posted
My LLMD said he consulted with Dr B on dosage, and Dr B told him "take as much as you can tolerate for as long as you can tolerate it."
In my case, 3 days of 500mg 2X daily caused paresthesias and aggravated peripheral neuropathy. I stopped it. My LLMD said to try again at 1/4-1/2 tablet 1X daily and try to work up the dose.
I did 250 mg once per day for 2 days, then bumped it up to 250 mg 2X daily for 2 more days. I quit over a week ago and am STILL having annoying picking and tingling in my feet.
I have very low tolerance to Flagyl, but some people seem to be able to take high doses long term with very little problem.
Perhaps those with primarily Bb related neurological symptoms react badly to Flagyl because of its direct affect on the nervous system? Perhaps those who do not have neurological symptoms tolerate it better?
This would be an interesting poll ...
Posts: 277 | From Pennsylvania | Registered: Apr 2010
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posted
It is the only drug that puts a dent in my symptoms. I take it monday thru friday 500 in the morning and 500 in the evening. I take the weekends off. I am also on Minocin everyday and zithromax. It took 4 month to build up and 4 months after that to see improvement. I only saw improvements after the 1000mg.
Posts: 433 | From new york | Registered: Dec 2004
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posted
i take amoxy and zithro 4x days a week and flagyl 500mg twice a day for 3 days a week. and i have to say i enjoy the 3 days much more.
Posts: 65 | From Sussex UK | Registered: Apr 2010
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BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
I am on 2 weeks of flagyl and then 2 weeks of ceftin/zith. Then repeat.
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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On second week of month, taking 500mg 2x a day on Thursday and Friday only.
On fourth week of month,taking 500mg 2x a day on Thursday and Friday only.
Posts: 515 | From In His Loving Care | Registered: Apr 2009
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
I pulse 500mg 2x a day, 3 days a week ,every 2 weeks.
I'm curious why some pulse and some do not. Dr B's guidelines say nothing of pusing flagyl and I know some, like TF, who got better used it continuously rather than pulsing.
I have only done 2 pulses but seem to tolerate it well. My ears ring a bit more and I seem a little moody...but otherwise fine.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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posted
375mg 3 times a day for 5 days every 2 weeks...........
-------------------- Oct 09 Positive CDC Western Blot Jan 10 Positive Babesia Duncani Jan 10 Cd57 28 Mar 10 EBV, IgM, IgG HHV-6 IgG Posts: 739 | From NC | Registered: Oct 2009
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posted
I have taken it many ways for about 2 years now.
Usually 500mg 3 times a day but I can't stay on it due to neuropathy and fears of cancer. I was taking 750mgs three times a day for while with loads fo Vit b6 and it seemed to work and I herxed BADLY but eventually scaled it down for fear of cancer.
I am currently prescribed to only 500mg twice a day for 2 days every three weeks but I have added a little more, as it keeps me feeling well.
Can anyone include reasons with their pulsing protocols?? Just trying to figure out what Doctors are thinking of with these varying regimes.
Posts: 410 | From Victoria BC, Canada | Registered: Jul 2008
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posted
I think the pulsing is because it's a hard med to tolerate and has potentially serious side-effects (irreversible peripheral neuropathies; seizures) -- not to mention the cancer potential.
Pulsing is a way to still take it for the benefits and reduce the potential for damage.
I didn't see anything in Pam Weintraub's book about Dr B using a cyst buster like Flagyl with himself. He took Ceftin for several months until symptoms resolved, allowed himself to crash to previous illness, took another cycle of Ceftin to resolution, allowed himself to crash again and then on the third cycle of Ceftin, symptoms disappeared permanently. He might have taken Flagyl before he began the Ceftin strategy, and if so, maybe he no longer needed a cyst buster. That doesn't make much sense to me, though, since all his symptoms came back after other treatments, and it was the Ceftin alone that cured him.
Posts: 277 | From Pennsylvania | Registered: Apr 2010
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posted
p.s. I think the "allowing himself to crash" strategy was to allow the Bb time to come out of hiding from cyst form. Then he hit them really hard with the Ceftin.
Why don't more doctors use this strategy, I wonder??
Posts: 277 | From Pennsylvania | Registered: Apr 2010
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