react with other infections, but they claim 39 is not one of them.
Posts: 4590 | From Midwest | Registered: Jun 2008
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