posted
Wow lucky you flagyl was the abx from hell for me. I'm by no means a medical expert but it would seem to point to a co-infection to me. I'm saying that also not knowing what all you took prior to Flagyl.
Posts: 805 | From Utopia | Registered: Feb 2006
| IP: Logged |
posted
I dont herx from falgyl. I dont have very strong herxes in general, so you're not alone :-)
Posts: 844 | From CA | Registered: Apr 2010
| IP: Logged |
WildCondor
Unregistered
posted
750 mg how many times per day? 3 or 4?
IP: Logged |
lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
Dr. M. a world renowned Lyme expert, now retired from BC recommends between 750 and 1000 mg per day depending on weight. So it sounds like your dosing is bang on.
posted
I never herx either...added oral flagyl 1000mg/day and did have some increased muscle twitching/mild headache. I should not complain because I sympathize with those who herx severly. I need to go infuse my zith and rocephin and hit it hard. Maybe we dont have a high cyst load? Hopefully
Posts: 747 | From Utah | Registered: Apr 2010
| IP: Logged |
BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
My doc told me that if I don't herx from flagyl, I should stop taking it.
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
| IP: Logged |
posted
Actually if you don't herx but instead feel better I think that is very encouraging, just as much an obvious herx. Some people don't herx and simply get better.
Metronidazole and Tinidazole aren't anti-inflammatory like some of the other antibiotics. There is no reason it would make you feel better unless it was killing Lyme (doesn't hit any co-infections either).
Posts: 195 | From Manchester, CT | Registered: Jun 2008
| IP: Logged |
posted
I hope you all are right. This disease is so tricky and effects everyone differently. I'm sure just like everyone else, I want to hit it hard and get into remission.
Dania84...I started treatment at 4 months. I heard adding a cyst buster early on is good. And although I was "disseminated" 4 months is early considering some of the people I have spoken with. When I got sick, I got VERY sick fast...
Posts: 747 | From Utah | Registered: Apr 2010
| IP: Logged |
WildCondor
Unregistered
posted
I took 750 mg 4x per day on Flagyl pulse (with 3 other antibiotics) under Dr. B and that is how I got well. Most of the doses I'm seeing on here seem very low which is likely why it is not working (herxing).
IP: Logged |
posted
Perhaps I spoke too fast...flagyl kicked my butt last month and it took 2 weeks to recover from, but I think it did some good. Did 1500mg every Sat and Sun, along with rocephin and zith. THis stuff is really hard to kill...
Posts: 747 | From Utah | Registered: Apr 2010
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic