posted
Hi Amelia. I am a newbie here myself, but have similar pain in my feet. I don't have an answer for you, but I hope someone here does.
When my foot pain is unbearable at the end of the day, sometimes it helps to soak them in icy cold water. Maybe it just numbs them so I don't feel the pain. Not sure if that is the right thing to do or if I am just shooting myself in the foot (so sorry...I just had to say it!)
I hope you find some relief! I'll be thinking about you.
-------------------- Untreated Lyme for 25+ years. Two kids, too much pain & fatigue, no hope of ever being able to treat. Posts: 310 | From Northeast | Registered: Mar 2010
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posted
I had great results from the deseret biologicals, "Bartonella Remedy". Foot pain was gone in the first week. It's only been less than 2 months. . so I don't know how long it will be gone for, but I'm hopeful.
Posts: 564 | From Tick Hell | Registered: Oct 2008
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I have had shin pain from bart but not foot pain. I take Bactrim DS and zithromax, pulsing tindamax two days a week. Tindamax is supposed to kill the cyst form of lyme but it seems to boost the effects of the bart drugs too. When I first started it I had a lot of aching on those days - herxing. I have had a lot of improvment. I also take the supplements, cysteine, nattokinase and lactoferrin for the bio film.
Don't rely on herbs alone to cure bart. It just won't work.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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lymebytes
Frequent Contributor (1K+ posts)
Member # 11830
posted
Foot pain is usually related to Bart, there are countless strains of Bart - or BLO's.
Also, might be a Lyme symptom if you have treated all BLO's successfully.
blinkie
Frequent Contributor (1K+ posts)
Member # 14470
posted
I don't think bart is the only thing that causes foot pain. I treated bart with IV levaquin and rifampin for three months. My foot pain never went away.
I recently did two weeks of a radical malaria treatment (chloroquine/primaquine) and my foot pain is now gone! LLMD thinks I have/had a protozoal infection that responded to the treatment. No telling what it was though.
Posts: 1104 | From N.California | Registered: Jan 2008
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
I got rid of bart with 30 days of Levaquin.
After the Levaquin, I took Bactrim DS which hits babs and bart also.
Burrascano says the treatment of choice for bart is Levaquin (levofloxacin, generic name):
"The drug of choice to treat BLO is levofloxacin. Levofloxacin is usually never used for Lyme or Babesia, so many patients who have tick-borne diseases, and who have been treated for them but remain ill, may in fact be infected with BLO. Treatment consist of 500 mg daily (may be adjusted based on body weight) for at least one month. Treat for three months or longer in the more ill patient. It has been suggested that levofloxacin may be more effective in treating this infection if a proton pump inhibitor is added in standard doses.
Another subtlety is that certain antibiotic combinations seem to inhibit the action of levofloxacin, while others seem to be neutral. I advise against using an erythromycin-like drug, as clinically such patients do poorly. On the other hand, combinations with cephalosporins, penicillins and tetracyclines are okay. Alternatives to levofloxacin include rifampin, gentamicin and possibly streptomycin. A very recent article suggests that prior use of quinine-like drugs including atovaquone (Mepron, Malarone) may render Levaquin less effective.
Therefore, in a co-infected patient, treat the BLO before you address Babesia species.
Levofloxacin is generally well tolerated, with almost no stomach upset. Very rarely, it can cause confusion- this is temporary (clears in a few days) and may be relieved by lowering the dose.
There is, however, one side effect that would require it to be stopped- it may cause a painful tendonitis, usually of the largest tendons. If this happens, then the levofloxacin must be stopped or tendon rupture may occur. It has been suggested that loading the patient with magnesium may prevent this problem, and if the tendons do become affected, parenteral high dose vitamin C (plus parenteral magnesium) may afford rapid relief." (pages 24-25)
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
Thanks for this too Peacemama...
Posts: 243 | From Charleston, SC | Registered: Oct 2008
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janet thomas
Frequent Contributor (1K+ posts)
Member # 7122
posted
I, like blinkie, think my foot pain is from Babs. I don't have it in the am then it gets worse as the day passes. When I did chloroquine/primaquine the foot (and knee and back) pain was gone. But I relapsed. Now I wish I had taken primaquine once a week.
-------------------- I am not a doctor and this is not medical advice but only my personal experience and opinion. Posts: 2001 | From NJ | Registered: Mar 2005
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tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
Amelia,
What protocols have you taken over the past 2 years? I have found that Rifampin helped to of my children immensely, but did not get rid of the bartonella completely, even after being on it for over 6 months. They are now taking Samento and Cumanda from Nutramedix and their remaining bart symtoms are going away from these herbal products. I would highly recommend adding them to your abx protocol, if you can get approval from your LLMD.
First you might try Rifampin to see what happens, as I feel it is a very effective bart abx. Of course, as TF mentioned above, Levaquin is also highly recommended for bart, probably even more than rifampin.
tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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Hubby found this helpful in the past. One tube will last a long time.
I don't think it kills the bart, but do think it could chase the bacteria to another location.
Hubby has recently been using a topical ointment on his elbow. The formula has many ingredients. But be careful with this as it may stain your clothes. Actually anything with menthol or camphor may cause bacteria to move to another area of the body. The product he has used is called -- Salve, Rub Away Topical Analgesic
A third option would be to use esential oils -- there is a thread here on LymeNet listing the formula from Farah (an old LymeNet member). here is the link.
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