Topic: Group discount for cord stem cells in Panama
sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
This is why I think it may be important to get stem cells from someone who may have immunity to whatever illness is being treated. This may make for better results.
I bet in the future, they will be using genetically modified stem cells. In the case of the guy with HIV & leukemia who was cured - they used stem cells from someone with natural immunity to HIV.
If you get stem cell therapy - you don't know if the particular cells have immunities or not. This may be why the cure rate is not 100%... Just an educated guess. I'm no expert in this.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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Hoosiers51
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posted
Okay, that is good.
Adult cells may have similar potential risks, but I am just not sure, so I won't comment either way. I am sure Joey has researched it more than me.
I thought I read that some scientists are speculating that in cancer, there are "cancer stem cells" that give rise to cancer, and those exist in adults too? But what I am reading is that that is an ongoing theory and not proven.
I am just trying to provide a little bit of counter balance to the conversation. Not trying to be pushy or tell people what to think.
Good luck whatever you decide to do. Nothing I want more than to see people here well.
Posts: 4590 | From Midwest | Registered: Jun 2008
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I'm glad someone is counterbalancing this thread. I reiterated that I don't want anyone desperate or unwilling (or unable) to do their own research to go. It is simply too experimental at this point, and everyone that chooses to go must take 100% responsibility for the outcome.
From what I've gathered from the medical director of the clinic, there simply has not been evidence of severe risk this far. Of course, there needs to be long term studies before we can make any types of conclusions.
Also, just by googling umbilical cord stem cells and rejection, you should find plenty of sources that state the risk of immune rejection or graft vs host disease is close to nil.
Posts: 713 | From Los Angeles | Registered: Oct 2007
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posted
Hoosier I think Stem cell are interesting. This is what comes to my mind: Spirochiets - those bacteria that have a coiling motion lets out antigens onto our tissues and then screws or burrows into muscles or organs. Our immune cells go after the antigen material, which has the effect of attacking our own tissue. The question I have is will the new immune cells also attack the tissues in the same way? After a while anyway. What about the biofilm that protects these life forms? I read something last night that a doctor was beginning to think that biofilm itself is a group of organisms. What can you share about this? My tests are still out until beginning of July. I would consider stem cells - it seems that all the antibiotics and such don't do enough. That it just ends up costing a lot of moola.
Posts: 29 | From arizona | Registered: May 2010
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posted
Sorry lemonline, I can't answer that question. You may want to contact the clinic directly for this.
Posts: 713 | From Los Angeles | Registered: Oct 2007
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CD57
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posted
Mojoey -- did the Lyme answers come back from the clinic yet?
Posts: 3528 | From US | Registered: Apr 2007
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I am wondering why embryonic stem cells would be thought more dangerous than adult, which can be infected. We know cord blood is checked for lyme in mothers of new babies with lyme. And some docs think stem cells can be infected by lyme. So, if you get your own stem cells back or someone else's, they still might be infected with lyme (or another disease). Isn't this dangerous too?
Will someone be posting the results over time with this group that is going? The trouble with these experimental things is that there is no continuing observation and tallying of results. Not by the patients or the clinics. Or if the clinics are doing it, we don' have access to the results.
It is all well and good to say people should research these things themselves, but most of them are not medical or scientific people, and can't get all the information they need.
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posted
up
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sparkle7
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posted
I think m0joey decided not to do this in light of the XMRV studies going on. I don't know if stem cells can help with a this retrovirus. It may be too early to try this kind of treatment for XMRV. There probably haven't been enough studies yet.
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METALLlC BLUE
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posted
It would be interesting to hear how this went.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
I heard from a few lyme patients that went (can't give out their names) that did rather well. They were pretty high-functioning beforehand, but said they were able to exercise more for longer after the treatment.
I have yet to hear back from any of the CFS patients. One CFS patient was about to undergo treatment, found out he was XMRV+ on the first day of treatment, and cancelled. So I don't know of anyone XMRV+ that has undergone treatment.
Posts: 713 | From Los Angeles | Registered: Oct 2007
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I have lyme but also have monoclonal gammopathy which is a precurser to multipl mylomas.
I did read once that the only treatment would be stem cell so was wondering if you had any links to share.
Thank you so much for this information.
-------------------- 1999 CFS, 2002 CMV Myco pneumonia 1 year antibiotics on and off 2002 EBV, 2009 Positive Igenex Borellia and Babesia, Brain mri severe white matter disease Monoclonal Gammopathy. On and off antibiotics since sept. March 9 started iv antibiotics Posts: 328 | From somewhereelse | Registered: Apr 2009
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
Personally, given the cost, I'd do research into Rife therapy before I considered this method of therapy. This method may evolve into a strong candidate for treatment, but it's so incredibly new.
I understand though that patients are struggling with a variety of infections which can make the process so much more difficult and choosing a therapy to stick with is hard.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
posted
Personally I wouldn't even consider stem cells if the patient has retrovirus and hasn't been treating it for some time. Otherwise it is a strong possibility the retrovirus will replicate during stem cell mitosis (cell division). It may make sense for pathogens such as lym that do not integrate into the host genome (our DNA) and hence have a lower likelihood of being "fueled" by stem cell division. That may be why lyme disease patients have gotten better results than CFS patients.
Posts: 713 | From Los Angeles | Registered: Oct 2007
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posted
Btw, I am aware of the 180 I did on the XMRV issue from earlier in this thread, but the basis for my original thinking that stem cells might actually treat the XMRV was based on potentially inaccurate data. I am not convinced that the CFS patients that were cured by stem cells were actually XMRV-pos before.
Posts: 713 | From Los Angeles | Registered: Oct 2007
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also the related videos. I dont want anyone to get taken for thousands of dollars for something that hasn't been proven to work!
Posts: 32 | From Minnesota | Registered: Feb 2010
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also the related videos. I dont want anyone to get taken for thousands of dollars for something that hasn't been proven to work!
Posts: 32 | From Minnesota | Registered: Feb 2010
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posted
Anyone that is skeptical about stem cells potentially offering huge therapeutic value for many types of illness needs to do some homework. We are beyond the point of "these are universally dangerous" or "we are universally getting scammed" and have moved to what specific ways might they be able to help us and which clinics offer the best quality of stem cells. You can get scammed in any area of medicine, stem cells included. Wake up and find the truth out for yourself.
[ 09-22-2010, 04:35 PM: Message edited by: m0joey ]
Posts: 713 | From Los Angeles | Registered: Oct 2007
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